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X-WR-CALNAME:LGMD Awareness Foundation
X-ORIGINAL-URL:https://www.lgmd-info.org/ar
X-WR-CALDESC:Events for LGMD Awareness Foundation
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DTSTART:20260308T070000
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DTSTART:20261101T060000
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T113000
DTEND;TZID=America/New_York:20260516T200000
DTSTAMP:20260430T232104
CREATED:20260219T192211Z
LAST-MODIFIED:20260220T194841Z
UID:9355-1778931000-1778961600@www.lgmd-info.org
SUMMARY:Fore The Cure: 2026 LGMD2D Golf Tournament
DESCRIPTION:Agenda\n\n\n\n11:30 AM \nCheck-in\n\n\n01:00 PM \nShotgun Start\n\n\n05:00 PM \nDinner Reception with raffle prizes
URL:https://www.lgmd-info.org/ar/event/fore-the-cure-2026-lgmd2d-golf-tournament/
LOCATION:Southers Marsh\, 30 Southers Marsh Lane\, Plymouth\, MA\, 02360\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.lgmd-info.org/wp-content/uploads/2026/02/LGMD2D_GOLF-2026.jpg
ORGANIZER;CN="LGMD2D Foundation":MAILTO:info@lgmd2d.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260522
DTEND;VALUE=DATE:20260524
DTSTAMP:20260430T232104
CREATED:20251226T192041Z
LAST-MODIFIED:20251226T192041Z
UID:9341-1779408000-1779580799@www.lgmd-info.org
SUMMARY:European LGMD2I/R9 Patient & Family Conference
DESCRIPTION:This conference will unite the LGMD2I/R9 patient community with clinical and industry leaders to share research progress\, the latest updates on standards of care and clinical trials\, and pathways to approved treatments. \nThe conference will be held in Korsør\, Denmark\, at the Musholm Sport & Conference Center\, which is within walking distance of  Korsør Train Station. \nSee the draft agenda here.   \nWe hope you can join us in Denmark to connect with patients and families\, learn about the latest research\, and hear from clinical experts in the field. We hope to see you there! Registration Link:  https://forms.gle/ZnNgRojvZ1E7AwWJ7
URL:https://www.lgmd-info.org/ar/event/european-lgmd2i-r9-patient-family-conference/
LOCATION:Musholm Sport & Conference center\, Korsør\, Denmark
ATTACH;FMTTYPE=image/jpeg:https://www.lgmd-info.org/wp-content/uploads/2025/12/597393932_1300308522137831_6643034261391160321_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260612
DTEND;VALUE=DATE:20260615
DTSTAMP:20260430T232104
CREATED:20260220T194206Z
LAST-MODIFIED:20260428T181116Z
UID:9368-1781222400-1781481599@www.lgmd-info.org
SUMMARY:University of Iowa Wellstone Dystroglycanopathies Patient and Family Conference
DESCRIPTION:This is a can’t-miss event to participate in the Natural History Study and learn the most recent updates on research and trials for LGMD2I/R9! \n\nRegistration for the 2026 Iowa Wellstone Dystroglycanopathy Patient & Family Conference is open!\n\n\nLocation: Hyatt Regency Hotel and Conference Center\, 300 E 9th St.\, Coralville\, IA 52241\n\n\nDate: June 12-13\, 2026\n\n\n\n\n\nJoin us for Wellstone study updates\, meet industry and advocacy representatives\, connect with friends\, listen to talks about Clinical Trials\, Advocacy\, Caregivers Session\, Exercise with Muscular Dystrophy\, Pilates for everyone\, and Q&A session with Wellstone staff. \n\n\n\n\n\nWrap up the day with Social Hour\, Dinner\, and Trivia!\n\n\n\n\n\nImportant Information for the 2026 conference:\n\n\n\n\nThe conference will focus on in-person attendance\, but we will also livestream the main sessions. \n\n\n\n\n\n\nOnly the large sessions will be live streamed (via Zoom)\, smaller breakout sessions will NOT be available virtually. \n\n\n\n\n\n\nThere will be a supervised play area for children during the conference sessions (9:00 AM-12:15 PM and 1:15 PM-4:15 PM). \n\n\n\n\n\n\nTravel reimbursement is available to participants who complete study exams. \n\n\n\n\n\n\nIndicate exam appointment preference in registration form – appointment times are first come\, first serve!