{"id":3342,"date":"2019-12-27T14:48:00","date_gmt":"2019-12-27T20:48:00","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3342"},"modified":"2021-02-19T18:34:05","modified_gmt":"2021-02-19T18:34:05","slug":"organization-cure-vcp","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ar\/organization-interview\/2019\/12\/27\/organization-cure-vcp\/","title":{"rendered":"\u0627\u0644\u0645\u0646\u0638\u0645\u0629: \u0634\u0631\u0643\u0629 Cure VCP Disease, Inc."},"content":{"rendered":"
\n
\"\"<\/figure>\n<\/div>\n

\u0627\u0633\u0645 \u0627\u0644\u0645\u0646\u0638\u0645\u0629<\/strong>: Cure VCP Disease, Inc.<\/p>\n

\u0627\u0644\u0645\u0648\u0642\u0639 \u0627\u0644\u0625\u0644\u0643\u062a\u0631\u0648\u0646\u064a:<\/strong>\u00a0 \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 \u00a0https:\/\/www.curevcp.org<\/a><\/p>\n

\u0641\u064a\u0633\u0628\u0648\u0643\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0<\/strong> https:\/\/www.facebook.com\/curevcpdisease\/<\/a><\/p>\n

\u062a\u0648\u064a\u062a\u0631:\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0<\/strong> @LostTexanInGA<\/p>\n

\u0645\u0627 \u0647\u0648 \u0627\u0644\u0646\u0648\u0639 \u0627\u0644\u0641\u0631\u0639\u064a \u0627\u0644\u0630\u064a \u062a\u0631\u0643\u0632 \u0639\u0644\u064a\u0647 \u0645\u0624\u0633\u0633\u062a\u0643 \u0641\u064a \u0625\u062f\u0627\u0631\u0629 \u0627\u0644\u062a\u0646\u0645\u064a\u0629 \u0627\u0644\u062f\u0648\u0644\u064a\u0629:\u00a0 <\/strong>\u00a0<\/p>\n

\u0623\u0645\u0631\u0627\u0636 \u0627\u0644\u0627\u0639\u062a\u0644\u0627\u0644 \u0627\u0644\u0639\u0636\u0644\u064a \u0644\u0644\u062c\u0633\u0645 \u0627\u0644\u0645\u062a\u0636\u062e\u0645 \u0648\u062a\u062d\u062f\u064a\u062f\u0627\u064b \u0627\u0644\u0627\u0639\u062a\u0644\u0627\u0644 \u0627\u0644\u0639\u0636\u0644\u064a \u0644\u0644\u062c\u0633\u0645 \u0627\u0644\u0645\u062a\u0636\u0645\u0651\u0646 \u0627\u0644\u0645\u0631\u062a\u0628\u0637 \u0628\u062f\u0627\u0621 \u0628\u0627\u062c\u064a\u062a \u0627\u0644\u0639\u0638\u0645\u064a \u0648\u0627\u0644\u062e\u0631\u0641 \u0627\u0644\u062c\u0628\u0647\u064a \u0627\u0644\u0635\u062f\u063a\u064a (IBMPFD).\u00a0<\/p>\n

\u0625\u0630\u0627 \u0643\u0646\u062a \u062a\u0631\u0643\u0632 \u0639\u0644\u0649 \u0646\u0648\u0639 \u0641\u0631\u0639\u064a\u060c \u0641\u0647\u0644 \u0647\u0646\u0627\u0643 \u0633\u062c\u0644 \u0648\u0643\u064a\u0641 \u064a\u0645\u0643\u0646 \u0644\u0644\u0645\u0631\u0636\u0649 \u0627\u0644\u0627\u0646\u0636\u0645\u0627\u0645 \u0625\u0644\u064a\u0647\u061f<\/strong><\/p>\n

https:\/\/www.curevcp.org\/patient-registry<\/a><\/p>\n

\u0647\u0644 \u0645\u0624\u0633\u0633\u062a\u0643 \u063a\u064a\u0631 \u0631\u0628\u062d\u064a\u0629\u061f \u0625\u0630\u0627 \u0643\u0627\u0646 \u0627\u0644\u0623\u0645\u0631 \u0643\u0630\u0644\u0643\u060c \u0641\u0645\u0627 \u0647\u0648 \u0646\u0648\u0639\u0647\u0627:\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0<\/strong><\/p>\n

