{"id":1529,"date":"2017-08-08T08:00:34","date_gmt":"2017-08-08T13:00:34","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1529"},"modified":"2017-08-08T08:00:34","modified_gmt":"2017-08-08T13:00:34","slug":"ben","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2017\/08\/08\/ben\/","title":{"rendered":"EINZELPERSON MIT LGMD: Ben"},"content":{"rendered":"

LGMD \"SPOTLIGHT INTERVIEW\"<\/strong><\/p>\n

\u00a0<\/strong><\/p>\n

Name<\/strong>: Ben\u00a0 Alter<\/strong>: 23 Jahre alt\"\"<\/a><\/p>\n

Land<\/strong>: Hongkong<\/p>\n

LGMD Unter-Typ<\/strong>: LGMD2A \/ Kalpainopathie<\/p>\n

 <\/p>\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>:<\/p>\n

Die Diagnose wurde bei mir im Alter von 21 Jahren gestellt.<\/p>\n

Was waren Ihre ersten Symptome?<\/strong>:<\/p>\n

Ich entwickelte beidseitige Fersenbandkontrakturen, die zu Zehengang f\u00fchrten.<\/p>\n

Haben Sie andere Familienmitglieder, die LGMD haben?<\/strong><\/p>\n

Mein Bruder zeigt \u00e4hnliche Symptome, aber er hat noch keine offizielle Diagnose erhalten.<\/p>\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>:<\/p>\n

Im Moment sind die gr\u00f6\u00dften Herausforderungen f\u00fcr mich die Schwierigkeiten beim Treppensteigen und beim Zur\u00fccklegen langer Strecken.<\/p>\n

Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong>:<\/p>\n

Ich lasse nicht zu, dass diese Krankheit mein Studium beeintr\u00e4chtigt.<\/p>\n

Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind?<\/strong><\/p>\n

Die LGMD hat mich st\u00e4rker gemacht, ich habe einen starken Willen und Durchhalteverm\u00f6gen.<\/p>\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>:<\/p>\n

Ich m\u00f6chte, dass die Welt erf\u00e4hrt, dass LGMD Menschen in jedem Alter treffen kann - Kinder, Jugendliche, junge Erwachsene und Erwachsene. Es ist wichtig, dass mehr Menschen \u00fcber LGMD Bescheid wissen.<\/p>\n

Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was w\u00fcrden Sie als Erstes tun wollen?<\/strong>:<\/p>\n

Wenn meine LGMD morgen geheilt werden k\u00f6nnte, w\u00fcrde ich als Erstes einige sportliche Aktivit\u00e4ten aus\u00fcben wollen, da mich die LGMD derzeit daran hindert.<\/p>\n

 <\/p>\n

**** Um weitere \"LGMD Spotlight Interviews\" zu lesen oder sich f\u00fcr ein Interview zur Verf\u00fcgung zu stellen, besuchen Sie bitte unsere Website unter: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u201d \u00a0 Name:\u00a0 Ben\u00a0 Age:\u00a0 23 yrs. old […]<\/p>","protected":false},"author":1,"featured_media":1530,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[79],"class_list":["post-1529","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-hong-kong"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Ben - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2017\/08\/08\/ben\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Ben - 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