\n\n\n\n\n\n\nStudy exams can also be scheduled at other times during the year by contacting Carrie Stephan (contact info below).\n\n\n\n\nLink to reserve rooms at the Hyatt Regency: \n\n\n\n\nMake sure to book the rooms under the group code: G-WELL\n\n\n\n\n\n\nHyatt King and Queen-Queen Rooms: $149/night\n\n\n\n\n\n\nThe deadline to reserve a room at the Hyatt is MAY 20th\, 2026!\n\n\n\n\n\n\n24-hour access to the fitness center\n\n\n\n\n\n\nParking is available in the adjacent Iowa River Landing North Parking Ramp: $10/day\n\n\n\n\n\n\nWatermill Kitchen + Bar is open 6:30am-9pm (restaurant) & 11am-12am (bar)\n\n\n\n\n\n\nThe Café coffee shop is open 6am – 11am\, Monday-Sunday\n\n\n\n\n\n\n\nOther Hotels near the area:\n\n\n\n\nComfort Inn & Suites- 214 9th St Coralville\, IA 52241 (0.7 miles away)\n\n\n\n\n\n\nHomewood Suites by Hilton Coralville- 921 E 2nd Ave\, Coralville\, IA 52241 (0.4 miles away)\n\n\n\n\n\n\nStaybridge Suites Iowa City- Coralville- 801 E 2nd Ave\, Coralville\, IA 52241 (0.4 miles away)\n\n\n\n\n\n\nSuper 8 by Wyndham- 611 1st Ave\, Coralville\, IA 52241 (0.7 miles away)\n\n\n\n\n\n\nHampton Inn Iowa City/Coralville- 1200 First avenue\, Coralville\, IA 52241 (0.8 miles away)\n\n\n\n\n\n\nQuality Inn Coralville- 209 9th St\, Coralville\, IA 52241 (0.6 miles away)\n\n\n\n\n\n\nSuper 7 Motel- 810 1st Ave\, Coralville\, IA 52241 (0.6 miles away)\n\n\n\n\n\n\nHeartland Inn- 87 2ns St\, Coralville\, IA 52241 (0.7 miles away)\n\n\n\n\n\n\n\nRegistration link:  https://uiowa.qualtrics.com/jfe/form/SV_6wXW0T1VdiclPWC \n\n\n\n\n\nQuestions?\n\n\nContact: Carrie Stephan  Carrie-stephan@uiowa.edu\n\n\n319-356-2673\n\n\n\nContact: Paige Sinksen Paige-sinksen@uiowa.edu\n\n\n\n\n 
URL:https://www.lgmd-info.org/ar/event/university-of-iowa-wellstone-dystroglycanopathies-patient-and-family-conference/
LOCATION:Hyatt Regency and Conference Center Coralville\, IA\, 300 E. 9th Street\, Coralville\, Iowa\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.lgmd-info.org/wp-content/uploads/2026/02/lgmd2i-conference-2026.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260731T110000
DTEND;TZID=America/New_York:20260731T150000
DTSTAMP:20260430T232104
CREATED:20260220T193331Z
LAST-MODIFIED:20260220T193331Z
UID:9365-1785495600-1785510000@www.lgmd-info.org
SUMMARY:2026 LGMD Scientific Summit
DESCRIPTION:LGMD Scientific Summit\nJoin patients\, advocates\, researchers\, and leaders for a landmark summit dedicated to Limb Girdle Muscular Dystrophy (LGMD). \nTopic to include: emerging therapies\, clinical trial updates\, and patient-centered trial design.\n\n\n\n\n\n\nREGISTER TODAY
URL:https://www.lgmd-info.org/ar/event/2026-lgmd-scientific-summit/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgmd-info.org/wp-content/uploads/2026/02/2026-GlobalAdvocacySummitAd.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260919T183000
DTEND;TZID=America/New_York:20260919T220000
DTSTAMP:20260430T232104
CREATED:20260428T165455Z
LAST-MODIFIED:20260428T171612Z
UID:9425-1789842600-1789855200@www.lgmd-info.org
SUMMARY:Connecting for a Cure Casino Night
DESCRIPTION:Connecting for a Cure Casino Night will take place on September 19th at 6:30pm at the Hotel West & Main in Conshohocken\, Pennsylvania. This inspiring evening will benefit CureLGMD2i Foundation by raising awareness and support for individuals and families impacted by LGMD 2I/R9. \nGuests will enjoy an unforgettable night filled with games\, delicious food\, drinks\, exciting prizes\, and the chance to connect with an incredible community united for a meaningful cause. Whether you come to support a loved one\, learn more about the mission\, or simply enjoy a fun evening out\, your presence will help make a difference. \nJoin us as we come together to create hope\, build awareness\, and support research for LGMD 2I/R9. It will be a night of community\, compassion\, and celebration you won’t want to miss. \nFor more information\, please contact: \nKelly – kbrazzo@curelgmd2i.org \nKristen – kolsen@curelgmd2i.org or \nKaitlyn – kneroladakis@curelgmd2i.org
