{"id":8368,"date":"2024-07-03T15:45:49","date_gmt":"2024-07-03T15:45:49","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?page_id=8368"},"modified":"2026-06-10T16:24:00","modified_gmt":"2026-06-10T16:24:00","slug":"lgmd-milestones-a-decade-of-difference","status":"publish","type":"page","link":"https:\/\/www.lgmd-info.org\/ar\/knowledge-base\/lgmd-milestones-a-decade-of-difference\/","title":{"rendered":"LGMD Milestones – Over a Decade of Difference"},"content":{"rendered":"

Explore over a decade of impactful milestones in the fight against Limb-Girdle Muscular Dystrophy (LGMD). From groundbreaking genetic sequencing and awareness campaigns to international conferences and clinical trials, discover the significant advancements and ongoing efforts to improve the lives of those affected by LGMD.<\/h4><\/div><\/div><\/div><\/div><\/div>

2014<\/h2><\/div><\/div><\/div>
<\/div><\/div><\/div><\/div>
<\/div><\/div><\/div>

\u0641\u064a \u0639\u0627\u0645 2014\u060c \u0645\u062c\u0627\u0646\u0627\u064b \u0627\u0644\u062a\u0633\u0644\u0633\u0644 \u0627\u0644\u062c\u064a\u0646\u064a \u0645\u0646 \u0627\u0644\u062c\u064a\u0644 \u0627\u0644\u062a\u0627\u0644\u064a<\/strong> \u0644\u0623\u062f\u0648\u064a\u0629 \u0623\u0645\u0631\u0627\u0636 \u0627\u0644\u063a\u062f\u062f \u0627\u0644\u0644\u0645\u0641\u0627\u0648\u064a\u0629 (35 \u062c\u064a\u0646\u064b\u0627) \u0644\u0644\u0645\u0631\u0636\u0649 \u0641\u064a \u0627\u0644\u0648\u0644\u0627\u064a\u0627\u062a \u0627\u0644\u0645\u062a\u062d\u062f\u0629 \u0645\u0646 \u062e\u0644\u0627\u0644 \u0628\u0631\u0646\u0627\u0645\u062c \u062f\u0639\u0645 \u0623\u0645\u0631\u0627\u0636 \u0627\u0644\u063a\u062f\u062f \u0627\u0644\u0644\u0645\u0641\u0627\u0648\u064a\u0629 (35 \u062c\u064a\u0646\u064b\u0627)\u060c \u0645\u0645\u0627 \u0623\u062f\u0649 \u0625\u0644\u0649 \u0625\u062c\u0631\u0627\u0621 \u0622\u0644\u0627\u0641 \u0627\u0644\u0627\u062e\u062a\u0628\u0627\u0631\u0627\u062a \u0648\u0627\u0644\u062a\u0634\u062e\u064a\u0635\u0627\u062a \u0627\u0644\u062c\u064a\u0646\u064a\u0629 \u0627\u0644\u0645\u062c\u0627\u0646\u064a\u0629.<\/p>\n<\/div>

<\/div><\/div>
\"2014<\/span><\/div>

LGMD-Info.org<\/strong> \u0641\u0625\u0646 \"\u0645\u0631\u0643\u0632 \u0645\u0639\u0644\u0648\u0645\u0627\u062a \u0644\u0645\u062c\u062a\u0645\u0639 LGMD\"<\/strong> \u062a\u0645 \u0625\u0646\u0634\u0627\u0624\u0647.<\/p>\n<\/div>

<\/div><\/div>
\"2014<\/span><\/div>

\u0625\u0646 \u0623\u062e\u0636\u0631 \u0644\u064a\u0645\u0648\u0646 \u0623\u062e\u0636\u0631 \u0644\u0640 LGMD<\/strong> \u062a\u0645 \u062a\u0642\u062f\u064a\u0645 \u062d\u0645\u0644\u0629 \u0627\u0644\u062a\u0648\u0639\u064a\u0629 \u0648\u0644\u0627 \u062a\u0632\u0627\u0644 \u062d\u0645\u0644\u0629 \u0627\u0644\u062a\u0648\u0639\u064a\u0629 \u0628\u0644\u0648\u0646\u0646\u0627 \u0627\u0644\u0645\u0645\u064a\u0632.<\/p>\n<\/div>

<\/div><\/div>
\"2014<\/span><\/div>

\u0625\u0646 \u062f\u0631\u0627\u0633\u0629 \u0627\u0644\u0646\u062a\u0627\u0626\u062c \u0627\u0644\u0633\u0631\u064a\u0631\u064a\u0629 \u0644\u0627\u0639\u062a\u0644\u0627\u0644 \u062f\u064a\u0633\u0641\u064a\u0631\u0644\u064a\u0646\u0648\u0628\u0627\u062b\u064a<\/strong> (COS)\u060c \u0645\u0645\u0627 \u064a\u0645\u062b\u0644 \u062c\u0647\u062f\u064b\u0627 \u062f\u0648\u0644\u064a\u064b\u0627 \u0643\u0628\u064a\u0631\u064b\u0627 \u0644\u0641\u0647\u0645 \u0627\u0644\u0645\u0631\u0636.<\/p>\n<\/div><\/div><\/div><\/div><\/div>

2015<\/h2><\/div><\/div><\/div>
<\/div><\/div><\/div><\/div>
<\/div><\/div><\/div>
\"2015awarenessday\"<\/span><\/div>

\u0627\u0644\u0623\u0648\u0644 \u064a\u0648\u0645 \u0627\u0644\u062a\u0648\u0639\u064a\u0629 \u0628\u0645\u0631\u0636 \u0627\u0644\u062a\u0647\u0627\u0628 \u0627\u0644\u063a\u062f\u0629 \u0627\u0644\u062f\u0631\u0642\u064a\u0629<\/strong><\/a> \u0641\u064a 30 \u0633\u0628\u062a\u0645\u0628\u0631 2015.<\/p>\n<\/div>

<\/div><\/div>
\"2015<\/a><\/div><\/div>
\"2015<\/a><\/div><\/div>
\"2015<\/a><\/div><\/div>
\"2015<\/a><\/div><\/div>
<\/div><\/div><\/div>

\u0627\u0644\u0623\u0648\u0644 \u0625\u0639\u0644\u0627\u0646\u0627\u062a \u0627\u0644\u062f\u0648\u0644\u0629<\/strong> \u062a\u0645 \u0627\u0633\u062a\u0644\u0627\u0645 \u0625\u0639\u0644\u0627\u0646 \u064a\u0648\u0645 30 \u0633\u0628\u062a\u0645\u0628\u0631 \u064a\u0648\u0645\u064b\u0627 \u0644\u0644\u062a\u0648\u0639\u064a\u0629 \u0628\u0627\u0644\u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u062d\u0632\u0627\u0645\u064a \u0627\u0644\u0637\u0631\u0641\u064a \u0641\u064a \u0648\u064a\u0633\u0643\u0648\u0646\u0633\u0646 \u0648\u0648\u0627\u0634\u0646\u0637\u0646 \u0648\u0645\u064a\u0633\u0648\u0631\u064a \u0648\u0643\u0648\u0644\u0648\u0631\u0627\u062f\u0648.<\/p>\n<\/div>

<\/div><\/div>
\"Jainfoundation\"<\/span><\/div>

\u0625\u0646 \u0645\u0624\u062a\u0645\u0631 \u062f\u064a\u0633\u0641\u0631\u064a\u0644\u064a\u0646 \u0627\u0644\u0639\u0644\u0645\u064a<\/strong> \u0639\u064f\u0642\u062f \u0641\u064a \u062a\u0648\u0631\u0646\u062a\u0648 \u0628\u0643\u0646\u062f\u0627 \u0648\u062c\u0645\u0639 \u0628\u0627\u062d\u062b\u064a\u0646 \u0648\u0623\u0637\u0628\u0627\u0621 \u0633\u0631\u064a\u0631\u064a\u064a\u0646 \u0648\u062e\u0628\u0631\u0627\u0621 \u0641\u064a \u0647\u0630\u0627 \u0627\u0644\u0645\u062c\u0627\u0644 \u0644\u062a\u0628\u0627\u062f\u0644 \u0627\u0644\u0631\u0624\u0649 \u0648\u0627\u0644\u062a\u0637\u0648\u0631\u0627\u062a \u0641\u064a \u062f\u0631\u0627\u0633\u0629 \u0648\u0639\u0644\u0627\u062c \u0627\u0639\u062a\u0644\u0627\u0644 \u062f\u064a\u0633\u0641\u0631\u064a\u0644\u064a\u0646\u0648\u0628\u0627\u062b\u064a\u060c \u0648\u0647\u0648 \u0623\u062d\u062f \u0623\u0634\u0643\u0627\u0644 \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062d\u0632\u0627\u0645\u064a\u0629 \u0627\u0644\u062d\u0631\u0643\u064a\u0629.<\/p>\n<\/div>

<\/div><\/div>

\u0625\u0646 2\u0628 \u0645\u0624\u062a\u0645\u0631 \u0627\u0644\u0645\u0631\u064a\u0636 \u0627\u0644\u0645\u062a\u0645\u0643\u0646 2\u0628<\/strong> \u0639\u064f\u0642\u062f \u0641\u064a \u062f\u0627\u0644\u0627\u0633\u060c \u062a\u0643\u0633\u0627\u0633\u060c \u062d\u064a\u062b \u0648\u0641\u0651\u0631 \u0645\u0646\u0635\u0629 \u0644\u0645\u0631\u0636\u0649 \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062d\u0632\u0627\u0645 \u0627\u0644\u0637\u0631\u0641\u064a \u0644\u0644\u062a\u0648\u0627\u0635\u0644 \u0648\u062a\u0628\u0627\u062f\u0644 \u0627\u0644\u062e\u0628\u0631\u0627\u062a \u0648\u0627\u0643\u062a\u0633\u0627\u0628 \u0631\u0624\u0649 \u0642\u064a\u0645\u0629 \u0645\u0646 \u0627\u0644\u062e\u0628\u0631\u0627\u0621 \u0641\u064a \u0647\u0630\u0627 \u0627\u0644\u0645\u062c\u0627\u0644.<\/p>\n<\/div><\/div><\/div><\/div><\/div>

2016<\/h2><\/div><\/div><\/div>
<\/div><\/div><\/div><\/div>
<\/div><\/div><\/div>
\"2016<\/span><\/div>

\u0641\u064a \u0639\u0627\u0645 2016, \u0648\u0631\u0634\u0629 \u0627\u0644\u0639\u0645\u0644 \u0627\u0644\u062f\u0648\u0644\u064a\u0629 \u0627\u0644\u0640 219 \u0644\u0640 ENMC \u062d\u0648\u0644 \u0627\u0639\u062a\u0644\u0627\u0644\u0627\u062a \u0627\u0644\u062a\u064a\u062a\u064a\u0646:<\/strong> \u0639\u064f\u0642\u062f\u062a \u0642\u0627\u0639\u062f\u0629 \u0628\u064a\u0627\u0646\u0627\u062a \u062f\u0648\u0644\u064a\u0629 \u0644\u0637\u0641\u0631\u0627\u062a \u0627\u0644\u062a\u0627\u064a\u062a\u064a\u0646 \u0648\u0627\u0644\u0623\u0646\u0645\u0627\u0637 \u0627\u0644\u0638\u0627\u0647\u0631\u064a\u0629 \u0641\u064a \u0647\u064a\u0645\u0633\u0643\u0631\u0643 \u0628\u0647\u0648\u0644\u0646\u062f\u0627.<\/p>\n<\/div>