\u00a0 \u0646\u0639\u0645\u060c \u0646\u062d\u0646 \u0645\u0646\u0638\u0645\u0629 \u0639\u0627\u0645\u0629 \u063a\u064a\u0631 \u0631\u0628\u062d\u064a\u0629 501 (\u062c) (3) (3)<\/p>\n

\u0645\u0627 \u0627\u0644\u0630\u064a \u0623\u0644\u0647\u0645\u0643 \u0644\u0625\u0646\u0634\u0627\u0621 \u0645\u0624\u0633\u0633\u062a\u0643<\/strong>:<\/p>\n

\u00a0\u0644\u0645 \u062a\u0643\u0646 \u0647\u0646\u0627\u0643 \u0623\u064a \u0645\u0646\u0638\u0645\u0629 \u0631\u0633\u0645\u064a\u0629 \u0644\u062a\u0646\u0638\u064a\u0645 \u0648\u062a\u0648\u0639\u064a\u0629 \u0627\u0644\u0645\u0631\u0636\u0649 \u0648\u0627\u0644\u0628\u0627\u062d\u062b\u064a\u0646 \u0628\u0623\u0645\u0631\u0627\u0636 \u0641\u064a\u0631\u0648\u0633 \u0646\u0642\u0635 \u0627\u0644\u0645\u0646\u0627\u0639\u0629 \u0627\u0644\u0645\u0643\u062a\u0633\u0628 (VCP). \u0623\u0646\u0627 \u0646\u0641\u0633\u064a \u0645\u0631\u064a\u0636\u0629 \u0648\u0642\u062f \u0641\u0642\u062f\u062a \u0648\u0627\u0644\u062f\u062a\u064a \u0628\u0633\u0628\u0628 \u0627\u0644\u0645\u0631\u0636 \u0648\u0634\u0639\u0631\u062a \u0623\u0646\u0647 \u0644\u0627 \u064a\u0645\u0643\u0646\u0646\u064a \u0623\u0646 \u0623\u0642\u0641 \u0645\u0643\u062a\u0648\u0641\u0629 \u0627\u0644\u0623\u064a\u062f\u064a \u0641\u064a \u0627\u0646\u062a\u0638\u0627\u0631 \u062d\u062f\u0648\u062b \u0623\u0634\u064a\u0627\u0621 \u0641\u064a \u0645\u062c\u062a\u0645\u0639 \u0627\u0644\u0628\u062d\u062b. \u0643\u0645\u062c\u0645\u0648\u0639\u0629 \u0645\u0646 \u0627\u0644\u0645\u0631\u0636\u0649\u060c \u0643\u0646\u0627 \u0628\u062d\u0627\u062c\u0629 \u0625\u0644\u0649 \u0623\u0646 \u0646\u0643\u0648\u0646 \u0645\u0634\u0627\u0631\u0643\u064a\u0646 \u0646\u0634\u0637\u064a\u0646 \u0644\u062a\u062d\u0642\u064a\u0642 \u0646\u062a\u0627\u0626\u062c \u0625\u064a\u062c\u0627\u0628\u064a\u0629\u060c \u0648\u0644\u0643\u0646 \u0627\u0644\u0623\u0647\u0645 \u0645\u0646 \u0630\u0644\u0643 \u0647\u0648 \u062a\u062d\u062f\u064a\u062f \u0645\u062c\u0645\u0648\u0639\u0629 \u0627\u0644\u0645\u0631\u0636\u0649.\u00a0<\/p>\n

