{"id":1335,"date":"2016-09-27T10:02:53","date_gmt":"2016-09-27T15:02:53","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1335"},"modified":"2016-09-27T10:02:53","modified_gmt":"2016-09-27T15:02:53","slug":"kelci","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/","title":{"rendered":"EINZELPERSON MIT LGMD: Kelci"},"content":{"rendered":"

LGMD \"Spotlight-Interview\"<\/strong><\/p>\n

Name<\/strong>: Kelci \u00a0\u00a0Alter<\/strong>: 23 Jahre alt\"lgmd2j-kelci\"<\/a><\/p>\n

Land<\/strong>: Australien<\/p>\n

LGMD Unter-Typ<\/strong> (falls bekannt): LGMD2J - Titinopathie<\/p>\n

 <\/p>\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>:<\/p>\n

Ich wurde erst k\u00fcrzlich im Alter von 23 Jahren diagnostiziert.<\/p>\n

Was waren Ihre ersten Symptome?<\/strong>:<\/p>\n

Zuerst bemerkte ich, dass ich bewusst dar\u00fcber nachdenken musste, ob ich auf den B\u00fcrgersteig oder auf einen Vorsprung steigen sollte. Dann bemerkte ich, dass das Treppensteigen immer schwieriger wurde, ebenso wie das Gehen von Strecken.<\/p>\n

Haben Sie andere Familienmitglieder, die LGMD haben? <\/strong><\/p>\n

Ja, ein Geschwisterteil schon.<\/p>\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>:<\/p>\n

Die gr\u00f6\u00dfte Herausforderung im Leben mit LGMD besteht darin, dass mir allt\u00e4gliche Aktivit\u00e4ten wie Gehen oder Treppensteigen schwer fallen, da ich mir dar\u00fcber fr\u00fcher keine Gedanken gemacht habe. Eine weitere Herausforderung f\u00fcr mich ist, dass ich eine seltene Form der Muskeldystrophie habe, denn es gibt kaum Informationen, auf die ich mich beziehen oder vorhersagen kann, was passieren k\u00f6nnte.<\/p>\n

Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong>:<\/p>\n

LGMD ist noch sehr neu f\u00fcr mich, da ich erst vor 3 Monaten diagnostiziert wurde. Ich versuche immer noch, mich darauf einzustellen und herauszufinden, was das Leben mit LGMD f\u00fcr meine Zukunft bedeuten wird. Meine gr\u00f6\u00dfte Errungenschaft ist, dass ich einfach gelernt habe, positiv zu bleiben und die Muskeldystrophie in mein Leben zu integrieren.<\/p>\n

Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind? <\/strong><\/p>\n

Ich glaube, ich habe gelernt, nichts als selbstverst\u00e4ndlich anzusehen und zu sch\u00e4tzen, was man hat, solange man es hat. Es ist so wichtig, positiv zu bleiben!<\/p>\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>:<\/p>\n

Ich denke, es ist wichtig zu erkennen, dass wir immer noch dieselbe Person sind, die wir einmal waren. Die Menschen sollten auch wissen, dass nicht jeder Tag f\u00fcr jemanden mit LGMD gleich ist. An manchen Tagen geht es uns besser als an anderen, und was wir an einem Tag tun k\u00f6nnen, k\u00f6nnen wir am n\u00e4chsten vielleicht nicht mehr tun.<\/p>\n

 <\/p>\n

 <\/p>\n

Wenn Sie weitere \"LGMD Spotlight-Interviews\" lesen oder sich f\u00fcr ein Interview zur Verf\u00fcgung stellen m\u00f6chten, besuchen Sie bitte unsere Website unter: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/p>","protected":false},"excerpt":{"rendered":"

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