<\/div><\/div>
\"2016<\/span><\/div>

\u0625\u0646 \u0645\u0624\u0633\u0633\u0629 \u0633\u0627\u0645\u0627\u0646\u062b\u0627 \u062c. \u0628\u0631\u0627\u0632\u0648<\/strong> \u0625\u0639\u0627\u062f\u0629 \u062a\u0633\u0645\u064a\u0629 \u0627\u0644\u0639\u0644\u0627\u0645\u0629 \u0627\u0644\u062a\u062c\u0627\u0631\u064a\u0629 \u0625\u0644\u0649 CureLGMD2i<\/strong><\/a>. \u064a\u0639\u0643\u0633 \u0647\u0630\u0627 \u0627\u0644\u062a\u063a\u064a\u064a\u0631 \u062a\u0631\u0643\u064a\u0632 \u0627\u0644\u0645\u0624\u0633\u0633\u0629 \u0639\u0644\u0649 \u0625\u064a\u062c\u0627\u062f \u0639\u0644\u0627\u062c \u0644\u0645\u0631\u0636 \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062d\u0632\u0627\u0645 \u0627\u0644\u062d\u0631\u062c\u064a \u0627\u0644\u0639\u0636\u0644\u064a \u0645\u0646 \u0627\u0644\u0646\u0648\u0639 \u0627\u0644\u062b\u0627\u0646\u064a (LGMD2i).<\/p>\n<\/div>

\u062f\u0639\u0645 \u0643\u0644 \u0645\u0646 CureLGMD2i \u0648\u0635\u0646\u062f\u0648\u0642 \u0623\u0628\u062d\u0627\u062b LGMD2i \u0623\u0648\u0644 \u062a\u062c\u0631\u0628\u0629 \u0633\u0631\u064a\u0631\u064a\u0629 \u0639\u0644\u0649 \u0627\u0644\u0625\u0637\u0644\u0627\u0642 \u0641\u064a LGMD2DI\/R9\u060c \u0628\u0639\u0646\u0648\u0627\u0646 \"\u062a\u062c\u0631\u0628\u0629 \u0639\u0644\u0649 PF-06252616 \u0641\u064a \u0627\u0644\u0645\u0634\u0627\u0631\u0643\u064a\u0646 \u0627\u0644\u0645\u062a\u0646\u0642\u0644\u064a\u0646 \u0627\u0644\u0645\u0635\u0627\u0628\u064a\u0646 \u0628\u0645\u0631\u0636 \u0627\u0644\u062a\u0647\u0627\u0628 \u0627\u0644\u0645\u0641\u0627\u0635\u0644 \u0627\u0644\u0631\u0648\u0645\u0627\u062a\u0648\u064a\u062f\u064a \u0627\u0644\u0645\u0632\u0645\u0646 2I\"<\/strong> \u0628\u0642\u064a\u0627\u062f\u0629 \u0627\u0644\u062f\u0643\u062a\u0648\u0631\u0629 \u0643\u0627\u062b\u0631\u064a\u0646 \u0648\u0627\u063a\u0646\u0631.<\/p>\n<\/div>

<\/div><\/div>
\"2016<\/span><\/div>

\u0633\u062c\u0644 \u062f\u064a\u0633\u0641\u0631\u064a\u0644\u064a\u0646<\/strong> \u0623\u0637\u0644\u0642\u062a \u0645\u0646\u0635\u0629 \u062c\u062f\u064a\u062f\u0629 \u062e\u0635\u064a\u0635\u064b\u0627 \u0644\u0644\u0645\u0631\u0636\u0649 \u0627\u0644\u0630\u064a\u0646 \u064a\u0639\u0627\u0646\u0648\u0646 \u0645\u0646 \u0627\u0639\u062a\u0644\u0627\u0644 \u062f\u064a\u0633\u0641\u0631\u064a\u0644\u064a\u0646\u0648\u0628\u0644\u0627\u0632\u0645\u0627 \u062f\u064a\u0633\u0641\u0631\u064a\u0644\u064a\u0646\u0648\u0628\u0627\u062b\u064a \u0627\u0644\u0645\u0624\u0643\u062f \u0648\u0631\u0627\u062b\u064a\u064b\u0627.<\/p>\n<\/div>

<\/div><\/div>

\u0627\u0644\u0639\u0644\u0627\u062c \u0627\u0644\u062c\u064a\u0646\u064a \u062b\u0646\u0627\u0626\u064a \u0627\u0644\u0646\u0627\u0642\u0644<\/strong> \u0644\u0639\u0644\u0627\u062c \u0627\u0639\u062a\u0644\u0627\u0644 \u062f\u064a\u0633\u0641\u0631\u064a\u0644\u064a\u0646\u0648\u0628\u0627\u062b\u064a\u060c \u0627\u0644\u0630\u064a \u064a\u0633\u062a\u0647\u062f\u0641 \u062a\u062d\u062f\u064a\u062f\u064b\u0627 \u0646\u0648\u0639 \u0627\u0644\u062d\u062b\u0644 \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u062d\u0632\u0627\u0645\u064a \u0627\u0644\u062d\u0631\u0643\u064a\u060c \u0639\u0644\u0649 \u062a\u0635\u0631\u064a\u062d \u0645\u0646 \u0625\u062f\u0627\u0631\u0629 \u0627\u0644\u063a\u0630\u0627\u0621 \u0648\u0627\u0644\u062f\u0648\u0627\u0621 \u0627\u0644\u0623\u0645\u0631\u064a\u0643\u064a\u0629 (FDA) \u0644\u0637\u0644\u0628 \u0627\u0644\u062f\u0648\u0627\u0621 \u0627\u0644\u062c\u062f\u064a\u062f \u0627\u0644\u0627\u0633\u062a\u0642\u0635\u0627\u0626\u064a (IND).<\/p>\n<\/div>

<\/div><\/div>

\u0627\u0644\u062b\u0627\u0646\u064a\u0629 2\u0628 \u0645\u0624\u062a\u0645\u0631 \u0627\u0644\u0645\u0631\u064a\u0636 \u0627\u0644\u0645\u062a\u0645\u0643\u0646 2\u0628<\/strong> \u0641\u064a \u062f\u0627\u0644\u0627\u0633\u060c \u062a\u0643\u0633\u0627\u0633.<\/p>\n<\/div><\/div><\/div><\/div><\/div>

2017<\/h2><\/div><\/div><\/div>
<\/div><\/div><\/div><\/div>
<\/div><\/div><\/div>
\"2017myonexuslogo\"<\/span><\/div>

\u0645\u0627\u064a\u0648\u0646\u064a\u0643\u0633\u0648\u0633 \u062b\u064a\u0631\u0627\u0628\u064a\u0648\u062a\u064a\u0643\u0633\u0648\u0633 \u062b\u064a\u0631\u0627\u0628\u064a\u0648\u062a\u064a\u0643\u0633<\/strong> \u062a\u0623\u0633\u0633\u062a \u0627\u0644\u0634\u0631\u0643\u0629 \u0641\u064a \u0639\u0627\u0645 2017 \u0644\u062a\u0637\u0648\u064a\u0631 \u0639\u0644\u0627\u062c\u0627\u062a \u062c\u064a\u0646\u064a\u0629 \u0644\u0639\u0644\u0627\u062c \u062e\u0645\u0633\u0629 \u0623\u0646\u0648\u0627\u0639 \u0641\u0631\u0639\u064a\u0629 \u0645\u0646 \u0627\u0644\u062d\u062b\u0644 \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u062d\u0632\u0627\u0645\u064a \u0627\u0644\u062d\u0648\u0641\u064a (LGMD2B\/R2)\u060c \u0648LGMD2B\/R2 \u0648LGMD2C\/R5 \u0648LGMD2D\/R5 \u0648LGMD2D\/R5 \u0648LGMD2E\/R4 \u0648LGMD2L\/R12. \u0648\u062a\u0631\u0643\u0632 \u0634\u0631\u0643\u0629 \u0627\u0644\u062a\u0643\u0646\u0648\u0644\u0648\u062c\u064a\u0627 \u0627\u0644\u062d\u064a\u0648\u064a\u0629 \u0641\u064a \u0627\u0644\u0645\u0631\u062d\u0644\u0629 \u0627\u0644\u0633\u0631\u064a\u0631\u064a\u0629 \u0647\u0630\u0647\u060c \u0628\u0627\u0644\u062a\u0639\u0627\u0648\u0646 \u0645\u0639 \u0645\u0633\u062a\u0634\u0641\u0649 \u0646\u064a\u0634\u0646 \u0648\u0627\u064a\u062f \u0644\u0644\u0623\u0637\u0641\u0627\u0644\u060c \u0639\u0644\u0649 \u0627\u0628\u062a\u0643\u0627\u0631 \u0623\u0648\u0644 \u0639\u0644\u0627\u062c\u0627\u062a \u062a\u0635\u062d\u064a\u062d\u064a\u0629 \u0644\u0647\u0630\u0647 \u0627\u0644\u0623\u0634\u0643\u0627\u0644 \u0645\u0646 \u0645\u0631\u0636 \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u0644\u064a\u0641\u064a (LGMD2B\/R2)\u060c \u0628\u0627\u0633\u062a\u062e\u062f\u0627\u0645 \u0645\u0646\u0635\u0629 \u0639\u0644\u0627\u062c \u062c\u064a\u0646\u064a \u0645\u0628\u062a\u0643\u0631\u0629 \u062a\u0639\u062a\u0645\u062f \u0639\u0644\u0649 \u0646\u0638\u0627\u0645 \u0646\u0627\u0642\u0644 AAVrh.74 (\u0633\u0627\u0631\u064a\u0628\u062a\u0627 \u062b\u064a\u0631\u0627\u0628\u064a\u0648\u062a\u0643\u0633<\/a>) (\u0623\u062e\u0628\u0627\u0631 \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a<\/a>) (\u0628\u064a\u0648\u0633\u0628\u064a\u0633<\/a>).<\/p>\n<\/div>

<\/div><\/div>

\u0637\u0648\u0631\u062a \u0648\u0631\u0634\u0629 \u0627\u0644\u0639\u0645\u0644 \u0627\u0644\u062f\u0648\u0644\u064a\u0629 \u0627\u0644\u0640 229 \u0627\u0644\u062a\u064a \u0639\u0642\u062f\u0647\u0627 \u0627\u0644\u0645\u0631\u0643\u0632 \u0627\u0644\u0623\u0648\u0631\u0648\u0628\u064a \u0644\u0631\u0635\u062f \u0627\u0644\u0628\u064a\u0626\u0629 \u0641\u064a \u0646\u0627\u0631\u062f\u064a\u0646 \u0628\u0647\u0648\u0644\u0646\u062f\u0627 \u0641\u064a \u0627\u0644\u0641\u062a\u0631\u0629 \u0645\u0646 17 \u0625\u0644\u0649 19 \u0645\u0627\u0631\u0633 2017 \u0646\u0638\u0627\u0645 \u0627\u0644\u062a\u0633\u0645\u064a\u0627\u062a \u0648\u0627\u0644\u062a\u0635\u0646\u064a\u0641 \u0627\u0644\u062c\u062f\u064a\u062f \u0644\u0636\u0645\u0648\u0631 \u0639\u0636\u0644\u0627\u062a \u062d\u0632\u0627\u0645 \u0627\u0644\u0623\u0637\u0631\u0627\u0641 \u0627\u0644\u0639\u0636\u0644\u064a (LGMDs)<\/strong>. \u0643\u0627\u0646\u062a \u0627\u0644\u0645\u0631\u0627\u062c\u0639\u0629 \u0636\u0631\u0648\u0631\u064a\u0629 \u0644\u062a\u062d\u062f\u064a\u062b \u062a\u0639\u0631\u064a\u0641 \u062f\u0627\u0621 \u0627\u0644\u0644\u064a\u062b\u064a\u0648\u0646\u064a\u0627 \u0627\u0644\u062c\u0644\u062f\u064a \u0648\u0645\u0639\u0627\u0644\u062c\u0629 \u0645\u0634\u0643\u0644\u0629 \u0648\u0635\u0648\u0644 \u062a\u0631\u0642\u064a\u0645 \u0627\u0644\u0646\u0648\u0639 \u0627\u0644\u0641\u0631\u0639\u064a \u0627\u0644\u0645\u062a\u0646\u062d\u064a \u0625\u0644\u0649 Z (LGMD 2Z). \u064a\u0647\u062f\u0641 \u0627\u0644\u0646\u0638\u0627\u0645 \u0627\u0644\u062c\u062f\u064a\u062f \u0625\u0644\u0649 \u062c\u0639\u0644 \u062f\u0627\u0621 \u0644\u063a\u0645\u062f \u0643\u064a\u0627\u0646\u064b\u0627 \u0623\u0643\u062b\u0631 \u062a\u0645\u064a\u0632\u064b\u0627 \u0645\u0639 \u0648\u062c\u0648\u062f \u0642\u0648\u0627\u0633\u0645 \u0645\u0634\u062a\u0631\u0643\u0629 \u0628\u064a\u0646 \u0627\u0644\u0623\u0646\u0648\u0627\u0639 \u0627\u0644\u0641\u0631\u0639\u064a\u0629.<\/p>\n<\/div>

