{"id":1564,"date":"2017-09-11T15:56:15","date_gmt":"2017-09-11T20:56:15","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1564"},"modified":"2017-09-11T15:56:15","modified_gmt":"2017-09-11T20:56:15","slug":"karen-2","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2017\/09\/11\/karen-2\/","title":{"rendered":"EINZELPERSON MIT LGMD: Karen"},"content":{"rendered":"

LGMD \"Spotlight Interview\"<\/strong><\/p>\n

Name<\/strong>: Karen \u00a0Alter<\/strong>: 54 J. alt\"\"<\/a><\/p>\n

Land<\/strong>: USA<\/p>\n

LGMD Unter-Typ<\/strong>: LGMD 2I<\/p>\n

 <\/p>\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong><\/p>\n

Die Diagnose wurde bei mir im Alter von 33 Jahren gestellt.<\/p>\n

Was waren Ihre ersten SYMPTOME?<\/strong><\/p>\n

Mein erstes Symptom war eine allgemeine Schw\u00e4che im Vergleich zu anderen Kindern im Sportunterricht in der Grundschule. Der Sportunterricht in der High School war noch schlimmer. Ich litt unter verspannten Kniesehnen und Wadenmuskeln. Meine Waden waren gro\u00df. Als n\u00e4chstes ver\u00e4nderte sich mein Gang merklich.<\/p>\n

Haben Sie andere Familienmitglieder, die an LGMD leiden?<\/strong><\/p>\n

Nein, ich bin das einzige Familienmitglied, bei dem LGMD diagnostiziert wurde.<\/p>\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>:<\/p>\n

Die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD sind die Bew\u00e4ltigung der t\u00e4glichen pers\u00f6nlichen und hauswirtschaftlichen Aufgaben, der Umgang mit Aktivit\u00e4t und Ruhe, die Vorbereitung auf den Zugang zu \u00f6ffentlichen R\u00e4umen und die Planung k\u00fcnftiger Bed\u00fcrfnisse.<\/p>\n

Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong>:<\/p>\n

Mit der Liebe und Unterst\u00fctzung meiner Familie und meiner Freunde nehme ich das Leben an und erlebe es trotz der st\u00e4ndig wechselnden Einschr\u00e4nkungen und Hindernisse. Das ist meine gr\u00f6\u00dfte Errungenschaft.<\/p>\n

Wie hat LGMD dich zu der Person gemacht, die du heute bist?<\/strong><\/p>\n

Das Leben mit LGMD hat mich zu einem akzeptierenden, entschlossenen, einfallsreichen, bescheidenen und dankbaren Menschen gemacht. Ich habe gelernt, meine Diagnose zu akzeptieren und zu erkennen, dass sie mir im Laufe der Zeit die M\u00f6glichkeit gibt, als Mensch zu wachsen.<\/p>\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>?<\/p>\n

LGMD ist eine fortschreitende Krankheit. Sie wirkt sich auf jeden Gedanken und jede Bewegung eines jeden Tages aus. Kontinuierliche Forschung und Entwicklung f\u00fcr eine Heilung, Behandlung und Hilfsmittel sind unerl\u00e4sslich.<\/p>\n

Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was w\u00fcrden Sie als Erstes tun wollen?<\/strong>:<\/p>\n

Wenn ich morgen geheilt w\u00e4re, w\u00fcrde ich Rollerblade fahren!<\/p>\n

 <\/p>\n

* * * * * Um weitere \"LGMD Spotlight-Interviews\" zu lesen oder sich f\u00fcr ein bevorstehendes Interview anzumelden, besuchen Sie bitte unsere Website unter: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSpotlight Interview\u201d Name:\u00a0 Karen \u00a0Age: 54 Yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":1562,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[83],"class_list":["post-1564","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Karen - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2017\/09\/11\/karen-2\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Karen - 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