{"id":1315,"date":"2016-09-02T08:01:44","date_gmt":"2016-09-02T13:01:44","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1315"},"modified":"2016-09-02T08:01:44","modified_gmt":"2016-09-02T13:01:44","slug":"melanie-2","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/02\/melanie-2\/","title":{"rendered":"EINZELPERSON MIT LGMD: Melanie"},"content":{"rendered":"

LGMD Spotlight Interview -\u00a0<\/strong>09\/02\/2016<\/strong><\/p>\n

\u00a0<\/strong><\/p>\n

Name<\/strong>: Melanie\u00a0 Alter<\/strong>: 29 Jahre alt\"LGMD2i<\/a><\/p>\n

Land<\/strong>: Deutschland<\/p>\n

LGMD Unter-Typ<\/strong> : LGMD2i (heterozygoter Typ)<\/p>\n

 <\/p>\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>:<\/p>\n

Die Diagnose wurde bei mir im Alter von 4 Jahren durch eine Muskelbiopsie gestellt.<\/p>\n

Was waren Ihre ersten Symptome?<\/strong>:<\/p>\n

Ich bin immer gest\u00fcrzt, wenn ich versucht habe, zu laufen oder die Treppe zu nehmen. Das f\u00fchrte zu vielen blauen Flecken und Narben! Au\u00dferdem konnte ich mich nicht selbst\u00e4ndig vom Boden erheben. Diese Symptome traten bereits im Alter von 2 Jahren auf.<\/p>\n

Haben Sie andere Familienmitglieder, die LGMD haben?<\/strong><\/p>\n

Nein, ich bin der einzige in meiner Familie mit LGMD.<\/p>\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>:<\/p>\n

Die gr\u00f6\u00dfte Herausforderung besteht darin, den Menschen klar zu machen, dass ich nicht zu faul bin, um allt\u00e4gliche Aufgaben zu erledigen, sondern dass ich zu schwach bin, um sie selbst zu erledigen. Eine weitere Herausforderung f\u00fcr viele von uns ist es, einen Rollstuhl als besten Freund zu akzeptieren!<\/p>\n

Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong>:<\/p>\n

Es gibt viel zu viele Errungenschaften! Ein gutes Leben mit LGMD zu f\u00fchren, ist schon eine Leistung an sich! Auf meinem Blog (www.littlemissturtle.com<\/a>) Ich schreibe \u00fcber alle meine Errungenschaften und Abenteuer auf R\u00e4dern.<\/p>\n

Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind?<\/strong><\/p>\n

Ich bin mit LGMD aufgewachsen. Das hat mich zu einem sehr starken Menschen gemacht. Mit einer fortschreitenden Krankheit, die Muskelschw\u00e4che und -schwund verursacht, umzugehen und sich dessen bewusst zu sein, ist eine anspruchsvolle Herausforderung, die ich jeden Tag meines Lebens zu sch\u00e4tzen wei\u00df! Vor kurzem habe ich aufgeh\u00f6rt zu arbeiten, um mehr Zeit f\u00fcr all die Dinge zu haben, die ich liebe. LGMD hat mich gelehrt, die Dinge auf die leichte Schulter zu nehmen. Mehr genie\u00dfen, sich weniger Sorgen machen, positiv bleiben und so viel Zeit wie m\u00f6glich mit lieben Menschen verbringen. Das ist mein Weg!<\/p>\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>:<\/p>\n

LGMD ist eine seltene und schwierige Krankheit. Sie kann nicht mit anderen Krankheiten wie Multiple Sklerose (MS) usw. verglichen werden. Es ist wichtig, einer Person mit LGMD ganz zuzuh\u00f6ren, wenn sie um Hilfe bittet - um sie nicht zu verletzen.<\/p>\n

Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was w\u00fcrden Sie als Erstes tun wollen?<\/strong>:<\/p>\n

Ich stand allein aus dem Bett auf, zog mich an und machte dann den Spaziergang meines Lebens! Ich w\u00fcrde so lange laufen, wie mich meine F\u00fc\u00dfe tragen w\u00fcrden.<\/p>\n

Wenn Sie weitere \"LGMD Spotlight Interviews\" lesen oder sich f\u00fcr ein Interview zur Verf\u00fcgung stellen m\u00f6chten, besuchen Sie bitte unsere Website: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD Spotlight interview –\u00a009\/02\/2016 \u00a0 Name:\u00a0 Melanie\u00a0 Age:\u00a0 29 yrs. 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