{"id":1195,"date":"2016-05-14T12:19:56","date_gmt":"2016-05-14T17:19:56","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1195"},"modified":"2016-05-14T12:19:56","modified_gmt":"2016-05-14T17:19:56","slug":"dave","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/","title":{"rendered":"EINZELPERSON MIT LGMD: Dave"},"content":{"rendered":"

05\/14\/2016:<\/p>\n

LGMD \"Spotlight Interview\"<\/p>\n

Name<\/strong>: Dave\u00a0\u00a0\u00a0 Alter<\/strong>: 27 Jahre alt\"LGMD2A<\/a><\/p>\n

Land<\/strong>: Australien<\/p>\n

LGMD Unter-Typ<\/strong>: LGMD 2A \/ Kalpainopathie<\/p>\n

 <\/p>\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>:<\/p>\n

Ich glaube, die Diagnose wurde bei mir im Alter von 14 Jahren gestellt, aber ich wei\u00df, dass es w\u00e4hrend meiner Schulzeit war.<\/p>\n

Was waren Ihre ersten Symptome?<\/strong>:<\/p>\n

Jeden Samstag ging ich zum Golfspielen, und wenn ich nach Hause kam, musste ich mich erst einmal ein paar Stunden hinlegen. Der ganze K\u00f6rper tat mir weh. Also ging meine Mutter mit mir zum Arzt, um herauszufinden, warum ich st\u00e4ndig m\u00fcde war.<\/p>\n

Haben Sie andere Familienmitglieder, die LGMD haben? <\/strong><\/p>\n

Ich bin das einzige Mitglied meiner Familie, das irgendeine Form von Muskeldystrophie hat.<\/p>\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>:<\/p>\n

Das gr\u00f6\u00dfte Problem, das ich hatte, war, den Leuten (Familie, Freunden und Fremden) meine Muskeldystrophie zu erkl\u00e4ren, ohne dass sie mir ganz glauben wollten. Sie dachten, ich sei nur m\u00fcde, weil ich faul war.<\/p>\n

Ich verbrachte eine Nacht im Krankenhaus mit massiven Kr\u00e4mpfen in meinem Bein, die ich nicht beruhigen konnte. Ich konnte 3 Wochen lang nicht richtig gehen und musste immer noch unter Schmerzen arbeiten. Ich hatte schon immer ein Problem mit Treppen und dem Tragen von schweren Gegenst\u00e4nden \u00fcber l\u00e4ngere Zeitr\u00e4ume hinweg.<\/p>\n

Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong>:<\/p>\n

Meine gr\u00f6\u00dfte Errungenschaft ist die Heirat mit meiner Frau Rebecca im Februar dieses Jahres. Sie ist zu meiner St\u00e4rke und Motivation geworden, weiterzumachen. Ich bin Lkw-Fahrer in der zweiten Generation in Australien und darauf bin ich sehr stolz! Allerdings ist mein Beruf manchmal ziemlich anstrengend und fordert seinen Tribut von mir. Meine Frau Rebecca hilft mir, das alles durchzustehen. Sie ist meine Wunderfrau.<\/p>\n

Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind?<\/strong><\/p>\n

Ich habe gelernt, den Menschen zuzuh\u00f6ren, wenn sie \u00fcber ihren Zustand sprechen. Ich habe auf Facebook viele tolle Freunde gefunden, mit denen ich in Kontakt bleibe. Ich h\u00f6re mir ihre Sorgen und Probleme an und bitte sie auch um Rat. Vor allem habe ich gelernt, dass es in Ordnung ist, um Hilfe zu bitten, wenn ich sie brauche - anstatt zu versuchen, alles allein zu schaffen.<\/p>\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>:<\/p>\n

Ich m\u00f6chte, dass die Welt wei\u00df, dass es Gliederg\u00fcrtelmuskeldystrophie gibt!!! Es ist unglaublich, wie oft ich den Leuten meinen Zustand erkl\u00e4ren musste und sie mir fast nicht glauben. Sie verstehen nicht, dass meine LGMD nicht durch den Besuch eines Fitnessstudios geheilt werden kann. Es gibt keine Heilung oder Behandlung f\u00fcr LGMD. Wir haben keine Kontrolle \u00fcber unseren Zustand, er ist ein Teil von uns....ein Teil, mit dem wir k\u00e4mpfen, aber er macht uns zu dem, was wir sind.<\/p>\n

Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was w\u00fcrden Sie als Erstes tun wollen?<\/strong>:<\/p>\n

Mein pers\u00f6nliches Ziel, abgesehen davon, dass ich eine Familie.... habe, w\u00e4re es, wieder Basketball zu spielen. Ich habe es als Kind geliebt. Ich w\u00fcrde auf jeden Fall wieder auf den Platz gehen und so lange laufen, wie ich kann.<\/p>\n

 <\/p>\n

Wenn Sie weitere \"LGMD Spotlight-Interviews\" lesen oder sich f\u00fcr ein bevorstehendes Interview zur Verf\u00fcgung stellen m\u00f6chten, besuchen Sie bitte unsere Website unter: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/p>","protected":false},"excerpt":{"rendered":"

05\/14\/2016: LGMD \u201cSpotlight Interview\u201d Name:\u00a0 Dave\u00a0\u00a0\u00a0 Age: \u00a027 yrs. old […]<\/p>","protected":false},"author":1,"featured_media":1196,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[51,12,15],"class_list":["post-1195","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-australia","tag-calpainopathy","tag-lgmd2a"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Dave - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Dave - 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