![\"Unknown](\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\")
<\/a><\/p>\n\u0627\u0644\u0628\u0644\u062f: \u0627\u0644\u0648\u0644\u0627\u064a\u0627\u062a \u0627\u0644\u0645\u062a\u062d\u062f\u0629 \u0627\u0644\u0623\u0645\u0631\u064a\u0643\u064a\u0629<\/p>\n
LGMD Sub-Type: unknown<\/p>\n
AT WHAT AGE WERE YOU DIAGNOSED?<\/strong><\/p>\nI was \u201cofficially\u201d diagnosed at age 46 but I had symptoms in my late 30\u2019s.<\/p>\n
WHAT WERE YOUR FIRST SYMPTOMS?<\/strong><\/p>\n I was the kid who was never “good at gym.” Looking back I may have had some clues earlier in my adult life but it wasn’t until I was in my 30’s that I realized I couldn’t get up from the floor (or from a squat).\u00a0<\/span><\/span><\/span><\/span><\/p>\nDO YOU HAVE OTHER FAMILY MEMBERS WHO HAVE LGMD?<\/strong><\/p>\nMy father had LGMD. He passed away in 2001. \u00a0(My Dad also had a late onset but he had a pretty fast progression. Sadly he passed before genetic testing was available.)<\/p>\n
WHAT DO YOU FIND TO BE THE GREATEST CHALLENGE IN LIVING WITH LGMD?<\/strong><\/p>\nMy progression has been slow and I am still walking but I can no longer walk long distances without supports. Stairs are very challenging for me and I can\u2019t rise from chairs without assistance. For me the most challenging thing is the lack of understanding and the many misconceptions people have about LGMD. I also find the lack of accessibility to buildings and events very challenging. I still want to be with people and do what they are doing but there are sometimes when that isn\u2019t possible because of access issues.<\/p>\n
WHAT IS YOUR GREATEST ACCOMPLISHMENT?<\/strong><\/p>\nI’ve raised three wonderful children who are all successful and loving adults and I have four amazing grandkids. I learned to ride horses at age 50 and took several vacations where I went on long vacation rides with my family. In 2009 I was named \u201cStudent of the Year\u201d by the American Riding Instructors Association (ARIA)<\/p>\n
HOW HAS LGMD INFLUENCED YOU IN BECOMING THE PERSON YOU ARE TODAY?<\/strong><\/p>\n\u00a0<\/strong>Living with LGMD has made me a more empathetic person. I know that just because you can\u2019t see it on the outside does not mean people are not struggling on the inside. I try to regard others the way I want them to regard me.<\/p>\nWHAT DO YOU WANT THE WORLD TO KNOW ABOUT LGMD?<\/strong><\/p>\n\u00a0<\/strong>Our knowledge of this disease is expanding exponentially. Everyday we learn more about the genetic causes and I believe with more research support and social awareness we will find the cure.<\/p>\nIf \u00a0YOUR LGMD COULD BE \u201cCURED\u201d TOMORROW, WHAT WOULD BE THE FIRST THING THAT YOU WOULD WANT TO DO?<\/strong><\/p>\n\u00a0<\/strong>Go out dancing.<\/p>","protected":false},"excerpt":{"rendered":"03\/22\/2015 NAME:\u00a0 Jane \u00a0\u00a0AGE: 61 COUNTRY: United States LGMD Sub-Type: […]<\/p>","protected":false},"author":1,"featured_media":383,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13],"tags":[16,32],"class_list":["post-421","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","tag-united-states","tag-unkown"],"acf":[],"yoast_head":"\n
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<\/a><\/p>\n