Name: Samantha AGE: 7 yrs. old
LGMD Sub-Type: LGMD2i
At what age were you diagnosed:
I was diagnosed at the age of 2.
What were your first symptoms:
My mom and dad saw me fall a lot and I had trouble keeping up with my friends.
Do you have other family members who have LGMD:
No, I am the only person in my family with LGMD.
What do you find to be the greatest challenges in living with LGMD:
I don’t like not being able to run as fast as my friends at school. It’s hard to do gymnastics but I still have fun trying. My mom and dad make me take a vitamin called “CoQ10” and I don’t like the way it tastes. I also don’t like wearing my stretching boots at night. I don’t really like people knowing that I have LGMD because it’s kind of embarrassing.
What is your greatest accomplishment:
I’m proud that I can read chapter books now and that I am able to ride horses. I am also excited that I can go off the diving board and swim in the deep end in the pool. I hit the ball well when I play softball and I get excited when I make it on base.
How has LGMD influenced you into becoming the person you are today:
I get to do lemonade stands and sell bracelets with my cousins to raise money for LGMD. I’m lucky that I met other people who have LGMD when I went to a conference in Iowa. They are my friends now.
What do you want the world to know about LGMD:
It’s hard to have LGMD but sometimes I meet other people who have disabilities that are worse than mine and I realize that LGMD isn’t really that bad.
If your LGMD could be “cured” tomorrow, what would be the first thing that you would want to do:
I would throw my stretching boots out the window and go to Hershey Park to celebrate!