{"id":1004,"date":"2015-09-08T10:17:31","date_gmt":"2015-09-08T15:17:31","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1004"},"modified":"2015-09-08T10:17:31","modified_gmt":"2015-09-08T15:17:31","slug":"shelley","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/09\/08\/shelley\/","title":{"rendered":"EINZELPERSON MIT LGMD: Shelley"},"content":{"rendered":"

09\/08\/2015<\/p>\n

 <\/p>\n

Name<\/strong>: Shelley ALTER: 50\"LGMD2A<\/a><\/p>\n

LAND<\/strong>: Kanada<\/p>\n

LGMD Unter-Typ<\/strong>: LGMD2A \/ Kalpainopathie<\/p>\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>:<\/p>\n

Die Diagnose wurde bei mir im Alter von 11 Jahren gestellt.<\/p>\n

Was waren Ihre ersten Symptome?<\/strong>:<\/p>\n

Zu meinen ersten Symptomen geh\u00f6rten das Gehen auf den Zehenspitzen und Schwierigkeiten beim Treppensteigen.<\/p>\n

Haben Sie andere Familienmitglieder, die LGMD haben?<\/strong><\/p>\n

Ja, alle meine Geschwister sind betroffen. Meine Schwester Michele und mein Bruder John haben beide LGMD2A.<\/p>\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>:<\/p>\n

Eine der gr\u00f6\u00dften Herausforderungen in meinen Zwanzigern war, dass ich k\u00f6rperlich geschw\u00e4cht und nicht in der Lage war, Kinder zu bekommen, zu geb\u00e4ren und das Kind auszutragen.<\/p>\n

Es war auch schwierig, trotz eines Universit\u00e4ts- und Hochschulabschlusses eine sinnvolle Besch\u00e4ftigung zu finden. Auch die Weigerung von Arbeitgebern und Arbeitnehmern, die Bed\u00fcrfnisse von Menschen mit Behinderungen zu verstehen, war eine Herausforderung.<\/p>\n

Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong>:<\/p>\n

Eine meiner gr\u00f6\u00dften Errungenschaften war das Schreiben meiner Memoiren \u00fcber das Leben mit LGMD und die Unterst\u00fctzung anderer bei der \u00dcberwindung ihrer Verschiedenheit. Auch der Abschluss der Universit\u00e4t war ein Erfolg.<\/p>\n

Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind?<\/strong><\/p>\n

Ich betrachte die Dinge, die ich tun kann, nicht als selbstverst\u00e4ndlich. Ich nutze meine Behinderung, um andere durch meine Memoiren und inspirierende Vortr\u00e4ge aufzukl\u00e4ren.<\/p>\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>:<\/p>\n

LGMD raubt den Betroffenen die Kraft ihrer willentlichen Muskeln, beeintr\u00e4chtigt aber nicht ihren Intellekt. Eine k\u00f6rperliche Behinderung kann sehr frustrierend sein, aber von anderen wegen einer Behinderung beurteilt zu werden, kann noch viel schlimmer sein.<\/p>\n

Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was w\u00fcrden Sie als Erstes tun wollen?<\/strong>:<\/p>\n

Ich zog ein Paar Eiskunstlaufschuhe an und lief stundenlang Schlittschuh. Als bei mir vor 39 Jahren die Diagnose gestellt wurde, waren meine Fersensehnen gedehnt (aufgrund der Entwicklung von Kontrakturen) und ich konnte nicht mehr eislaufen. Es brach mir das Herz!<\/p>\n

Wenn Sie weitere \"LGMD Spotlight Interviews\" lesen oder sich f\u00fcr ein Interview zur Verf\u00fcgung stellen m\u00f6chten, besuchen Sie bitte unsere Website: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

09\/08\/2015   Name:\u00a0 \u00a0 Shelley \u00a0\u00a0\u00a0AGE:\u00a0 50 COUNTRY: \u00a0\u00a0\u00a0Canada LGMD […]<\/p>","protected":false},"author":1,"featured_media":1005,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,38,15],"class_list":["post-1004","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-canada","tag-lgmd2a"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Shelley<\/title>\n<meta name=\"description\" content=\"Shelley, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/09\/08\/shelley\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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