{"id":1176,"date":"2016-04-08T12:01:28","date_gmt":"2016-04-08T17:01:28","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1176"},"modified":"2016-04-08T12:01:28","modified_gmt":"2016-04-08T17:01:28","slug":"mary","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/04\/08\/mary\/","title":{"rendered":"EINZELPERSON MIT LGMD: Maria"},"content":{"rendered":"<p>08.04.2016 - LGMD \"Spotlight Interview\"<\/p>\n<p><strong>NAME<\/strong>:  Maria\u00a0\u00a0 <strong>Alter<\/strong>: 46<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2016\/04\/LGMD2A-Mary-BG.png\" rel=\"attachment wp-att-1177\"><img decoding=\"async\" class=\"lazyload size-medium wp-image-1177 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2016\/04\/LGMD2A-Mary-BG-300x169.png\" alt=\"LGMD2A - Mary BG\" width=\"300\" height=\"169\" \/><\/a><\/p>\n<p><strong>LAND<\/strong>: Vereinigte Staaten<\/p>\n<p><strong>LGMD Unter-Typ<\/strong>: LGMD2A \/ Kalpainopathie<\/p>\n<p>&nbsp;<\/p>\n<p><strong>In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>:<\/p>\n<p>Bei mir wurde LGMD diagnostiziert, als ich 25 Jahre alt war.<\/p>\n<p><strong>Was waren Ihre ersten Symptome?<\/strong>:<\/p>\n<p>Meine ersten Symptome waren, dass ich mich nicht aus einer sitzenden Position erheben konnte, ohne meine Arme als St\u00fctze zu benutzen, und dass ich Schwierigkeiten beim Treppensteigen hatte.<\/p>\n<p><strong>Haben Sie andere Familienmitglieder, die LGMD haben?<\/strong><\/p>\n<p>Nein, ich bin das einzige Familienmitglied, bei dem jemals LGMD diagnostiziert wurde.<\/p>\n<p><strong>Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>:<\/p>\n<p>Die gr\u00f6\u00dfte Herausforderung f\u00fcr mich ist der Versuch, bei den t\u00e4glichen Aktivit\u00e4ten unabh\u00e4ngig zu bleiben.  Die Krankheit schreitet langsam voran, aber es ist schwer, sich daran zu gew\u00f6hnen, dass man nicht mehr in der Lage ist, das zu tun, was man fr\u00fcher tun konnte.<\/p>\n<p><strong>Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong>:<\/p>\n<p>Meine gr\u00f6\u00dfte Errungenschaft war die Heirat mit meinem Mann. Im Jahr 2014 wurde ich Witwe.  Er war einer meiner gr\u00f6\u00dften Unterst\u00fctzer.  Er hat mich dazu inspiriert, die beste Person zu sein, die ich sein kann.  Meine Familie und Freunde sind ermutigend und eine gro\u00dfe Unterst\u00fctzung.<\/p>\n<p><strong>Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind?<\/strong><\/p>\n<p>Ich sehe nichts als selbstverst\u00e4ndlich an.  Jeder Tag ist ein Geschenk - manche besser als andere.  Ich bin kontaktfreudiger geworden, als meine Mobilit\u00e4t eingeschr\u00e4nkt wurde, denn ich m\u00f6chte trotz meiner Diagnose das Leben erleben und aktiv sein.<\/p>\n<p><strong>Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>:<\/p>\n<p>LGMD ist eine Krankheit mit Muskelschwund.<\/p>\n<p>Helfen Sie denen, die Sie k\u00f6nnen, bilden Sie sich weiter und behandeln Sie jeden mit Respekt.<\/p>\n<p><strong>Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was w\u00fcrden Sie als Erstes tun wollen?<\/strong>:<\/p>\n<p>Wenn morgen ein Heilmittel gefunden w\u00fcrde, w\u00fcrde ich rennen, tanzen und springen!  All die Dinge, die ich k\u00f6rperlich nicht mehr tun kann, h\u00e4tten oberste Priorit\u00e4t!<\/p>\n<p>&nbsp;<\/p>\n<p>Wenn Sie weitere \"LGMD Spotlight-Interviews\" lesen oder sich f\u00fcr ein bevorstehendes Interview zur Verf\u00fcgung stellen m\u00f6chten, besuchen Sie bitte unsere Website unter: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/p>","protected":false},"excerpt":{"rendered":"<p>04\/08\/2016 &#8211;\u00a0LGMD \u201cSpotlight Interview\u201d NAME:\u00a0 Mary\u00a0\u00a0 Age: 46 COUNTRY: United [&hellip;]<\/p>","protected":false},"author":1,"featured_media":1177,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,15,16],"class_list":["post-1176","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-lgmd2a","tag-united-states"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - 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