<\/div><\/div>

\u0641\u064a \u0639\u0627\u0645 2017\u060c \u0643\u0627\u0646 \u0623\u0648\u0644 \u062a\u062c\u0631\u0628\u0629 \u0633\u0631\u064a\u0631\u064a\u0629 \u0644\u0644\u0639\u0644\u0627\u062c \u0627\u0644\u062c\u064a\u0646\u064a \u062b\u0646\u0627\u0626\u064a \u0627\u0644\u0646\u0627\u0642\u0644 \u062f\u0627\u062e\u0644 \u0627\u0644\u0639\u0636\u0644\u0627\u062a (IM) \u0644\u0639\u0644\u0627\u062c \u0627\u0639\u062a\u0644\u0627\u0644 \u062f\u064a\u0633\u0641\u0631\u064a\u0644\u064a\u0646\u0648\u0628\u0644\u0627\u0632\u0645\u0627 \u0627\u0644\u0639\u0636\u0644\u0627\u062a<\/strong> \u0648\u0647\u0648 \u0645\u0627 \u064a\u0645\u062b\u0644 \u062a\u0642\u062f\u0645\u064b\u0627 \u0643\u0628\u064a\u0631\u064b\u0627 \u0641\u064a \u0639\u0644\u0627\u062c \u0647\u0630\u0627 \u0627\u0644\u0646\u0648\u0639 \u0645\u0646 \u062f\u0627\u0621 \u0627\u0644\u0644\u064a\u062b\u064a\u0648\u0646\u064a\u0627 \u0627\u0644\u063a\u062f\u062f\u064a\u0629.<\/p>\n<\/div><\/div><\/div><\/div><\/div>

2018<\/h2><\/div><\/div><\/div>
<\/div><\/div><\/div><\/div>
<\/div><\/div><\/div>
\"2018grasp\"<\/span><\/div>

\u0641\u064a \u0639\u0627\u0645 2018\u060c \u0643\u0627\u0646 G<\/strong>\u0625\u0646\u062a\u064a\u0643 R<\/strong>\u0627\u0644\u062d\u0644 \u0648 A<\/strong>\u0627\u0644\u062a\u0642\u064a\u064a\u0645\u0627\u062a S<\/strong>\u0623\u0648\u0644\u064a\u0641\u064a\u0646\u062c P<\/strong>\u0627\u0644\u0646\u0648\u062a\u0627\u062a \u0641\u064a LGMD (GRASP-LGMD)<\/strong> \u062a\u0645 \u0625\u0646\u0634\u0627\u0621 \u0643\u0648\u0646\u0633\u0648\u0631\u062a\u064a\u0648\u0645 \u0644\u062a\u0633\u0631\u064a\u0639 \u0627\u0644\u062a\u0637\u0648\u064a\u0631 \u0627\u0644\u0639\u0644\u0627\u062c\u064a \u0641\u064a \u0623\u0645\u0631\u0627\u0636 \u0627\u0644\u063a\u062f\u062f \u0627\u0644\u0644\u0645\u0641\u0627\u0648\u064a\u0629 \u0627\u0644\u0631\u0626\u0648\u064a\u0629.<\/p>\n<\/div>

<\/div><\/div>
\"2018<\/span><\/div>

\u0625\u0646 \u0645\u0624\u0633\u0633\u0629 LGMD2L<\/strong><\/a> \u062a\u0645 \u062a\u0623\u0633\u064a\u0633\u0647\u0627.<\/p>\n<\/div>

<\/div><\/div>
\"2018<\/span><\/div>

\u0625\u0646 \u0627\u0644\u062a\u062d\u0627\u0644\u0641 \u0645\u0646 \u0623\u062c\u0644 \u0639\u0644\u0627\u062c \u0627\u0644\u0643\u0627\u0644\u0628\u0627\u064a\u0646 3<\/strong><\/a> \u0623\u0639\u0644\u0646\u0648\u0627 \u0639\u0646 \u0645\u0628\u0627\u062f\u0631\u0629 \u0627\u0644\u0639\u0644\u0627\u062c \u0627\u0644\u062c\u064a\u0646\u064a<\/strong>\u064a\u0647\u062f\u0641 \u0625\u0644\u0649 \u062a\u0633\u0631\u064a\u0639 \u062a\u0637\u0648\u064a\u0631 \u0639\u0644\u0627\u062c\u0627\u062a \u062c\u064a\u0646\u064a\u0629 \u0644\u0639\u0644\u0627\u062c \u0627\u0644\u062d\u062b\u0644 \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u062d\u0632\u0627\u0645\u064a \u0627\u0644\u062d\u0631\u062c\u064a \u0645\u0646 \u0627\u0644\u0646\u0648\u0639 2A\/R1 (LGMD2A\/R1).<\/p>\n<\/div>

<\/div><\/div>
\"2018lgmd2a<\/span><\/div>

\u0625\u0646 \u0627\u0644\u0645\u0624\u062a\u0645\u0631 \u0627\u0644\u0639\u0644\u0645\u064a LGMD2A\/R1<\/strong> \u0639\u064f\u0642\u062f \u0641\u064a \u0623\u0631\u0644\u064a\u0646\u063a\u062a\u0648\u0646 \u0628\u0648\u0644\u0627\u064a\u0629 \u0641\u064a\u0631\u062c\u064a\u0646\u064a\u0627\u060c \u062d\u064a\u062b \u062c\u0645\u0639 \u062e\u0628\u0631\u0627\u0621 \u0648\u0628\u0627\u062d\u062b\u064a\u0646 \u0644\u0645\u0646\u0627\u0642\u0634\u0629 \u0623\u062d\u062f\u062b \u0627\u0644\u062a\u0637\u0648\u0631\u0627\u062a \u0648\u0627\u0644\u0627\u0633\u062a\u0631\u0627\u062a\u064a\u062c\u064a\u0627\u062a \u0641\u064a \u0645\u0643\u0627\u0641\u062d\u0629 \u0627\u0644\u062d\u062b\u0644 \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u062d\u0632\u0627\u0645\u064a \u0627\u0644\u062d\u0631\u0643\u064a \u0627\u0644\u062d\u0631\u0643\u064a \u0645\u0646 \u0627\u0644\u0646\u0648\u0639 2A\/R1.<\/p>\n<\/div>

<\/div><\/div>
\"2018<\/span><\/div>

\u0625\u0646 \u0645\u0624\u0633\u0633\u0629 LGMD-1DD DNAJB6 DNAJB6<\/strong><\/a> \u062a\u0645 \u062a\u0623\u0633\u064a\u0633\u0647\u0627.<\/p>\n<\/div>

<\/div><\/div>

\u0623\u062c\u0631\u062a \u0634\u0631\u0643\u0629 \u0633\u0627\u0631\u064a\u0628\u062a\u0627 \u062b\u064a\u0631\u0627\u0628\u064a\u0648\u062a\u064a\u0643\u0633 \u0623\u0648\u0644 \u0627\u062e\u062a\u0628\u0627\u0631 \u0625\u0639\u0637\u0627\u0621 \u0627\u0644\u0639\u0644\u0627\u062c \u0627\u0644\u062c\u064a\u0646\u064a \u0644\u0643\u0627\u0645\u0644 \u0627\u0644\u062c\u0633\u0645<\/strong> \u0644\u0644\u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u062d\u0632\u0627\u0645\u064a \u0627\u0644\u062d\u0632\u0627\u0645\u064a \u0627\u0644\u0637\u0631\u0641\u064a\u060c \u0648\u064a\u0633\u062a\u0647\u062f\u0641 \u062a\u062d\u062f\u064a\u062f\u064b\u0627 \u062c\u064a\u0646 \u0628\u064a\u062a\u0627 \u0633\u0627\u0631\u0643\u0648\u062c\u0644\u064a\u0643\u0627\u0646 (LGMD2E).<\/p>\n<\/div><\/div><\/div><\/div><\/div>

2019<\/h2><\/div><\/div><\/div>
<\/div><\/div><\/div><\/div>
<\/div><\/div><\/div>

\u0641\u064a \u0639\u0627\u0645 2019\u060c \u0641\u0625\u0646 \u0627\u0644\u0645\u062c\u0644\u0633 \u0627\u0644\u0627\u0633\u062a\u0634\u0627\u0631\u064a \u0627\u0644\u0645\u062c\u062a\u0645\u0639\u064a \u0627\u0644\u062f\u0648\u0644\u064a \u0644\u0640 LGMD (CAB)<\/strong> \u062a\u0645 \u062a\u0623\u0633\u064a\u0633\u0647 \u0644\u062a\u0648\u0641\u064a\u0631 \u0635\u0648\u062a \u0645\u0648\u062d\u062f \u0644\u0645\u062c\u062a\u0645\u0639 \u0627\u0644\u062d\u062b\u0644 \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u062d\u0632\u0627\u0645\u064a \u0627\u0644\u0639\u0627\u0644\u0645\u064a \u0648\u062a\u0633\u0647\u064a\u0644 \u0627\u0644\u062a\u0639\u0627\u0648\u0646 \u0628\u064a\u0646 \u0627\u0644\u0645\u0631\u0636\u0649 \u0648\u0627\u0644\u0628\u0627\u062d\u062b\u064a\u0646 \u0648\u0645\u0642\u062f\u0645\u064a \u0627\u0644\u0631\u0639\u0627\u064a\u0629 \u0627\u0644\u0635\u062d\u064a\u0629.<\/p>\n<\/div>

<\/div><\/div>
\"2019limeemoji\"<\/span><\/div>

\u0625\u0646 \"\u062a\u062d\u062f\u064a \u0644\u0627\u064a\u0645\u0648\u062c\u064a\"<\/strong> \u0644\u0644\u0645\u0633\u0627\u0639\u062f\u0629 \u0641\u064a \u0631\u0641\u0639 \u0645\u0633\u062a\u0648\u0649 \u0627\u0644\u0648\u0639\u064a \u0628\u0645\u0631\u0636 \u0627\u0644\u062a\u0647\u0627\u0628 \u0627\u0644\u063a\u062f\u062f \u0627\u0644\u0644\u0645\u0641\u0627\u0648\u064a\u0629 \u0627\u0644\u0631\u0648\u0645\u0627\u062a\u064a\u0632\u0645\u064a.<\/p>\n<\/div>