\u0645\u0627 \u0647\u064a \u0645\u0647\u0645\u0629 \u0645\u0624\u0633\u0633\u062a\u0643<\/strong><\/p>\n

\u062a\u0623\u0633\u0633\u062a \u0634\u0631\u0643\u0629 Cure VCP Disease, Inc. \u0644\u062f\u0641\u0639 \u0627\u0644\u062c\u0647\u0648\u062f \u0627\u0644\u0631\u0627\u0645\u064a\u0629 \u0625\u0644\u0649 \u0639\u0644\u0627\u062c \u0627\u0644\u0623\u0645\u0631\u0627\u0636 \u0627\u0644\u0645\u0631\u062a\u0628\u0637\u0629 \u0628\u0637\u0641\u0631\u0627\u062a \u062c\u064a\u0646 \u0627\u0644\u0628\u0631\u0648\u062a\u064a\u0646 \u0627\u0644\u0645\u062d\u062a\u0648\u064a \u0639\u0644\u0649 \u0627\u0644\u0641\u0627\u0644\u0648\u0633\u064a\u0646. \u0648\u064a\u0634\u0645\u0644 \u0630\u0644\u0643 \u0645\u0631\u0636 \u0627\u0644\u0627\u0639\u062a\u0644\u0627\u0644 \u0627\u0644\u0639\u0636\u0644\u064a \u0644\u0644\u062c\u0633\u0645 \u0627\u0644\u0645\u062a\u0636\u0645\u0646 \u0627\u0644\u0645\u0631\u062a\u0628\u0637 \u0628\u0645\u0631\u0636 \u0628\u0627\u062c\u064a\u062a \u0641\u064a \u0627\u0644\u0639\u0638\u0627\u0645 \u0648\u0627\u0644\u062e\u0631\u0641 \u0627\u0644\u062c\u0628\u0647\u064a \u0627\u0644\u0635\u062f\u063a\u064a (IBMPFD). \u0646\u0647\u062f\u0641 \u0625\u0644\u0649 \u062a\u0648\u0641\u064a\u0631 \u0627\u0644\u062a\u062b\u0642\u064a\u0641 \u0648\u0627\u0644\u062a\u0648\u0639\u064a\u0629 \u0627\u0644\u0639\u0627\u0644\u0645\u064a\u0629 \u0628\u0623\u0645\u0631\u0627\u0636 \u0627\u0639\u062a\u0644\u0627\u0644 \u0627\u0644\u062c\u0633\u0645 \u0627\u0644\u0645\u062d\u062a\u0648\u064a \u0639\u0644\u0649 \u0628\u0631\u0648\u062a\u064a\u0646 \u0627\u0644\u0641\u0627\u0644\u0648\u0633\u064a\u0646 \u0644\u0644\u0623\u0637\u0628\u0627\u0621 \u0648\u0627\u0644\u0628\u0627\u062d\u062b\u064a\u0646 \u0648\u0627\u0644\u0645\u0633\u062a\u062b\u0645\u0631\u064a\u0646 \u0648\u0627\u0644\u0645\u0631\u0636\u0649 \u0648\u0645\u0642\u062f\u0645\u064a \u0627\u0644\u0631\u0639\u0627\u064a\u0629 \u0648\u0639\u0627\u0645\u0629 \u0627\u0644\u0646\u0627\u0633.<\/p>\n

\u0645\u0627 \u0647\u064a \u0627\u0644\u062e\u062f\u0645\u0627\u062a \u0627\u0644\u062a\u064a \u062a\u0642\u062f\u0645\u0647\u0627 \u0645\u0624\u0633\u0633\u062a\u0643<\/strong><\/p>\n