URL:https://www.lgmd-info.org/ar/event/connecting-for-a-cure-casino-night/
LOCATION:Hotel West & Main\, 46 Fayette St\, Conshohocken\, PA\, 19428\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.lgmd-info.org/wp-content/uploads/2026/04/2i-Casino-Night-2026.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260926T180000
DTEND;TZID=America/Los_Angeles:20260926T210000
DTSTAMP:20260430T232104
CREATED:20260428T170446Z
LAST-MODIFIED:20260428T171514Z
UID:9428-1790445600-1790456400@www.lgmd-info.org
SUMMARY:Connecting for a Cure Dinner
DESCRIPTION:Connecting for a Cure California will take place on September 26th at 6:00 PM at the Left Bank Santana Row restaurant in San Jose\, California. Join us for an evening of delicious French cuisine while supporting a meaningful cause. \nAll proceeds will benefit CureLGMD2i Foundation helping raise awareness and provide support for individuals and families affected by LGMD 2I/R9. \nEnjoy a special night out with friends\, great food\, and community connection. Seating is limited to just 60 guests. Reserve your tickets today and be part of Connecting for a Cure\, where community\, compassion\, and cuisine come together to change lives. \nFor more information\, please contact: Jsavage@curelgmd2i.org
URL:https://www.lgmd-info.org/ar/event/connecting-for-a-cure-dinner/
LOCATION:Left Bank Santana Row\, 377 Santana Row Suite 1100\, San Jose\, CA\, 95128
ATTACH;FMTTYPE=image/jpeg:https://www.lgmd-info.org/wp-content/uploads/2026/04/2i-Connecting-CA-2026.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260927T170000
DTEND;TZID=America/Los_Angeles:20260927T200000
DTSTAMP:20260430T232104
CREATED:20260428T171033Z
LAST-MODIFIED:20260428T171033Z
UID:9432-1790528400-1790539200@www.lgmd-info.org
SUMMARY:Concert for a Cure
DESCRIPTION:Concert for a Cure for LGMD 2I/R9 will take place on September 27th from 5:00–8:00 PM at the Bertelsen Winery in Mount Vernon\, Washington. Join us for a memorable evening bringing the community together to raise awareness and support for LGMD 2I/R9. Guests will enjoy live performances by talented vocalists Savanna Woods and Ireland Woods\, whose music will make the night truly special. \nThe event will also feature fun games\, exciting raffles\, delicious food\, and wonderful wine in the beautiful winery setting. Whether you come to enjoy the entertainment\, connect with others\, or support an important cause\, there will be something for everyone. \nMark your calendar and invite your family and friends for an unforgettable evening of music\, community\, and hope. \nFor more information\, please contact: Laceywoods@curelgmd2i.org \nClick here for tickets
URL:https://www.lgmd-info.org/ar/event/concert-for-a-cure-2/
LOCATION:Bertelsen Winery in the Vine\, 20598 Starbird Rd\, Mount Vernon\, WA\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.lgmd-info.org/wp-content/uploads/2026/04/2i-Concert-2026.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260930
DTEND;VALUE=DATE:20261001
DTSTAMP:20260430T232104
CREATED:20260220T190708Z
LAST-MODIFIED:20260220T191018Z
UID:9363-1790726400-1790812799@www.lgmd-info.org
SUMMARY:12th Annual LGMD Awareness Day
DESCRIPTION:
URL:https://www.lgmd-info.org/ar/event/12th-annual-lgmd-awareness-day/
LOCATION:Worldwide
ATTACH;FMTTYPE=image/jpeg:https://www.lgmd-info.org/wp-content/uploads/2021/03/LGMD_logo-1-Color-Update-2.jpg
ORGANIZER;CN="LGMD Awareness Foundation":MAILTO:info@lgmd-info.org
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