<\/div><\/div>

\u0628\u062f\u0623\u062a \u062f\u0631\u0627\u0633\u0629 \u0633\u0631\u064a\u0631\u064a\u0629 \u0644\u062a\u0642\u064a\u064a\u0645 \u0633\u0644\u0627\u0645\u0629 \u0648\u0641\u0639\u0627\u0644\u064a\u0629 \u0627\u0644\u062a\u0633\u0645\u064a\u0629 \u0627\u0644\u0645\u0641\u062a\u0648\u062d\u0629 \u0644\u0644\u0633\u062a\u064a\u0631\u0648\u064a\u062f \u0627\u0644\u0630\u064a \u064a\u062a\u0645 \u062a\u0646\u0627\u0648\u0644\u0647 \u0645\u0631\u0629 \u0648\u0627\u062d\u062f\u0629 \u0623\u0633\u0628\u0648\u0639\u064a\u064b\u0627<\/strong> \u0639\u0644\u0627\u062c \u0645\u0631\u0636\u0649 \u0627\u0644\u062d\u062b\u0644 \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u062d\u0632\u0627\u0645\u064a \u0627\u0644\u0637\u0631\u0641\u064a (LGMD).<\/p>\n<\/div>

<\/div><\/div>
\"2019conference\"<\/span><\/div>

\u0627\u0644\u0623\u0648\u0644 \u0645\u0624\u062a\u0645\u0631 LGMD \u0627\u0644\u062f\u0648\u0644\u064a<\/strong> \u0639\u064f\u0642\u062f \u0641\u064a \u0634\u064a\u0643\u0627\u063a\u0648\u060c \u0625\u0644\u064a\u0646\u0648\u064a\u060c \u0648\u062c\u0645\u0639 \u0628\u064a\u0646 \u0627\u0644\u0645\u0631\u0636\u0649 \u0648\u0627\u0644\u0639\u0627\u0626\u0644\u0627\u062a \u0648\u0627\u0644\u0628\u0627\u062d\u062b\u064a\u0646 \u0648\u0627\u0644\u0623\u0637\u0628\u0627\u0621 \u0645\u0646 \u062c\u0645\u064a\u0639 \u0623\u0646\u062d\u0627\u0621 \u0627\u0644\u0639\u0627\u0644\u0645 \u0644\u062a\u0628\u0627\u062f\u0644 \u0627\u0644\u0645\u0639\u0631\u0641\u0629 \u0648\u062a\u0639\u0632\u064a\u0632 \u0641\u0647\u0645 \u0648\u0639\u0644\u0627\u062c \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062d\u0632\u0627\u0645 \u0627\u0644\u0637\u0631\u0641\u064a \u0627\u0644\u0639\u0636\u0644\u064a (LGMD).<\/p>\n<\/div>

<\/div><\/div>
\"2109india\"<\/span><\/div>

\u0625\u0646 2\u0628 \u0627\u062c\u062a\u0645\u0627\u0639 \u0627\u0644\u0645\u0631\u064a\u0636 \u0627\u0644\u0645\u062a\u0645\u0643\u0646<\/strong> \u0639\u064f\u0642\u062f \u0641\u064a \u0645\u0648\u0645\u0628\u0627\u064a \u0628\u0627\u0644\u0647\u0646\u062f\u060c \u0648\u0648\u0641\u0631 \u0645\u0646\u0635\u0629 \u0644\u0644\u0623\u0641\u0631\u0627\u062f \u0627\u0644\u0645\u0635\u0627\u0628\u064a\u0646 \u0628\u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062d\u0632\u0627\u0645 \u0627\u0644\u0637\u0631\u0641\u064a \u0644\u0644\u062a\u0648\u0627\u0635\u0644 \u0648\u062a\u0628\u0627\u062f\u0644 \u0627\u0644\u062e\u0628\u0631\u0627\u062a \u0648\u0627\u0643\u062a\u0633\u0627\u0628 \u0631\u0624\u0649 \u0642\u064a\u0645\u0629 \u0645\u0646 \u0643\u0628\u0627\u0631 \u0627\u0644\u062e\u0628\u0631\u0627\u0621 \u0641\u064a \u0647\u0630\u0627 \u0627\u0644\u0645\u062c\u0627\u0644.<\/p>\n<\/div><\/div><\/div><\/div><\/div>

2020<\/h2><\/div><\/div><\/div>
<\/div><\/div><\/div><\/div>
<\/div><\/div><\/div>
\"2020laf\"<\/span><\/div>

\u0641\u064a \u0639\u0627\u0645 2020\u060c \u0641\u0625\u0646 \u0645\u0624\u0633\u0633\u0629 \u0627\u0644\u062a\u0648\u0639\u064a\u0629 \u0628\u0645\u0631\u0636 \u062c\u0644\u062f\u064a \u0627\u0644\u063a\u062f\u0629 \u0627\u0644\u062f\u0631\u0642\u064a\u0629<\/strong><\/a> \u062a\u0623\u0633\u0633\u062a \u0627\u0644\u062c\u0645\u0639\u064a\u0629 \u0644\u0632\u064a\u0627\u062f\u0629 \u0627\u0644\u0648\u0639\u064a \u0648\u062a\u0648\u0641\u064a\u0631 \u0627\u0644\u062a\u062b\u0642\u064a\u0641 \u0648\u062f\u0639\u0645 \u0627\u0644\u062c\u0647\u0648\u062f \u0627\u0644\u0628\u062d\u062b\u064a\u0629 \u0627\u0644\u0631\u0627\u0645\u064a\u0629 \u0625\u0644\u0649 \u062a\u062d\u0633\u064a\u0646 \u062d\u064a\u0627\u0629 \u0627\u0644\u0645\u0635\u0627\u0628\u064a\u0646 \u0628\u0627\u0644\u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u062d\u0632\u0627\u0645\u064a \u0627\u0644\u0637\u0631\u0641\u064a (LGMD).<\/p>\n<\/div>

<\/div><\/div>
\"2020girdie\"<\/span><\/div>

\u063a\u064a\u0631\u062f\u064a\u060c \u0633\u0641\u064a\u0631 LGMD,<\/strong><\/a> \u0625\u0644\u0649 \u0645\u062c\u062a\u0645\u0639 LGMD.<\/p>\n<\/div>

<\/div><\/div>

A \u062c\u0644\u0633\u0629 \u0627\u0644\u0627\u0633\u062a\u0645\u0627\u0639 \u0644\u0644\u0645\u0631\u064a\u0636<\/strong> \u0644\u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062d\u0632\u0627\u0645 \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u0637\u0631\u0641\u064a (LGMD) \u0645\u0639 \u0625\u062f\u0627\u0631\u0629 \u0627\u0644\u063a\u0630\u0627\u0621 \u0648\u0627\u0644\u062f\u0648\u0627\u0621 \u0627\u0644\u0623\u0645\u0631\u064a\u0643\u064a\u0629\u060c \u0645\u0645\u0627 \u0623\u062a\u0627\u062d \u0644\u0644\u0645\u0631\u0636\u0649 \u0648\u0645\u0642\u062f\u0645\u064a \u0627\u0644\u0631\u0639\u0627\u064a\u0629 \u0641\u0631\u0635\u0629 \u0644\u062a\u0628\u0627\u062f\u0644 \u062e\u0628\u0631\u0627\u062a\u0647\u0645 \u0648\u062a\u0633\u0644\u064a\u0637 \u0627\u0644\u0636\u0648\u0621 \u0639\u0644\u0649 \u0627\u0644\u062d\u0627\u062c\u0629 \u0627\u0644\u0645\u0644\u062d\u0629 \u0625\u0644\u0649 \u0639\u0644\u0627\u062c\u0627\u062a \u0648\u0639\u0644\u0627\u062c\u0627\u062a \u062c\u062f\u064a\u062f\u0629 \u0645\u0628\u0627\u0634\u0631\u0629 \u0645\u0639 \u0627\u0644\u0645\u0633\u0624\u0648\u0644\u064a\u0646 \u0627\u0644\u062a\u0646\u0638\u064a\u0645\u064a\u064a\u0646.<\/p>\n<\/div><\/div><\/div><\/div><\/div>

2021<\/h2><\/div><\/div><\/div>
<\/div><\/div><\/div><\/div>
<\/div><\/div><\/div>
\"2021lgmdnews\"<\/span><\/div>

\u0627\u0644\u0639\u062f\u062f \u0627\u0644\u0623\u0648\u0644 \u0645\u0646 \u0623\u062e\u0628\u0627\u0631 LGMD<\/em> \u0645\u062c\u0644\u0629<\/strong><\/a> \u0646\u064f\u0634\u0631 (\u0627\u0644\u0645\u062c\u0644\u062f 1\/\u0627\u0644\u0639\u062f\u062f 1) \u0641\u064a \u0639\u0627\u0645 2021.<\/p>\n<\/div>

<\/div><\/div>

\u0627\u0644\u0623\u0648\u0644 \u0645\u0624\u062a\u0645\u0631 LGMD \u0627\u0644\u062f\u0648\u0644\u064a \"\u0627\u0644\u0627\u0641\u062a\u0631\u0627\u0636\u064a\"<\/strong> \u0639\u064f\u0642\u062f \u0627\u0644\u0645\u0624\u062a\u0645\u0631\u060c \u0645\u0645\u0627 \u0633\u0645\u062d \u0644\u0644\u0645\u0634\u0627\u0631\u0643\u064a\u0646 \u0645\u0646 \u062c\u0645\u064a\u0639 \u0623\u0646\u062d\u0627\u0621 \u0627\u0644\u0639\u0627\u0644\u0645 \u0628\u0627\u0644\u062a\u0648\u0627\u0635\u0644 \u0648\u0627\u0644\u0645\u0634\u0627\u0631\u0643\u0629 \u0641\u064a \u0627\u0644\u0645\u0646\u0627\u0642\u0634\u0627\u062a \u062d\u0648\u0644 \u0623\u062d\u062f\u062b \u0627\u0644\u0623\u0628\u062d\u0627\u062b \u0648\u0627\u0644\u0639\u0644\u0627\u062c\u0627\u062a \u0648\u0627\u0644\u062f\u0639\u0645 \u0627\u0644\u0645\u0642\u062f\u0645 \u0644\u0645\u0631\u0636 \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062d\u0632\u0627\u0645 \u0627\u0644\u0637\u0631\u0641\u064a (LGMD) \u0639\u0644\u0649 \u0627\u0644\u0631\u063a\u0645 \u0645\u0646 \u0627\u0644\u062a\u062d\u062f\u064a\u0627\u062a \u0627\u0644\u062a\u064a \u064a\u0641\u0631\u0636\u0647\u0627 \u0627\u0644\u0648\u0628\u0627\u0621 \u0627\u0644\u0639\u0627\u0644\u0645\u064a.<\/p>\n<\/div>

<\/div><\/div>
\"2021diagnosticcodes\"<\/span><\/div>

\u062a\u0645\u062a \u0627\u0644\u0645\u0648\u0627\u0641\u0642\u0629 \u0639\u0644\u0649 \u0627\u0644\u0631\u0645\u0648\u0632 \u0627\u0644\u0637\u0628\u064a\u0629 \u0627\u0644\u0645\u062e\u0635\u0635\u0629 \u0644\u0644\u062a\u0635\u0646\u064a\u0641 \u0627\u0644\u062f\u0648\u0644\u064a \u0644\u0644\u0623\u0645\u0631\u0627\u0636 ICD-10<\/strong> \u0644\u0644\u0639\u062f\u064a\u062f \u0645\u0646 \u0627\u0644\u0623\u0646\u0648\u0627\u0639 \u0627\u0644\u0641\u0631\u0639\u064a\u0629 \u0627\u0644\u0645\u062d\u062f\u062f\u0629 \u0645\u0646 \u0627\u0644\u062d\u062b\u0644 \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u062d\u0632\u0627\u0645\u064a \u0627\u0644\u0637\u0631\u0641\u064a (LGMD) \u0648\u0643\u0630\u0644\u0643 \u0644\u0644\u0623\u0646\u0648\u0627\u0639 \u0627\u0644\u0641\u0631\u0639\u064a\u0629 \u063a\u064a\u0631 \u0627\u0644\u0645\u062d\u062f\u062f\u0629\u060c \u0645\u0645\u0627 \u064a\u0633\u0647\u0644 \u062a\u0634\u062e\u064a\u0635 \u0627\u0644\u0645\u0631\u0636 \u0648\u0639\u0644\u0627\u062c\u0647 \u0648\u062a\u062a\u0628\u0639\u0647 \u0628\u0634\u0643\u0644 \u0623\u0641\u0636\u0644 \u0641\u064a \u0646\u0638\u0627\u0645 \u0627\u0644\u0631\u0639\u0627\u064a\u0629 \u0627\u0644\u0635\u062d\u064a\u0629.<\/p>\n<\/div>

