{"id":1477,"date":"2017-06-28T11:48:16","date_gmt":"2017-06-28T16:48:16","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1477"},"modified":"2017-06-28T11:48:16","modified_gmt":"2017-06-28T16:48:16","slug":"1477","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2017\/06\/28\/1477\/","title":{"rendered":"EINZELPERSON MIT LGMD: Amanda"},"content":{"rendered":"<p>LGMD SPOTLIGHT INTERVIEW<\/p>\n<p><strong>N<\/strong><strong>ame<\/strong>:      Amanda\u00a0\u00a0 \u00a0\u00a0\u00a0<strong>Alter<\/strong>: 34<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2017\/06\/LGMD2C-Amanda.png\"><img decoding=\"async\" class=\"lazyload size-medium wp-image-1476 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2017\/06\/LGMD2C-Amanda-300x169.png\" alt=\"\" width=\"300\" height=\"169\" \/><\/a><\/p>\n<p><strong>Land<\/strong>:  Kanada<\/p>\n<p><strong>LG<\/strong><strong>M<\/strong><strong>D Unter-Typ<\/strong>: <u>\u00a0LGMD2C\u00a0<\/u><!--more--><\/p>\n<p>&nbsp;<\/p>\n<p><strong>A<\/strong><strong>IN WELCHEM ALTER WURDE BEI IHNEN DIE DIAGNOSE GESTELLT?<\/strong>:<\/p>\n<p>Die Diagnose wurde bei mir im Alter von 9 Jahren gestellt.<\/p>\n<p><strong>W<\/strong><strong>AS WAREN IHRE ERSTEN SYMPTOME<\/strong>:<\/p>\n<p>Ich bin auf den Zehenspitzen gelaufen und als Kind oft unerwartet gest\u00fcrzt - mit der Zeit f\u00fchlte sich mein K\u00f6rper schwer an<\/p>\n<p><strong>HABEN SIE ANDERE FAMILIENMITGLIEDER, DIE AN LGMD LEIDEN:\u00a0\u00a0 <\/strong><\/p>\n<p>Nein - nur ich!<\/p>\n<p><strong>W<\/strong><strong>AS SIND IHRER MEINUNG NACH DIE GR\u00d6SSTEN HERAUSFORDERUNGEN IM LEBEN MIT LGMD<\/strong>:<\/p>\n<p>Zu verschiedenen Zeiten in meinem Leben habe ich mich eher als Zuschauerin gef\u00fchlt<\/p>\n<p>Sich auf andere Menschen verlassen<\/p>\n<p><strong>WIE HAT LGMD SIE ZU DER PERSON GEMACHT, DIE SIE HEUTE SIND? <\/strong><\/p>\n<p>Sie hat den Schwerpunkt auf Dankbarkeit und auf die Bedeutung der Perspektive gelegt. Dinge halten mich nicht mehr auf oder beeinflussen mich nicht mehr so wie andere - ich w\u00fcrde das dem Umgang mit LGMD zuschreiben<\/p>\n<p><strong>W<\/strong><strong>AS SOLL DIE WELT \u00dcBER LGMD ERFAHREN?<\/strong>:<\/p>\n<p>Ich m\u00f6chte, dass die Welt erf\u00e4hrt, dass LGMD sich auf alle Bereiche des Lebens eines Menschen auswirkt.  Trotz der Tatsache, dass die meisten Menschen, die gut angepasst und produktiv sind, es leicht aussehen lassen.<\/p>\n<p><strong>I<\/strong><strong>WENN IHRE LGMD MORGEN \"GEHEILT\" WERDEN K\u00d6NNTE, WAS W\u00dcRDEN SIE ALS ERSTES TUN WOLLEN?<\/strong>:<\/p>\n<p>Wenn LGMD morgen geheilt w\u00e4re, w\u00fcrde ich aufstehen, meine Familie mit beiden Armen umarmen und Tr\u00e4nen der Freude weinen!<\/p>\n<p>&nbsp;<\/p>\n<p>Wenn Sie weitere \"LGMD Spotlight Interviews\" lesen oder sich f\u00fcr ein Interview zur Verf\u00fcgung stellen m\u00f6chten, besuchen Sie bitte unsere Website: <a href=\"https:\/\/www.lgmd-info.org\/de\/spotlight-interviews\/\">https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>LGMD SPOTLIGHT INTERVIEW Name:\u00a0 \u00a0\u00a0\u00a0\u00a0Amanda\u00a0\u00a0 \u00a0\u00a0\u00a0Age: 34 Country: \u00a0Canada LGMD [&hellip;]<\/p>","protected":false},"author":1,"featured_media":1476,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,75],"tags":[76],"class_list":["post-1477","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2c","tag-lgmd2c-canada"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - 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