{"id":1192,"date":"2016-04-30T08:00:30","date_gmt":"2016-04-30T13:00:30","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1192"},"modified":"2016-04-30T08:00:30","modified_gmt":"2016-04-30T13:00:30","slug":"rebecca","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/04\/30\/rebecca\/","title":{"rendered":"EINZELPERSON MIT LGMD: Rebecca"},"content":{"rendered":"<p><strong>04\/30\/2016 \u00a0<\/strong><strong>LGMD \"Spotlight Interview\"<\/strong><\/p>\n<p>&nbsp;<\/p>\n<p><strong>NAME<\/strong>:  Rebecca\u00a0\u00a0\u00a0 <strong>AGE<\/strong>: 29 Jahre alt<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2016\/04\/LGMD2A-Becc.png\"><img decoding=\"async\" class=\"lazyload size-medium wp-image-1193 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2016\/04\/LGMD2A-Becc-300x169.png\" alt=\"LGMD2A - Becc\" width=\"300\" height=\"169\" \/><\/a><\/p>\n<p><strong>LAND<\/strong>:  Australien<\/p>\n<p><strong>LGMD Unter-Typ<\/strong>:   LGMD2A \/ Kalpainopathie<\/p>\n<p>&nbsp;<\/p>\n<p><strong>In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>:<\/p>\n<p>Bei mir wurde LGMD2A diagnostiziert, als ich 26 Jahre alt war.<\/p>\n<p><strong>Was waren Ihre ersten Symptome?<\/strong>:<\/p>\n<p>Zu meinen ersten Symptomen geh\u00f6rten: Schwierigkeiten beim Treppensteigen und bei Steigungen sowie die Unf\u00e4higkeit, aufzustehen, ohne meine H\u00e4nde zu benutzen.<\/p>\n<p><strong>Haben Sie andere Familienmitglieder, die LGMD haben?<\/strong><\/p>\n<p>Ich bin der Einzige von 4.<\/p>\n<p><strong>Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>:<\/p>\n<p>Die gr\u00f6\u00dfte Herausforderung ist f\u00fcr mich der Kampf gegen die M\u00fcdigkeit.  Es kann wirklich schwierig werden, ein Gleichgewicht zwischen zu viel und zu wenig zu finden.  Ich habe festgestellt, dass ich mich im Grunde jedes Jahr an Ver\u00e4nderungen anpasse.  Es ist auch eine Herausforderung, nicht so streng mit mir selbst zu sein, wenn ich sehe, dass andere etwas tun, was ich nicht tun kann.  Es kann eine Herausforderung sein, um Hilfe zu bitten, wenn ich eine Aufgabe nicht allein bew\u00e4ltigen kann.  Schmerzen - Ich kann mich nicht daran erinnern, wann ich das letzte Mal aufgewacht bin und keine Schmerzen, kein Unbehagen und kein Gef\u00fchl der Schw\u00e4che versp\u00fcrt habe.<\/p>\n<p><strong>Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong>:<\/p>\n<p>Meine Tochter ist 10 Jahre alt und sie ist meine gr\u00f6\u00dfte Errungenschaft.  Ich mag in manchen Dingen des Lebens nicht gut sein, aber ich kann ehrlich sagen, dass ich die beste Mutter bin!  Sie ist mein Leben.  Und w\u00e4hrend sie heranw\u00e4chst, f\u00e4ngt sie an, sich in mehr als einer Hinsicht um mich zu k\u00fcmmern.<\/p>\n<p><strong>Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind?<\/strong><\/p>\n<p>Ich werde vielleicht k\u00f6rperlich schw\u00e4cher, aber geistig bin ich st\u00e4rker geworden.<\/p>\n<p><strong>Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>:<\/p>\n<p>Das bedeutet, dass alles, was Sie wissen, wegf\u00e4llt.<\/p>\n<p>Ich m\u00f6chte auch, dass sie von der Coalition to Cure Calpain 3 erfahren - der Organisation, die sich auf die Suche nach einem Heilmittel und einer Behandlung f\u00fcr LGMD2A konzentriert.<\/p>\n<p><strong>Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was w\u00fcrden Sie als Erstes tun wollen?<\/strong>:<\/p>\n<p>Wenn ich morgen \"geheilt\" w\u00e4re, w\u00fcrde ich mit meiner Familie ausgehen, ohne Einschr\u00e4nkungen.  Ich w\u00fcrde mit meiner Tochter herumlaufen und 100 Treppen steigen.<\/p>\n<p>Wenn Sie weitere \"LGMD Spotlight Interviews\" lesen oder sich f\u00fcr ein Interview zur Verf\u00fcgung stellen m\u00f6chten, besuchen Sie bitte unsere Website:\u00a0 <a href=\"https:\/\/www.lgmd-info.org\/de\/spotlight-interviews\/\">https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>04\/30\/2016 \u00a0LGMD \u201cSpotlight Interview\u201d &nbsp; NAME:\u00a0 Rebecca\u00a0\u00a0\u00a0 AGE: 29 years [&hellip;]<\/p>","protected":false},"author":1,"featured_media":1193,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[51,12,15],"class_list":["post-1192","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-australia","tag-calpainopathy","tag-lgmd2a"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - 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