<\/div><\/div>

\u062a\u0645 \u0625\u0639\u0637\u0627\u0621 \u0627\u0644\u0645\u0631\u064a\u0636 \u0627\u0644\u0623\u0648\u0644 \u062c\u0631\u0639\u0629 \u0641\u064a \u0627\u0644\u0645\u0631\u062d\u0644\u0629 \u0627\u0644\u062b\u0627\u0646\u064a\u0629 \u0645\u0646 \u0627\u0644\u062a\u062c\u0627\u0631\u0628 \u0627\u0644\u0633\u0631\u064a\u0631\u064a\u0629 \u0644\u0640 \u0628\u064a \u0628\u064a \u0628\u064a \u0628\u064a-418 (\u0631\u064a\u0628\u064a\u062a\u0648\u0644)<\/strong> \u0644\u0639\u0644\u0627\u062c \u0627\u0644\u062d\u062b\u0644 \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u062d\u0632\u0627\u0645\u064a \u0627\u0644\u062d\u0632\u0627\u0645\u064a \u0645\u0646 \u0627\u0644\u0646\u0648\u0639 2I\/R9 (LGMD2I\/R9)\u060c \u0627\u0644\u0630\u064a \u0623\u062c\u0631\u062a\u0647 \u0634\u0631\u0643\u0629 \u0628\u0631\u064a\u062f\u062c \u0628\u064a\u0648 \u0641\u0627\u0631\u0645\u0627 \u0648\u0634\u0631\u0643\u062a\u0647\u0627 \u0627\u0644\u062a\u0627\u0628\u0639\u0629 \u0644\u0647\u0627 ML Bio Solutions.<\/p>\n<\/div><\/div><\/div><\/div><\/div>

2022<\/h2><\/div><\/div><\/div>
<\/div><\/div><\/div><\/div>
<\/div><\/div><\/div>
\"Screenshot<\/span><\/div>

\u0641\u064a \u0639\u0627\u0645 2022\u060c \u0641\u0625\u0646 \u0642\u0645\u0629 \u0627\u0644\u0645\u0646\u0627\u0635\u0631\u0629 \u0627\u0644\u0639\u0627\u0644\u0645\u064a\u0629 \u0644\u0645\u0646\u0627\u0635\u0631\u0629 LGMD<\/strong> \u0627\u0644\u0630\u064a \u062c\u0645\u0639 \u0628\u064a\u0646 \u0627\u0644\u0645\u0646\u0627\u0635\u0631\u064a\u0646 \u0648\u0627\u0644\u0645\u0631\u0636\u0649 \u0648\u0627\u0644\u0628\u0627\u062d\u062b\u064a\u0646 \u0648\u0635\u0627\u0646\u0639\u064a \u0627\u0644\u0633\u064a\u0627\u0633\u0627\u062a \u0645\u0646 \u062c\u0645\u064a\u0639 \u0623\u0646\u062d\u0627\u0621 \u0627\u0644\u0639\u0627\u0644\u0645 \u0644\u0644\u062a\u0639\u0627\u0648\u0646 \u0648\u062a\u0639\u0632\u064a\u0632 \u0627\u0644\u062c\u0647\u0648\u062f \u0627\u0644\u0645\u0628\u0630\u0648\u0644\u0629 \u0641\u064a \u0632\u064a\u0627\u062f\u0629 \u0627\u0644\u0648\u0639\u064a \u0648\u062f\u0639\u0645 \u0627\u0644\u0623\u0628\u062d\u0627\u062b \u0648\u062a\u062d\u0633\u064a\u0646 \u062d\u064a\u0627\u0629 \u0627\u0644\u0645\u0635\u0627\u0628\u064a\u0646 \u0628\u0645\u0631\u0636 \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062d\u0632\u0627\u0645 \u0627\u0644\u0637\u0631\u0641\u064a.<\/p>\n<\/div>

<\/div><\/div>
\"2022girdie\"<\/span><\/div>

\u062c\u064a\u0631\u062f\u064a<\/strong> \u0633\u0641\u064a\u0631 \u0627\u0639\u062a\u0644\u0627\u0644 \u0627\u0644\u063a\u062f\u062f \u0627\u0644\u0644\u0645\u0641\u0627\u0648\u064a\u0629 \u0627\u0644\u0639\u0636\u0644\u064a\u0629 \u0627\u0644\u0636\u0645\u0648\u0631\u064a \"\u0627\u0644\u0630\u064a \u062a\u0645 \"\u0625\u062d\u064a\u0627\u0624\u0647\" \u0648\u0639\u0631\u0636\u0647 \u0644\u0623\u0648\u0644 \u0645\u0631\u0629 \u0641\u064a \u0645\u0624\u062a\u0645\u0631 \u0648\u064a\u0644\u0633\u062a\u0648\u0646 \u0644\u0627\u0639\u062a\u0644\u0627\u0644 \u0627\u0644\u063a\u062f\u062f \u0627\u0644\u0644\u0645\u0641\u0627\u0648\u064a\u0629 \u0627\u0644\u0639\u0636\u0644\u064a\u0629 \u0627\u0644\u0639\u0636\u0644\u064a\u0651\u0629 \u0641\u064a \u0648\u0644\u0627\u064a\u0629 \u0623\u064a\u0648\u0627.<\/p>\n<\/div>

<\/div><\/div>
\"2022externallyled\"<\/span><\/div>

\u0627\u0644\u0623\u0648\u0644 \u0627\u062c\u062a\u0645\u0627\u0639 \u062a\u0637\u0648\u064a\u0631 \u0627\u0644\u0623\u062f\u0648\u064a\u0629 \u0627\u0644\u0630\u064a \u064a\u0631\u0643\u0632 \u0639\u0644\u0649 \u0627\u0644\u0645\u0631\u064a\u0636 \u062e\u0627\u0631\u062c\u064a\u064b\u0627 (EL-PFDD) \u0644\u062d\u0627\u0644\u0627\u062a \u0627\u0644\u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u062d\u0632\u0627\u0645\u064a \u0627\u0644\u062d\u0631\u0643\u064a \u0644\u0644\u0623\u0637\u0631\u0627\u0641<\/strong> \u0645\u0639 \u0625\u062f\u0627\u0631\u0629 \u0627\u0644\u063a\u0630\u0627\u0621 \u0648\u0627\u0644\u062f\u0648\u0627\u0621 \u0627\u0644\u0623\u0645\u0631\u064a\u0643\u064a\u0629 \u0648\u0623\u0635\u062d\u0627\u0628 \u0627\u0644\u0645\u0635\u0644\u062d\u0629 \u0627\u0644\u0622\u062e\u0631\u064a\u0646\u060c \u0645\u0645\u0627 \u0648\u0641\u0631 \u0645\u0646\u0635\u0629 \u0645\u0647\u0645\u0629 \u0644\u0644\u0645\u0631\u0636\u0649 \u0648\u0645\u0642\u062f\u0645\u064a \u0627\u0644\u0631\u0639\u0627\u064a\u0629 \u0644\u0645\u0634\u0627\u0631\u0643\u0629 \u062a\u062c\u0627\u0631\u0628\u0647\u0645 \u0648\u0648\u062c\u0647\u0627\u062a \u0646\u0638\u0631\u0647\u0645 \u0644\u0625\u062b\u0631\u0627\u0621 \u0639\u0645\u0644\u064a\u0629 \u062a\u0637\u0648\u064a\u0631 \u0627\u0644\u062f\u0648\u0627\u0621 \u0648\u0627\u062a\u062e\u0627\u0630 \u0627\u0644\u0642\u0631\u0627\u0631\u0627\u062a \u0627\u0644\u062a\u0646\u0638\u064a\u0645\u064a\u0629.<\/p>\n<\/div>

<\/div><\/div>

\u0623\u0646\u0634\u0623 \u0645\u0631\u0643\u0632 \u0627\u0644\u0633\u064a\u0637\u0631\u0629 \u0639\u0644\u0649 \u0627\u0644\u0623\u0645\u0631\u0627\u0636 \u0648\u0627\u0644\u0648\u0642\u0627\u064a\u0629 \u0645\u0646\u0647\u0627 (CDC) \u0631\u0645\u0648\u0632 \u0627\u0644\u062a\u0635\u0646\u064a\u0641 \u0627\u0644\u062f\u0648\u0644\u064a \u0644\u0644\u0623\u0645\u0631\u0627\u0636 ICD-10<\/strong>\u0645\u0645\u0627 \u064a\u062a\u064a\u062d \u062a\u0634\u062e\u064a\u0635\u064b\u0627 \u0648\u062a\u0648\u062b\u064a\u0642\u064b\u0627 \u0648\u062a\u062a\u0628\u0639\u064b\u0627 \u0623\u0643\u062b\u0631 \u062f\u0642\u0629 \u0644\u0644\u0623\u0646\u0648\u0627\u0639 \u0627\u0644\u0641\u0631\u0639\u064a\u0629 \u0644\u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062d\u0632\u0627\u0645 \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u062d\u0632\u0627\u0645\u064a \u062f\u0627\u062e\u0644 \u0646\u0638\u0627\u0645 \u0627\u0644\u0631\u0639\u0627\u064a\u0629 \u0627\u0644\u0635\u062d\u064a\u0629.<\/p>\n<\/div>

<\/div><\/div>
\"2023<\/span><\/div>

\u0627\u0644\u0645\u0624\u0633\u0633\u0629 \u063a\u064a\u0631 \u0627\u0644\u0631\u0628\u062d\u064a\u0629 \u0641\u0631\u064a\u0642 \u062a\u064a\u062a\u0646<\/strong><\/a> \u0627\u0644\u062a\u064a \u062a\u062f\u0639\u0645 \u0645\u062c\u062a\u0645\u0639 LGMD2J\/R10.<\/p>\n<\/div>

\u0627\u0633\u062a\u0636\u0627\u0641 \u0641\u0631\u064a\u0642 \u062a\u064a\u062a\u064a\u0646 \u0645\u0624\u062a\u0645\u0631 SciFam \u0644\u0644\u0623\u0628\u062d\u0627\u062b \u0627\u0644\u0639\u0644\u0645\u064a\u0629 \u0648\u0627\u0644\u0623\u0633\u0631\u0629.<\/strong><\/p>\n<\/div>

<\/div><\/div>
\"2023<\/span><\/div>

\u0625\u0646 \u0645\u0624\u0633\u0633\u0629 \u062f\u0627\u0646\u064a\u0627\u0644 \u0641\u064a\u0631\u062c\u0633\u0648\u0646 \u0625\u0644 \u062c\u064a \u0625\u0645 \u062f\u064a<\/strong><\/a> \u062a\u0623\u0633\u0633\u062a \u0641\u064a \u0623\u0633\u062a\u0631\u0627\u0644\u064a\u0627\u060c \u0648\u0647\u064a \u0645\u0643\u0631\u0633\u0629 \u0644\u062f\u0639\u0645 \u0627\u0644\u0623\u0628\u062d\u0627\u062b \u0648\u0632\u064a\u0627\u062f\u0629 \u0627\u0644\u0648\u0639\u064a \u0648\u062a\u0648\u0641\u064a\u0631 \u0627\u0644\u0645\u0648\u0627\u0631\u062f \u0644\u0644\u0623\u0641\u0631\u0627\u062f \u0648\u0627\u0644\u0639\u0627\u0626\u0644\u0627\u062a \u0627\u0644\u0645\u062a\u0623\u062b\u0631\u064a\u0646 \u0628\u0627\u0644\u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u062d\u0632\u0627\u0645\u064a \u0627\u0644\u0637\u0631\u0641\u064a.<\/p>\n<\/div>