\u00a0\u0646\u062d\u062a\u0641\u0638 \u0628\u0633\u062c\u0644 \u0639\u0627\u0644\u0645\u064a \u0644\u0644\u0645\u0631\u0636\u0649 \u0627\u0644\u0630\u064a\u0646 \u064a\u0639\u0627\u0646\u0648\u0646 \u0645\u0646 \u0645\u0631\u0636 VCP. \u0648\u0646\u0648\u0641\u0631 \u0627\u0644\u0623\u0645\u0644 \u0648\u0627\u0644\u062a\u062b\u0642\u064a\u0641 \u0644\u0645\u0631\u0636\u0627\u0646\u0627 \u0645\u0646 \u062e\u0644\u0627\u0644 \u0627\u0644\u0645\u0624\u062a\u0645\u0631\u0627\u062a \u0648\u0627\u0644\u0646\u0634\u0631\u0627\u062a \u0627\u0644\u0625\u062e\u0628\u0627\u0631\u064a\u0629 \u0639\u0628\u0631 \u0627\u0644\u0628\u0631\u064a\u062f \u0627\u0644\u0625\u0644\u0643\u062a\u0631\u0648\u0646\u064a \u0648\u0627\u0644\u0645\u0648\u0627\u0631\u062f \u0639\u0628\u0631 \u0627\u0644\u0625\u0646\u062a\u0631\u0646\u062a \u0648\u0627\u0644\u0646\u062f\u0648\u0627\u062a \u0639\u0628\u0631 \u0627\u0644\u0625\u0646\u062a\u0631\u0646\u062a.<\/p>\n

\u0645\u0627 \u0623\u0643\u062b\u0631 \u0645\u0627 \u062a\u0641\u062e\u0631 \u0628\u0647 \u0645\u0624\u0633\u0633\u062a\u0643<\/strong><\/p>\n

\u00a0\u0644\u0642\u062f \u0628\u062f\u0623\u0646\u0627 \u0641\u064a \u064a\u0646\u0627\u064a\u0631 2018 \u0648\u0628\u062d\u0644\u0648\u0644 \u0623\u0628\u0631\u064a\u0644 2019 \u0639\u0642\u062f\u0646\u0627 \u0627\u0644\u0645\u0624\u062a\u0645\u0631 \u0627\u0644\u0627\u0641\u062a\u062a\u0627\u062d\u064a \u0644\u0645\u0631\u0636\u0649 \u0648\u0645\u0642\u062f\u0645\u064a \u0627\u0644\u0631\u0639\u0627\u064a\u0629 \u0644\u0645\u0631\u0636 VCP. \u062d\u0636\u0631 \u0627\u0644\u0645\u0624\u062a\u0645\u0631 \u062d\u0648\u0627\u0644\u064a 60 \u0645\u0631\u064a\u0636\u0627\u064b \u0648\u0645\u0642\u062f\u0645\u064a \u0627\u0644\u0631\u0639\u0627\u064a\u0629 \u0648\u0627\u0644\u0628\u0627\u062d\u062b\u064a\u0646. \u062c\u0645\u064a\u0639 \u0627\u0644\u062c\u0644\u0633\u0627\u062a \u0627\u0644\u0645\u0633\u062c\u0644\u0629 \u0645\u062a\u0627\u062d\u0629 \u0639\u0644\u0649 \u0642\u0646\u0627\u0629 Cure VCP Disease \u0639\u0644\u0649 \u064a\u0648\u062a\u064a\u0648\u0628.<\/p>\n

\u0645\u0627 \u0627\u0644\u0630\u064a \u062a\u0631\u064a\u062f \u0623\u0646 \u064a\u0639\u0631\u0641\u0647 \u0627\u0644\u0639\u0627\u0644\u0645 \u0639\u0646 \u0645\u0624\u0633\u0633\u062a\u0643<\/strong>:<\/p>\n

