Es ist sehr wichtig, dass Sie eine genetisch best\u00e4tigte LGMD-Diagnose erhalten! Wenn Ihr Arzt Ihnen sagt, dass Sie eine LGMD haben, dies aber nicht genetisch best\u00e4tigt, ist Ihre Diagnose unvollst\u00e4ndig.<\/p>\n
Knowing the exact form of LGMD or sub-type is important as there are health benefits for confirming an LGMD sub-type through genetic testing. As an example, some treatments like steroids will help patients with one type of LGMD and hurt patients with another type of LGMD, some sub-types can experience complications with the heart, breathing, and\/or with anesthesia. Knowing what type of LGMD that you suffer from will help you manage your health. Further, if you want to help researchers and physicians trying to find a cure for your disease by participating in clinical studies and trials, you will need genetic confirmation in order to participate.<\/p>\n
A confirmed genetic LGMD subtype will be a <\/span>requirement for participating in clinical trials <\/span>and accessing future treatments<\/span><\/p>\n<\/div><\/div><\/div><\/div><\/div>