<\/div><\/div>

\u062a\u0645 \u062d\u0642\u0646 \u0627\u0644\u0645\u0631\u064a\u0636 \u0627\u0644\u0623\u0648\u0644 \u0628\u062c\u0631\u0639\u0629 \u0627\u0644\u0645\u0631\u062d\u0644\u0629 1\/2 \u0645\u0646 \u0627\u0644\u062a\u062c\u0627\u0631\u0628 \u0627\u0644\u0633\u0631\u064a\u0631\u064a\u0629 \u0641\u064a \u0623\u0648\u0631\u0648\u0628\u0627 \u0644\u0644\u0639\u0644\u0627\u062c \u0627\u0644\u062c\u064a\u0646\u064a \u0644\u0645\u0631\u0636 LGMD-R9 \u0641\u064a \u0623\u0648\u0631\u0648\u0628\u0627<\/strong>\u0627\u0644\u0630\u064a \u0623\u062c\u0631\u062a\u0647 \u0634\u0631\u0643\u0629 \u0623\u062a\u0627\u0645\u064a\u0648 \u062b\u064a\u0631\u0627\u0628\u064a\u0648 \u062b\u064a\u0631\u0627\u0628\u064a\u0648\u062a\u0643\u0633\u060c \u0645\u0645\u0627 \u064a\u0645\u062b\u0644 \u062e\u0637\u0648\u0629 \u0645\u0647\u0645\u0629 \u0625\u0644\u0649 \u0627\u0644\u0623\u0645\u0627\u0645 \u0641\u064a \u062a\u0637\u0648\u064a\u0631 \u0639\u0644\u0627\u062c\u0627\u062a \u0644\u0647\u0630\u0627 \u0627\u0644\u0646\u0648\u0639 \u0627\u0644\u0641\u0631\u0639\u064a \u0645\u0646 \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062d\u0632\u0627\u0645 \u0627\u0644\u0637\u0631\u0641\u064a.<\/p>\n<\/div>

<\/div><\/div>
\"2022<\/span><\/div>

\u0627\u0633\u062a\u0636\u0627\u0641\u062a \u0634\u0631\u0643\u0629 CureLGMD2i \u0623\u0648\u0644 \"\u0627\u0644\u062a\u0648\u0627\u0635\u0644 \u0645\u0646 \u0623\u062c\u0644 \u0627\u0644\u0639\u0644\u0627\u062c\"<\/strong> \u0641\u0639\u0627\u0644\u064a\u0629 \u0641\u064a \u064a\u0648\u0645 \u0627\u0644\u062a\u0648\u0639\u064a\u0629 \u0628\u0645\u0631\u0636 \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062d\u0632\u0627\u0645 \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u062c\u0627\u0646\u0628\u064a \u0627\u0644\u062c\u0627\u0646\u0628\u064a \u0645\u0646 \u0627\u0644\u0646\u0648\u0639 2i\u060c \u0648\u0627\u0644\u062a\u064a \u062a\u062c\u0645\u0639 \u0628\u064a\u0646 \u0627\u0644\u0645\u0631\u0636\u0649 \u0648\u0627\u0644\u0639\u0627\u0626\u0644\u0627\u062a \u0648\u0627\u0644\u0628\u0627\u062d\u062b\u064a\u0646 \u0648\u0627\u0644\u062f\u0627\u0639\u0645\u064a\u0646 \u0644\u0631\u0641\u0639 \u0627\u0644\u0648\u0639\u064a \u0648\u062a\u0628\u0627\u062f\u0644 \u0627\u0644\u0645\u0639\u0631\u0641\u0629 \u0648\u062f\u0639\u0645 \u0627\u0644\u0628\u062d\u062b \u0639\u0646 \u0639\u0644\u0627\u062c \u0644\u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062d\u0632\u0627\u0645\u064a \u0627\u0644\u062c\u0627\u0646\u0628\u064a \u0645\u0646 \u0627\u0644\u0646\u0648\u0639 2i.<\/p>\n<\/div>

<\/div><\/div>

\u0625\u0646 \u062f\u0631\u0627\u0633\u0629 \u0627\u0644\u0646\u062a\u0627\u0626\u062c \u0627\u0644\u0633\u0631\u064a\u0631\u064a\u0629\/\u0627\u0644\u062a\u0627\u0631\u064a\u062e \u0627\u0644\u0637\u0628\u064a\u0639\u064a \u0644\u062e\u0644\u0644 \u0627\u0644\u062a\u0646\u0633\u062c \u0627\u0644\u0633\u0631\u064a\u0631\u064a<\/strong> \u0627\u0644\u0627\u062d\u062a\u0641\u0627\u0644 \u0628\u0645\u0631\u0648\u0631 10 \u0633\u0646\u0648\u0627\u062a \u0645\u0646 \u0645\u0634\u0627\u0631\u0643\u0629 \u0627\u0644\u0645\u0631\u0636\u0649 \u0648\u062c\u0645\u0639 \u0627\u0644\u0628\u064a\u0627\u0646\u0627\u062a \u0627\u0644\u0633\u0631\u064a\u0631\u064a\u0629\u060c \u0645\u0645\u0627 \u064a\u0633\u0644\u0637 \u0627\u0644\u0636\u0648\u0621 \u0639\u0644\u0649 \u0639\u0642\u062f \u0645\u0646 \u0627\u0644\u0645\u0633\u0627\u0647\u0645\u0627\u062a \u0627\u0644\u0642\u064a\u0645\u0629 \u0641\u064a \u0641\u0647\u0645 \u0648\u0639\u0644\u0627\u062c \u0647\u0630\u0627 \u0627\u0644\u0646\u0648\u0639 \u0627\u0644\u0645\u062d\u062f\u062f \u0645\u0646 \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062d\u0632\u0627\u0645 \u0627\u0644\u0637\u0631\u0641\u064a.<\/p>\n<\/div>

<\/div><\/div>
\"2022<\/span><\/div>

\u062d\u0632\u0645 \u0627\u0644\u0645\u0646\u0627\u0635\u0631\u0629 \u0641\u064a LGMD<\/strong><\/a> \u062a\u0645 \u0646\u0634\u0631\u0647\u0627 \u0641\u064a 6 \u0639\u064a\u0627\u062f\u0627\u062a \u0641\u064a \u0627\u0644\u0648\u0644\u0627\u064a\u0627\u062a \u0627\u0644\u0645\u062a\u062d\u062f\u0629 \u0645\u0646 \u0642\u0628\u0644 \u0645\u0624\u0633\u0633\u0629 \u0627\u0644\u062a\u0648\u0639\u064a\u0629 \u0628\u0645\u0631\u0636 \u0627\u0644\u062a\u0647\u0627\u0628 \u0627\u0644\u0644\u0648\u0632\u062a\u064a\u0646 \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u0644\u064a\u0641\u064a.<\/p>\n<\/div><\/div><\/div><\/div><\/div>

2023<\/h2><\/div><\/div><\/div>
<\/div><\/div><\/div><\/div>
<\/div><\/div><\/div>
\"2023voicepatient\"<\/span><\/div>

\u0641\u064a \u0639\u0627\u0645 2023\u060c \u0641\u0625\u0646 \u062a\u0642\u0631\u064a\u0631 \"\u0635\u0648\u062a \u0627\u0644\u0645\u0631\u064a\u0636\" \u0627\u0644\u0635\u0627\u062f\u0631 \u0639\u0646 \u0625\u062f\u0627\u0631\u0629 LGMD<\/strong> \u062a\u0645 \u0646\u0634\u0631 \u0627\u0644\u062f\u0631\u0627\u0633\u0629 \u0627\u0644\u062a\u064a \u062a\u0633\u0644\u0637 \u0627\u0644\u0636\u0648\u0621 \u0639\u0644\u0649 \u0627\u0644\u0627\u062d\u062a\u064a\u0627\u062c\u0627\u062a \u0648\u0627\u0644\u062a\u062d\u062f\u064a\u0627\u062a \u063a\u064a\u0631 \u0627\u0644\u0645\u0644\u0628\u0627\u0629 \u0627\u0644\u062a\u064a \u064a\u0648\u0627\u062c\u0647\u0647\u0627 \u0627\u0644\u0623\u0641\u0631\u0627\u062f \u0627\u0644\u0645\u0635\u0627\u0628\u0648\u0646 \u0628\u0633\u062a\u0629 \u0623\u0646\u0648\u0627\u0639 \u0641\u0631\u0639\u064a\u0629 \u0645\u062d\u062f\u062f\u0629 \u0645\u0646 \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062d\u0632\u0627\u0645 \u0627\u0644\u0637\u0631\u0641\u064a\u060c \u0648\u062a\u0648\u0641\u0631 \u0631\u0624\u0649 \u0642\u064a\u0645\u0629 \u0644\u062a\u0648\u062c\u064a\u0647 \u062c\u0647\u0648\u062f \u0627\u0644\u0628\u062d\u062b \u0648\u0627\u0644\u0639\u0644\u0627\u062c \u0641\u064a \u0627\u0644\u0645\u0633\u062a\u0642\u0628\u0644.<\/p>\n<\/div>

<\/div><\/div>

\u062a\u0645 \u0627\u0644\u0628\u062f\u0621 \u0641\u064a \u062f\u0631\u0627\u0633\u0629 \u0644\u062a\u0642\u064a\u064a\u0645 \u0641\u0639\u0627\u0644\u064a\u0629 \u0648\u0633\u0644\u0627\u0645\u0629 \u0639\u0644\u0627\u062c \u0628\u064a \u0628\u064a \u0628\u064a \u0628\u064a-418 (\u0631\u064a\u0628\u064a\u062a\u0648\u0644)<\/strong> \u0641\u064a \u0627\u0644\u0645\u0631\u0636\u0649 \u0627\u0644\u0630\u064a\u0646 \u064a\u0639\u0627\u0646\u0648\u0646 \u0645\u0646 \u0627\u0644\u062d\u062b\u0644 \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u062d\u0632\u0627\u0645\u064a \u0627\u0644\u062d\u0632\u0627\u0645\u064a 2I (LGMD2I\/R9)\u060c \u0627\u0644\u0630\u064a \u0623\u062c\u0631\u062a\u0647 \u0634\u0631\u0643\u0629 ML BioSolutions.<\/p>\n<\/div>

<\/div><\/div>

\u0639\u0648\u0644\u062c \u0627\u0644\u0645\u0631\u064a\u0636 \u0627\u0644\u0623\u0648\u0644 \u0641\u064a \u0627\u0644\u0645\u0631\u062d\u0644\u0629 \u0627\u0644\u0623\u0648\u0644\u0649 1\/\u0627\u0644\u0645\u0631\u062d\u0644\u0629 \u0627\u0644\u062b\u0627\u0646\u064a\u0629 \u0645\u0646 \u062a\u062c\u0631\u0628\u0629 \u0627\u0644\u0639\u0644\u0627\u062c \u0627\u0644\u062c\u064a\u0646\u064a AB-1003<\/strong> \u0644\u0644\u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u062d\u0632\u0627\u0645\u064a \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u062d\u0632\u0627\u0645\u064a \u0645\u0646 \u0627\u0644\u0646\u0648\u0639 2I\/R9\u060c \u0627\u0644\u0630\u064a \u0623\u062c\u0631\u062a\u0647 \u0634\u0631\u0643\u0629 AskBio\u060c \u0645\u0645\u0627 \u064a\u0645\u062b\u0644 \u0639\u0644\u0627\u0645\u0629 \u0641\u0627\u0631\u0642\u0629 \u0641\u064a \u062a\u0637\u0648\u064a\u0631 \u0639\u0644\u0627\u062c\u0627\u062a \u062c\u062f\u064a\u062f\u0629 \u0644\u0647\u0630\u0627 \u0627\u0644\u0646\u0648\u0639 \u0627\u0644\u0641\u0631\u0639\u064a \u0645\u0646 \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062d\u0632\u0627\u0645\u064a \u0627\u0644\u0639\u0636\u0644\u064a.<\/p>\n<\/div>

