{"id":1325,"date":"2016-09-16T09:00:17","date_gmt":"2016-09-16T14:00:17","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1325"},"modified":"2016-09-16T09:00:17","modified_gmt":"2016-09-16T14:00:17","slug":"scott","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/","title":{"rendered":"EINZELPERSON MIT LGMD: Scott"},"content":{"rendered":"

LGMD \"SPOTLIGHT INTERVIEW\"<\/strong><\/p>\n

Name<\/strong>: Scott\u00a0 Alter<\/strong>: 48 Jahre alt\"LGMD2L<\/a><\/p>\n

Land<\/strong>: Vereinigte Staaten<\/p>\n

LGMD Unter-Typ<\/strong>: LGMD 2L - auch bekannt als Anoktaminopathie<\/p>\n

\u00a0<\/strong><\/p>\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>:<\/p>\n

Obwohl meine MD vor etwa 15 Jahren begann, wurde bei mir vor kurzem endlich MD Typ 2L diagnostiziert. Bis jetzt wurde ich von den \u00c4rzten nur dar\u00fcber informiert, dass es sich um LGMD handelt.<\/p>\n

Was waren Ihre ersten Symptome?<\/strong>:<\/p>\n

Ich begann, Schwierigkeiten beim Treppensteigen und Laufen zu haben.<\/p>\n

Haben Sie andere Familienmitglieder, die LGMD haben? <\/strong><\/p>\n

Nein<\/p>\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>:<\/p>\n

Ich war schon immer ein unabh\u00e4ngiger Mensch. Da ich ein Einzelkind bin, habe ich immer alles allein gemacht. In letzter Zeit musste ich mich mehr und mehr auf Familie und Freunde verlassen. Au\u00dferdem macht es mich verr\u00fcckt, wie lange ich jetzt brauche, um Dinge zu erledigen.<\/p>\n

Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong>:<\/p>\n

Ich bin stolz darauf, dass ich das College abgeschlossen und meinen Abschluss gemacht habe.<\/p>\n

Au\u00dferdem bin ich froh, dass ich 30 Jahre lang f\u00fcr dasselbe Unternehmen gearbeitet habe, bevor ich wegen meiner Probleme mit MD k\u00fcndigen musste.<\/p>\n

Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind? <\/strong><\/p>\n

Ich bin immer noch dabei, Geduld zu entwickeln. Ich bin stolz darauf, Aufgaben zu erledigen, die ich fr\u00fcher f\u00fcr selbstverst\u00e4ndlich hielt.<\/p>\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>:<\/p>\n

Bitte unterst\u00fctzen Sie weiterhin lokale und nationale MD-Wohlt\u00e4tigkeitsorganisationen, sei es finanziell oder durch ehrenamtliche Arbeit f\u00fcr Bed\u00fcrftige. Wir wissen das sehr zu sch\u00e4tzen.<\/p>\n

Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was w\u00fcrden Sie als Erstes tun wollen?<\/strong>:<\/p>\n

An einem meiner \u00f6rtlichen Str\u00e4nde ohne fremde Hilfe am Meer spazieren gehen.<\/p>\n

 <\/p>\n

Wenn Sie weitere \"LGMD Spotlight Interviews\" lesen oder sich f\u00fcr ein Interview zur Verf\u00fcgung stellen m\u00f6chten, besuchen Sie bitte unsere Website: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

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