{"id":1073,"date":"2016-01-07T14:39:41","date_gmt":"2016-01-07T20:39:41","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1073"},"modified":"2016-01-07T14:39:41","modified_gmt":"2016-01-07T20:39:41","slug":"janet","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/01\/07\/janet\/","title":{"rendered":"EINZELPERSON MIT LGMD: Janet"},"content":{"rendered":"

LGMD \"SPOTLIGHT INTERVIEW\" -\u00a0<\/strong>01\/07\/2016<\/p>\n

NAME<\/strong>: Janet \u00a0\u00a0AGE<\/strong>: 33 Jahre alt\"LGMD2B<\/a><\/p>\n

LAND<\/strong>: Vereinigte Staaten<\/p>\n

LGMD Unter-Typ<\/strong>: LGMD2B<\/p>\n

 <\/p>\n

IN WELCHEM ALTER WURDE BEI IHNEN DIE DIAGNOSE GESTELLT? <\/strong><\/p>\n

Im Alter von 17 Jahren wurde bei mir urspr\u00fcnglich Polymyositis fehldiagnostiziert, Jahre sp\u00e4ter, im Alter von 28 Jahren, wurde bei mir LGMD2B diagnostiziert.<\/p>\n

WAS WAREN IHRE ERSTEN SYMPTOME?<\/strong>:<\/p>\n

Ich fing an, Schwierigkeiten beim Treppensteigen, Laufen und Tanzen zu haben und konnte weder Fu\u00dfball noch andere Sportarten spielen.<\/p>\n

HABEN SIE ANDERE FAMILIENMITGLIEDER, DIE AN LGMD LEIDEN<\/strong>:<\/p>\n

Bis auf mich gibt es keine famili\u00e4re Vorgeschichte von LGMD.<\/p>\n

WAS SIND F\u00dcR SIE DIE GR\u00d6SSTEN HERAUSFORDERUNGEN IM LEBEN MIT LGMD<\/strong>:<\/p>\n

Der Verlust meiner Unabh\u00e4ngigkeit war sehr schwierig. Ich bin nicht mehr in der Lage, lange Strecken zu Fu\u00df zur\u00fcckzulegen. Ich brauche jetzt einen elektrischen Rollstuhl, um mich fortzubewegen. Ich bin nicht in der Lage, mich selbst\u00e4ndig um meine beiden Kinder, 2 Jahre und 3 Monate alt, zu k\u00fcmmern. Ich brauche jemanden, der mir bei der Betreuung der beiden hilft.<\/p>\n

WAS IST IHRE GR\u00d6SSTE ERRUNGENSCHAFT?<\/strong>:<\/p>\n

Meine gr\u00f6\u00dfte Errungenschaft ist die Akzeptanz meiner Krankheit. Ich habe mich mental auf den Umstieg auf einen elektrischen Rollstuhl vorbereitet, mit dem ich nun etwas leichter au\u00dferhalb meines Hauses unterwegs sein kann.<\/p>\n

WIE HAT LGMD SIE ZU DER PERSON GEMACHT, DIE SIE HEUTE SIND<\/strong>:<\/p>\n

Ich bin ein viel st\u00e4rkerer Mensch geworden. Trotz der Hindernisse, die mit meiner Erkrankung einhergehen, geht das Leben weiter, und ich habe und werde das Beste daraus f\u00fcr mich und meine Familie machen.<\/p>\n

WAS SOLL DIE WELT \u00dcBER LGMD WISSEN?<\/strong>:<\/p>\n

Es ist eine seltene Krankheit, aber es gibt sie, und es ist wichtig, das Bewusstsein daf\u00fcr zu sch\u00e4rfen, damit Behandlungen und eine Heilung gefunden werden k\u00f6nnen.<\/p>\n

WENN IHRE LGMD MORGEN \"GEHEILT\" WERDEN K\u00d6NNTE, WAS W\u00c4RE DAS ERSTE, WAS SIE TUN W\u00dcRDEN<\/strong>:<\/p>\n

Ich w\u00fcrde auf meine Kinder zulaufen und sie in die Luft heben!<\/p>\n

 <\/p>\n

Wenn Sie weitere \"LGMD Spotlight-Interviews\" lesen oder sich f\u00fcr ein bevorstehendes Interview zur Verf\u00fcgung stellen m\u00f6chten, besuchen Sie bitte unsere Website unter: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u201d \u00a0–\u00a001\/07\/2016 NAME: Janet \u00a0\u00a0AGE: \u00a033 yrs. old […]<\/p>","protected":false},"author":1,"featured_media":1074,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[23,16],"class_list":["post-1073","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-lgmd2b","tag-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Janet - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/01\/07\/janet\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Janet - 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