\u00a0\u064a\u062a\u0645 \u062a\u0634\u062e\u064a\u0635 \u0627\u0644\u0639\u062f\u064a\u062f \u0645\u0646 \u0645\u0631\u0636\u0627\u0646\u0627 \u0628\u0634\u0643\u0644 \u062e\u0627\u0637\u0626 \u0639\u0644\u0649 \u0623\u0646\u0647\u0645 \u0645\u0635\u0627\u0628\u0648\u0646 \u0628\u062f\u0627\u0621 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u0639\u0636\u0644\u064a \u0627\u0644\u0639\u0636\u0644\u064a \u0623\u0648 \u0627\u0644\u062a\u0647\u0627\u0628 \u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062c\u0633\u0645 \u0627\u0644\u0645\u062a\u0636\u0645\u0646. \u0642\u062f \u062a\u0643\u0648\u0646 \u0631\u062d\u0644\u0629 \u0627\u0644\u062a\u0634\u062e\u064a\u0635 \u0627\u0644\u0635\u062d\u064a\u062d \u0645\u0631\u0647\u0642\u0629 \u0644\u0644\u0639\u062f\u064a\u062f \u0645\u0646 \u0627\u0644\u0645\u0631\u0636\u0649 \u0627\u0644\u0645\u0635\u0627\u0628\u064a\u0646 \u0628\u0627\u0644\u0623\u0645\u0631\u0627\u0636 \u0627\u0644\u0639\u0635\u0628\u064a\u0629 \u0648\u0627\u0644\u0639\u0636\u0644\u064a\u0629. \u0647\u062f\u0641\u0646\u0627 \u0647\u0648 \u0625\u0642\u0627\u0645\u0629 \u0634\u0631\u0627\u0643\u0629 \u0645\u0639 \u062c\u0645\u064a\u0639 \u0627\u0644\u0645\u0646\u0638\u0645\u0627\u062a \u0627\u0644\u0645\u0639\u0646\u064a\u0629 \u0628\u0627\u0644\u0623\u0645\u0631\u0627\u0636 \u0627\u0644\u0639\u0635\u0628\u064a\u0629 \u0648\u0627\u0644\u0639\u0636\u0644\u064a\u0629 \u0644\u062f\u0649 \u0627\u0644\u0628\u0627\u0644\u063a\u064a\u0646 \u0644\u062a\u0639\u0632\u064a\u0632 \u0627\u0644\u0648\u0639\u064a \u0648\u0627\u0644\u062a\u062b\u0642\u064a\u0641 \u0648\u0623\u0641\u0636\u0644 \u0627\u0644\u0645\u0645\u0627\u0631\u0633\u0627\u062a. \u0646\u0648\u0627\u062c\u0647 \u062c\u0645\u064a\u0639\u064b\u0627 \u0627\u0644\u0639\u062f\u064a\u062f \u0645\u0646 \u0627\u0644\u062a\u062d\u062f\u064a\u0627\u062a \u0646\u0641\u0633\u0647\u0627 \u0628\u0633\u0628\u0628 \u0623\u0645\u0631\u0627\u0636\u0646\u0627 \u0648\u0639\u0644\u0649 \u0627\u0644\u0631\u063a\u0645 \u0645\u0646 \u0623\u0646 \u0639\u0644\u0645 \u0623\u0645\u0631\u0627\u0636\u0646\u0627 \u0642\u062f \u064a\u0643\u0648\u0646 \u0645\u062e\u062a\u0644\u0641\u064b\u0627\u060c \u0625\u0644\u0627 \u0623\u0646\u0646\u0627 \u062c\u0645\u064a\u0639\u064b\u0627 \u064a\u062c\u0628 \u0623\u0646 \u0646\u0643\u0648\u0646 \u0645\u0639\u064b\u0627 \u0641\u064a \u0647\u0630\u0627 \u0627\u0644\u0623\u0645\u0631.<\/p>\n

\u0643\u064a\u0641 \u064a\u0645\u0643\u0646 \u0644\u0644\u0623\u0634\u062e\u0627\u0635 \u0627\u0644\u0645\u0634\u0627\u0631\u0643\u0629 \u0641\u064a \u062f\u0639\u0645 \u0645\u0624\u0633\u0633\u062a\u0643:<\/strong><\/p>\n

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