<\/div><\/div>
\"2023intlconference\"<\/span><\/div>

\u0627\u0644\u0623\u0648\u0644 \u0645\u0624\u062a\u0645\u0631 LGMD \u0627\u0644\u062f\u0648\u0644\u064a \"\u0627\u0644\u0645\u062e\u062a\u0644\u0637\"<\/strong> \u0639\u064f\u0642\u062f \u0627\u0644\u0645\u0624\u062a\u0645\u0631 \u0641\u064a \u0648\u0627\u0634\u0646\u0637\u0646 \u0627\u0644\u0639\u0627\u0635\u0645\u0629\u060c \u062d\u064a\u062b \u062c\u0645\u0639 \u0628\u064a\u0646 \u0627\u0644\u0645\u0634\u0627\u0631\u0643\u0629 \u0627\u0644\u0634\u062e\u0635\u064a\u0629 \u0648\u0627\u0644\u0627\u0641\u062a\u0631\u0627\u0636\u064a\u0629 \u0644\u0627\u0633\u062a\u064a\u0639\u0627\u0628 \u062c\u0645\u0647\u0648\u0631 \u0639\u0627\u0644\u0645\u064a \u0648\u062a\u0639\u0632\u064a\u0632 \u0627\u0644\u062a\u0639\u0627\u0648\u0646 \u0628\u064a\u0646 \u0627\u0644\u0628\u0627\u062d\u062b\u064a\u0646 \u0648\u0627\u0644\u0623\u0637\u0628\u0627\u0621 \u0648\u0627\u0644\u0645\u0631\u0636\u0649 \u0648\u0627\u0644\u062f\u0627\u0639\u0645\u064a\u0646 \u0641\u064a \u0645\u0643\u0627\u0641\u062d\u0629 \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062d\u0632\u0627\u0645 \u0627\u0644\u0637\u0631\u0641\u064a.<\/p>\n<\/div>

<\/div><\/div>
\"2023<\/span><\/div>

\u0627\u0644\u062a\u062d\u0627\u0644\u0641 \u0645\u0646 \u0623\u062c\u0644 \u0639\u0644\u0627\u062c \u0627\u0644\u0643\u0627\u0644\u0628\u0627\u064a\u0646 3<\/a> \u0625\u0637\u0644\u0627\u0642 \u0633\u062c\u0644 LGMD2A\/Calpainopathy Registry <\/strong><\/p>\n<\/div>

<\/div><\/div>
\"2023<\/span><\/div>

\u0627\u0644\u0645\u0624\u0633\u0633\u0629 \u063a\u064a\u0631 \u0627\u0644\u0631\u0628\u062d\u064a\u0629 \u0645\u0624\u0633\u0633\u0629 \u062f\u064a\u0648\u0646<\/strong><\/a> \u062a\u0645 \u062a\u0623\u0633\u064a\u0633\u0647\u0627 \u0628\u0647\u062f\u0641 \u062f\u0639\u0645 \u0627\u0644\u0623\u0628\u062d\u0627\u062b \u0648\u0632\u064a\u0627\u062f\u0629 \u0627\u0644\u0648\u0639\u064a \u0648\u062a\u0648\u0641\u064a\u0631 \u0627\u0644\u0645\u0648\u0627\u0631\u062f \u0644\u0644\u0623\u0641\u0631\u0627\u062f \u0648\u0627\u0644\u0639\u0627\u0626\u0644\u0627\u062a \u0627\u0644\u0645\u062a\u0623\u062b\u0631\u064a\u0646 \u0628\u0645\u0631\u0636 \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062d\u0632\u0627\u0645 \u0627\u0644\u0637\u0631\u0641\u064a.<\/p>\n<\/div>

<\/div><\/div>

\u0628\u062f\u0623\u062a \u0634\u0631\u0643\u0629 \u0633\u0627\u0631\u064a\u0628\u062a\u0627 \u062b\u064a\u0631\u0627\u0628\u064a\u0648\u062a\u064a\u0643\u0633 \u0623\u0648\u0644 \u0639\u0644\u0627\u062c \u0644\u0643\u0627\u0645\u0644 \u0627\u0644\u062c\u0633\u0645\/\u0627\u0644\u062c\u0647\u0627\u0632 \u0641\u064a \u0627\u0644\u062a\u062c\u0631\u0628\u0629 \u0627\u0644\u0633\u0631\u064a\u0631\u064a\u0629 \u0644\u0625\u062b\u0628\u0627\u062a \u0627\u0644\u0645\u0641\u0647\u0648\u0645 SRP 6004 \u0648\u0647\u064a \u062c\u0632\u0621 \u0645\u0646 \u0646\u0627\u0641\u064a\u062c\u064a\u0646<\/strong><\/a> \u062f\u0631\u0627\u0633\u0629 \u0639\u0646 \u0627\u0639\u062a\u0644\u0627\u0644 \u062f\u064a\u0633\u0641\u064a\u0631\u0644\u064a\u0646\u0648\u0628\u0627\u062b\u064a\u060c \u0648\u0647\u0648 \u0645\u0627 \u064a\u0645\u062b\u0644 \u062a\u0642\u062f\u0645\u064b\u0627 \u0643\u0628\u064a\u0631\u064b\u0627 \u0641\u064a \u0646\u0647\u062c \u0639\u0644\u0627\u062c \u0647\u0630\u0627 \u0627\u0644\u0646\u0648\u0639 \u0627\u0644\u0645\u062d\u062f\u062f \u0645\u0646 \u0627\u0644\u062d\u062b\u0644 \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u062d\u0632\u0627\u0645\u064a.<\/p>\n<\/div><\/div><\/div><\/div><\/div>

2024<\/h2><\/div><\/div><\/div>
<\/div><\/div><\/div><\/div>
<\/div><\/div><\/div>
\"2024<\/span><\/div>

\u0641\u064a \u0639\u0627\u0645 2024\u060c \u0628\u062f\u0623 \u0627\u0644\u0641\u062d\u0635 \u0641\u064a \u0639\u0627\u0645 2024\u060c \u0628\u062f\u0623 \u0627\u0644\u0641\u062d\u0635 \u0641\u064a \u0625\u0645\u0631\u062c\u064a\u0646<\/strong> \u0627\u0644\u0645\u0631\u062d\u0644\u0629 \u0627\u0644\u062b\u0627\u0644\u062b\u0629 \u0645\u0646 \u0627\u0644\u062f\u0631\u0627\u0633\u0629 \u0627\u0644\u0633\u0631\u064a\u0631\u064a\u0629 \u0644\u0644\u0645\u0631\u062d\u0644\u0629 \u0627\u0644\u062b\u0627\u0644\u062b\u0629 \u0645\u0646 \u0627\u0644\u062f\u0631\u0627\u0633\u0629 \u0627\u0644\u0633\u0631\u064a\u0631\u064a\u0629 \u0644\u0640 SRP-9003 \u0644\u0639\u0644\u0627\u062c \u0627\u0644\u062d\u062b\u0644 \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u062d\u0632\u0627\u0645\u064a \u0627\u0644\u062d\u0631\u062c\u064a \u0645\u0646 \u0627\u0644\u0646\u0648\u0639 2E\/R4\u060c \u0627\u0644\u062a\u064a \u0623\u062c\u0631\u062a\u0647\u0627 \u0634\u0631\u0643\u0629 \u0633\u0627\u0631\u064a\u0628\u062a\u0627 \u062b\u064a\u0631\u0627\u0628\u064a\u0648\u062a\u0643\u0633\u060c \u0645\u0645\u0627 \u064a\u0645\u062b\u0644 \u062e\u0637\u0648\u0629 \u062d\u0627\u0633\u0645\u0629 \u0646\u062d\u0648 \u062e\u064a\u0627\u0631\u0627\u062a \u0639\u0644\u0627\u062c\u064a\u0629 \u062c\u062f\u064a\u062f\u0629 \u0645\u062d\u062a\u0645\u0644\u0629 \u0644\u0647\u0630\u0627 \u0627\u0644\u0646\u0648\u0639 \u0627\u0644\u0641\u0631\u0639\u064a \u0645\u0646 \u0627\u0644\u062d\u062b\u0644 \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u062d\u0632\u0627\u0645\u064a \u0627\u0644\u062d\u0631\u0643\u064a.<\/p>\n<\/div>

<\/div><\/div>
\"2024drugworkshop\"<\/span><\/div>

\u0625\u062f\u0627\u0631\u0629 \u0634\u0624\u0648\u0646 \u0627\u0644\u0639\u0627\u0645\u0644\u064a\u0646 \u0641\u064a LGMD \u0648\u0631\u0634\u0629 \u0639\u0645\u0644 \u0627\u0644\u062a\u0637\u0648\u064a\u0631 \u0627\u0644\u0639\u0644\u0645\u064a \u0644\u0644\u0623\u062f\u0648\u064a\u0629<\/strong> \u0639\u064f\u0642\u062f \u0641\u064a \u0628\u064a\u062b\u064a\u0633\u062f\u0627 \u0628\u0648\u0644\u0627\u064a\u0629 \u0645\u0627\u0631\u064a\u0644\u0627\u0646\u062f\u060c \u062d\u064a\u062b \u062c\u0645\u0639 \u0628\u064a\u0646 \u0627\u0644\u0628\u0627\u062d\u062b\u064a\u0646 \u0648\u0627\u0644\u0623\u0637\u0628\u0627\u0621 \u0627\u0644\u0633\u0631\u064a\u0631\u064a\u064a\u0646 \u0648\u0642\u0627\u062f\u0629 \u0627\u0644\u0635\u0646\u0627\u0639\u0629 \u0644\u0645\u0646\u0627\u0642\u0634\u0629 \u062a\u0637\u0648\u064a\u0631 \u0627\u0633\u062a\u0631\u0627\u062a\u064a\u062c\u064a\u0627\u062a \u0639\u0644\u0627\u062c\u064a\u0629 \u062c\u062f\u064a\u062f\u0629 \u0644\u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062d\u0632\u0627\u0645 \u0627\u0644\u0637\u0631\u0641\u064a \u0648\u0627\u0644\u0645\u0636\u064a \u0642\u062f\u0645\u064b\u0627 \u0641\u064a \u062a\u0637\u0648\u064a\u0631\u0647\u0627.<\/p>\n<\/div>

<\/div><\/div>
\"2024<\/span><\/div>

\u062a\u0637\u0628\u064a\u0642 \u0627\u0644\u062a\u062c\u0627\u0631\u0628 \u0627\u0644\u0633\u0631\u064a\u0631\u064a\u0629 \u0644\u0644\u0627\u062e\u062a\u0628\u0627\u0631 ATA-200\u060c \u0648\u0647\u0648 \u0639\u0644\u0627\u062c \u062c\u064a\u0646\u064a \u0627\u0633\u062a\u0642\u0635\u0627\u0626\u064a<\/strong> \u0644\u0644\u0623\u0637\u0641\u0627\u0644 \u0627\u0644\u0645\u0635\u0627\u0628\u064a\u0646 \u0628\u0627\u0644\u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u062d\u0632\u0627\u0645\u064a \u0627\u0644\u062d\u0631\u0643\u064a \u0627\u0644\u062d\u0631\u0643\u064a \u0645\u0646 \u0627\u0644\u0646\u0648\u0639 2C\/R5\u060c \u062a\u0645\u062a \u0627\u0644\u0645\u0648\u0627\u0641\u0642\u0629 \u0639\u0644\u064a\u0647 \u0641\u064a \u0641\u0631\u0646\u0633\u0627 \u0648\u0625\u064a\u0637\u0627\u0644\u064a\u0627 \u0645\u0646 \u0642\u0628\u0644 \u0634\u0631\u0643\u0629 \u0623\u062a\u0627\u0645\u064a\u0648 \u062b\u064a\u0631\u0627\u0628\u064a\u0648 \u062b\u064a\u0631\u0627\u0628\u064a\u0648\u060c \u0645\u0645\u0627 \u064a\u0645\u0647\u062f \u0627\u0644\u0637\u0631\u064a\u0642 \u0644\u0625\u062c\u0631\u0627\u0621 \u0623\u0628\u062d\u0627\u062b \u0645\u0647\u0645\u0629 \u0641\u064a \u0627\u0644\u0639\u0644\u0627\u062c\u0627\u062a \u0627\u0644\u0645\u062d\u062a\u0645\u0644\u0629 \u0644\u0647\u0630\u0627 \u0627\u0644\u0646\u0648\u0639 \u0627\u0644\u0641\u0631\u0639\u064a \u0645\u0646 \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062d\u0631\u0643\u064a \u0627\u0644\u062d\u0631\u0643\u064a.<\/p>\n<\/div>

