content<\/p>","protected":false},"featured_media":9609,"template":"","meta":{"_acf_changed":false},"class_list":["post-9463","individual-spotlight","type-individual-spotlight","status-publish","has-post-thumbnail","hentry"],"acf":{"first_name":"Tell","last_name":"Ingersoll","photo":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/gravity_forms\/11-c36c6c8e4215414f83996efbb5184e12\/2026\/05\/IMG_4101.jpeg","age":"26","country":"United States","lgmd_subtype_if_known":"LGMD 2C \/ LGMD R5 y-sarcoglycan-related","lgmd_subtype_other":"","at_what_age_were_you_diagnosed":"9","what_were_your_first_symptoms":"My body was always hurting","do_you_have_other_family_members_who_have_lgmd":"No","greatest_challenges_in_living_with_lgmd":"The greatest challenges are the gradual loss of strength and independence, and adapting to changes in mobility over time. Everyday tasks that used to be simple now require planning, support, or adaptive equipment. There\u2019s also the emotional side of learning to adjust while still trying to live fully and not let the condition define everything.","what_is_your_greatest_accomplishment":"My greatest accomplishment is continuing to live an active and meaningful life despite LGMD. I\u2019m building strong relationships, adapting to challenges, and maintaining my sense of purpose and humor through it all.","influence_the_person_you_are_today":"LGMD has made me more patient, resilient, and appreciative of the small victories in life. It\u2019s taught me to problem solve daily, advocate for myself, and value the people who truly show up and support me.","what_do_you_want_the_world_to_know_about_lgmd":"I want the world to understand that LGMD is often invisible at first, but it deeply impacts strength, mobility, and energy. People with LGMD are still capable, driven, and full of life. They just navigate the world differently and deserve accessibility, respect, and understanding.","first_thing_that_you_would_want_to_do":"I would want to experience freedom of movement again. Walk, travel more easily, and do everyday things without needing to think about limitations or fatigue. I would pick my son up and carry him. Be a \u201cnormal\u201d dad."},"yoast_head":"\n