{"id":1016,"date":"2015-09-22T08:01:32","date_gmt":"2015-09-22T13:01:32","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1016"},"modified":"2015-09-22T08:01:32","modified_gmt":"2015-09-22T13:01:32","slug":"binh","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/09\/22\/binh\/","title":{"rendered":"EINZELPERSON MIT LGMD: Binh"},"content":{"rendered":"

09\/22\/2015:<\/strong>\u00a0<\/strong><\/p>\n

NAME<\/strong>: B\u00ecnh \u00a0AGE<\/strong>: 30\"LGMD2A<\/a><\/p>\n

Land:<\/strong> Vietnam<\/p>\n

LGMD Unter-Typ<\/strong>: LGMD2A \/ Kalpainopathie<\/p>\n

 <\/p>\n

IN WELCHEM ALTER WURDEN SIE DIAGNOSTIZIERT?<\/strong>:<\/p>\n

Bei mir wurde LGMD diagnostiziert, als ich 14 Jahre alt war.<\/p>\n

WAS WAREN IHRE ERSTEN SYMPTOME? \u00a0<\/strong><\/p>\n

Ich hatte Schwierigkeiten beim Gehen, Laufen und Treppensteigen<\/p>\n

HABEN SIE ANDERE FAMILIENMITGLIEDER, DIE AN LGMD LEIDEN:\u00a0<\/strong><\/p>\n

Nein, ich bin die einzige Person in meiner Familie mit dieser Diagnose.<\/p>\n

WAS SIND F\u00dcR SIE DIE GR\u00d6SSTEN HERAUSFORDERUNGEN IM LEBEN MIT LGMD:\u00a0<\/strong><\/p>\n

Die gr\u00f6\u00dfte Herausforderung f\u00fcr mich ist, dass ich einige Dinge wie Gehen und Laufen nicht tun kann. Ich habe versucht, mein Gehirn zu kontrollieren, um genug Energie f\u00fcr die Aktivit\u00e4ten zu haben, die ich m\u00f6chte.<\/p>\n

WAS IST IHRE GR\u00d6SSTE ERRUNGENSCHAFT?<\/strong>:<\/p>\n

Eine meiner gr\u00f6\u00dften Errungenschaften ist, dass ich Familie, Freunde und Nachbarn habe, die mich ermutigen, ein recht optimistisches Leben zu f\u00fchren.<\/p>\n

WIE HAT LGMD SIE ZU DER PERSON GEMACHT, DIE SIE HEUTE SIND?\u00a0<\/strong><\/p>\n

Ich bin bereit, mich allen Herausforderungen zu stellen!<\/p>\n

WAS SOLL DIE WELT \u00dcBER LGMD WISSEN?\u00a0<\/strong><\/p>\n

Ich m\u00f6chte, dass die Welt wei\u00df, dass ein Heilmittel ben\u00f6tigt wird, um alle LGMD-Patienten zu behandeln und zu heilen \ud83d\ude42<\/p>\n

WENN IHRE LGMD MORGEN \"GEHEILT\" WERDEN K\u00d6NNTE, WAS W\u00dcRDEN SIE ALS ERSTES TUN WOLLEN?<\/strong>:<\/p>\n

Wenn ich morgen geheilt w\u00fcrde, w\u00fcrde ich rennen und alles tun, was ich nie tun konnte!<\/p>\n

Wenn Sie weitere \"LGMD Spotlight Interviews\" lesen oder sich f\u00fcr ein Interview zur Verf\u00fcgung stellen m\u00f6chten, besuchen Sie bitte unsere Website: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

09\/22\/2015:\u00a0 NAME: B\u00ecnh \u00a0AGE: 30 Country: Vietnam LGMD Sub-Type:\u00a0LGMD2A \/ […]<\/p>","protected":false},"author":1,"featured_media":1017,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[15,53],"class_list":["post-1016","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a","tag-vietnam"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Binh<\/title>\n<meta name=\"description\" content=\"Bihn, diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/09\/22\/binh\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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