<\/div><\/div>
\"2024<\/span><\/div>

\u0627\u0644\u0623\u0648\u0644 \u064a\u0648\u0645 \u0627\u0644\u0645\u0631\u064a\u0636 \u0627\u0644\u0623\u0648\u0631\u0648\u0628\u064a (LGMDR9 (LGMD2I \u064a\u0648\u0645 \u0627\u0644\u0645\u0631\u064a\u0636 \u0627\u0644\u0623\u0648\u0631\u0648\u0628\u064a<\/strong> \u0639\u064f\u0642\u062f \u0641\u064a \u0623\u0645\u0633\u062a\u0631\u062f\u0627\u0645 \u0628\u0647\u0648\u0644\u0646\u062f\u0627\u060c \u062d\u064a\u062b \u0648\u0641\u0651\u0631 \u0627\u0644\u0645\u0624\u062a\u0645\u0631 \u0645\u0646\u0635\u0629 \u0644\u0644\u0645\u0631\u0636\u0649 \u0648\u0627\u0644\u0639\u0627\u0626\u0644\u0627\u062a \u0648\u0627\u0644\u0628\u0627\u062d\u062b\u064a\u0646 \u0648\u0627\u0644\u0645\u062a\u062e\u0635\u0635\u064a\u0646 \u0641\u064a \u0627\u0644\u0631\u0639\u0627\u064a\u0629 \u0627\u0644\u0635\u062d\u064a\u0629 \u0644\u0644\u062a\u0648\u0627\u0635\u0644 \u0648\u062a\u0628\u0627\u062f\u0644 \u0627\u0644\u062e\u0628\u0631\u0627\u062a \u0648\u0627\u0644\u062a\u0639\u0631\u0641 \u0639\u0644\u0649 \u0623\u062d\u062f\u062b \u0627\u0644\u062a\u0637\u0648\u0631\u0627\u062a \u0641\u064a \u0639\u0644\u0627\u062c \u0648\u0625\u062f\u0627\u0631\u0629 \u0645\u0631\u0636 \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062d\u0632\u0627\u0645 \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u0637\u0631\u0641\u064a \u0645\u0646 \u0627\u0644\u0646\u0648\u0639 2I.<\/p>\n<\/div>

<\/div><\/div>

\u0625\u0646 \u0627\u0644\u0627\u062c\u062a\u0645\u0627\u0639 \u0627\u0644\u0639\u0644\u0645\u064a LGMD2A\/R1<\/strong> \u0639\u064f\u0642\u062f \u0641\u064a \u0623\u0631\u0644\u064a\u0646\u063a\u062a\u0648\u0646 \u0628\u0648\u0644\u0627\u064a\u0629 \u0641\u064a\u0631\u062c\u064a\u0646\u064a\u0627\u060c \u062d\u064a\u062b \u062c\u0645\u0639 \u062e\u0628\u0631\u0627\u0621 \u0648\u0628\u0627\u062d\u062b\u064a\u0646 \u0644\u0645\u0646\u0627\u0642\u0634\u0629 \u0623\u062d\u062f\u062b \u0627\u0644\u0646\u062a\u0627\u0626\u062c \u0648\u0627\u0644\u062a\u0637\u0648\u0631\u0627\u062a \u0641\u064a \u0641\u0647\u0645 \u0648\u0639\u0644\u0627\u062c \u0627\u0644\u062d\u062b\u0644 \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u062d\u0632\u0627\u0645\u064a \u0627\u0644\u0637\u0631\u0641\u064a \u0645\u0646 \u0627\u0644\u0646\u0648\u0639 2A\/R1.<\/p>\n<\/div>

<\/div><\/div>

\u0625\u0646 \u0645\u0624\u062a\u0645\u0631 \u062f\u064a\u0633\u0641\u0631\u064a\u0644\u064a\u0646 \u0627\u0644\u0639\u0644\u0645\u064a<\/strong> \u0639\u064f\u0642\u062f \u0641\u064a \u0647\u064a\u0648\u0633\u062a\u0646\u060c \u062a\u0643\u0633\u0627\u0633\u060c \u0648\u062c\u0645\u0639 \u0628\u0627\u062d\u062b\u064a\u0646 \u0648\u0623\u0637\u0628\u0627\u0621 \u0633\u0631\u064a\u0631\u064a\u064a\u0646 \u0648\u062e\u0628\u0631\u0627\u0621 \u0641\u064a \u0647\u0630\u0627 \u0627\u0644\u0645\u062c\u0627\u0644 \u0644\u062a\u0628\u0627\u062f\u0644 \u0627\u0644\u0631\u0624\u0649 \u0648\u0627\u0644\u062a\u0637\u0648\u0631\u0627\u062a \u0641\u064a \u062f\u0631\u0627\u0633\u0629 \u0648\u0639\u0644\u0627\u062c \u0627\u0639\u062a\u0644\u0627\u0644 \u062f\u064a\u0633\u0641\u0631\u064a\u0644\u064a\u0646\u0648\u0628\u0627\u062b\u064a\u060c \u0648\u0647\u0648 \u0623\u062d\u062f \u0623\u0634\u0643\u0627\u0644 \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062d\u0632\u0627\u0645\u064a\u0629 \u0627\u0644\u062d\u0631\u0643\u064a\u0629.<\/p>\n<\/div>

<\/div><\/div>
\"2024\"<\/span><\/div>

\u0625\u0646 \u0627\u0644\u064a\u0648\u0645 \u0627\u0644\u062a\u0648\u0639\u0648\u064a \u0627\u0644\u0633\u0646\u0648\u064a \u0627\u0644\u0639\u0627\u0634\u0631 \u0644\u0644\u062a\u0648\u0639\u064a\u0629 \u0628\u0645\u0631\u0636 \u0627\u0644\u062a\u0647\u0627\u0628 \u0627\u0644\u063a\u062f\u062f \u0627\u0644\u0644\u0645\u0641\u0627\u0648\u064a\u0629 \u0627\u0644\u062c\u0644\u062f\u064a \u0627\u0644\u0648\u0628\u0627\u0626\u064a<\/strong><\/a> \u064a\u062d\u062a\u0641\u0644 \u0628\u0647 \u0641\u064a \u062c\u0645\u064a\u0639 \u0623\u0646\u062d\u0627\u0621 \u0627\u0644\u0639\u0627\u0644\u0645.<\/p>\n<\/div><\/div><\/div><\/div><\/div>

2025<\/h2><\/div><\/div><\/div>
<\/div><\/div><\/div><\/div>
<\/div><\/div><\/div>
\"CureSCG<\/a><\/span><\/div>

Cure SCG<\/a> (Cure Sarcoglycanopathy)<\/strong> was established in the United States. Their mission is to find a cure for LGMD Sarcoglycanopathy, inclusive of its LGMD2C\/R5, LGMD2D\/R3, LGMD2E\/\u200bR4, and LGMD2F\/R6 variants.<\/strong><\/p>\n<\/div>

<\/div><\/div>

Coalition of LGMD Advocacy Organizations hosted a reception for researchers and clinicians at the 2025 MDA Clinical and Scientific Conference<\/a> in Dallas, TX<\/p>\n<\/div>

<\/div><\/div>
\"In<\/a><\/span><\/div>

The documentary\u00a0\u201cIn Search of Strength \u2013 The Unfinished Fight Against\u00a0Muscular\u00a0Dystrophy\u201d<\/strong><\/a>\u00a0was released.<\/p>\n<\/div>

<\/div><\/div>
\"Curelgmd2t\"<\/span><\/div>

Cure LGMD2T<\/strong>\u00a0was established in the United States. Their mission is dedicated to raising awareness of\u00a0Limb-Girdle\u00a0Muscular\u00a0Dystrophy\u00a02T<\/strong>\u00a0and providing critical funding for research into effective treatments.<\/p>\n<\/div>

<\/div><\/div>
\"Askbio<\/span><\/div>

AskBio Advances Gene Therapy Clinical Trial\u00a0for\u00a0Limb-Girdle\u00a0Muscular\u00a0Dystrophy\u00a0Type 2I\/R9<\/strong>\u00a0with Dosing of First Participant in Second Cohort<\/p>\n<\/div>

<\/div><\/div>
\"2024<\/span><\/div>

Atamyo Therapeutics Announces First Patients Dosed with ATA-200 Gene Therapy in\u00a0LGMD-2C\/R5<\/strong>\u00a0Clinical Trial<\/p>\n<\/div>

<\/div><\/div>

U.S. FDA Grants Platform Technology Designation to the Viral Vector Used in SRP-9003, Sarepta\u2019s Investigational Gene Therapy for the Treatment of\u00a0Limb\u00a0Girdle\u00a0Muscular\u00a0Dystrophy\u00a0Type 2E\/R4<\/strong><\/p>\n<\/div><\/div><\/div><\/div><\/div>

2026<\/h2><\/div><\/div><\/div>
<\/div><\/div><\/div><\/div>
<\/div><\/div><\/div>
\"CureSCG<\/a><\/span><\/div>

Atamyo Therapeutics<\/a> Presents Positive Safety and Efficacy Data from a US Phase 1b\/2 Trial of its Gene Therapy (ATA-200) for Linb-Girdle Muscular Dystrophy R5 (LGMD-R5)<\/b><\/p>\n<\/div>

<\/div><\/div>
\"CureSCG<\/a><\/span><\/div>

BrideBio<\/a> Submits NDA to FDA for BBP-418 for Individuals Living with LGMD2I\/R9<\/p>\n<\/div>

<\/div><\/div>
\"2026<\/a><\/span><\/div>

LGMD Policy Action Day<\/strong> brought our community directly to Capitol Hill \u2014 with a full schedule of meetings across both the House and Senate to address the realities of ultra-rare drug development. LGMD Policy Action Days bring in scientific experts who understand the health policy ecosystem as it intersects with science. It is a perspective that policymakers want to hear, and the stories of those with lived experience help underscore the need as we share how ultra-rare drug development must evolve to get treatments to our communities.<\/p>\n<\/div>

<\/div><\/div>
<\/span><\/div>

The Speak Foundation Launches Patient-Led National LGMD Centers of Excellence<\/strong>, Uniting Leading Academic Institutions to Accelerate Clinical Trials and New Therapies.<\/p>\n<\/div>

<\/div><\/div>
<\/span><\/div>

The FDA has accepted the new drug application (NDA) from BridgeBio (MLBio Solutions)! This is an amazing step toward potential approval of the first-ever treatment<\/strong> for people living with LGMD 2I\/R9! A PDUFA (Prescription Drug User Fee Act) target action date of November 27, 2026 has been set, the date by which the FDA will complete its review.<\/span><\/p>\n<\/div>

<\/div><\/div>
<\/span><\/div>
<\/div><\/div>
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