{"id":1585,"date":"2017-09-25T20:33:54","date_gmt":"2017-09-26T01:33:54","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1585"},"modified":"2017-09-25T20:33:54","modified_gmt":"2017-09-26T01:33:54","slug":"lori","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2017\/09\/25\/lori\/","title":{"rendered":"EINZELPERSON MIT LGMD: Lori"},"content":{"rendered":"<p><span style=\"color: #000000;\"><strong>LGMD \"SPOTLIGHT INTERVIEW\"<\/strong><\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>\u00a0<\/strong><\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>Name<\/strong><\/span>:<span style=\"color: #000000;\">\u00a0 Lori\u00a0 <strong>Alter<\/strong>: 47 Jahre alt<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2017\/09\/LGMD2i-Lori-B.png\"><img decoding=\"async\" class=\"lazyload size-medium wp-image-1584 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2017\/09\/LGMD2i-Lori-B-300x169.png\" alt=\"\" width=\"300\" height=\"169\" \/><\/a><\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>Land<\/strong>: Vereinigte Staaten<\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>LGMD Unter-Typ<\/strong>: LGMD2i<\/span><!--more--><\/p>\n<p><span style=\"color: #000000;\"><strong>In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>:<\/span><\/p>\n<p><span style=\"color: #000000;\">Die Diagnose wurde bei mir im Alter von 41 Jahren gestellt.<\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>Was waren Ihre ersten Symptome?<\/strong>:<\/span><\/p>\n<p><span style=\"color: #000000;\">Die ersten Symptome, die ich bemerkte, waren Muskelschw\u00e4che und St\u00fcrze, obwohl ich damals nicht wusste, dass es sich um etwas Ernstes handelte.<\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>Haben Sie andere Familienmitglieder, die LGMD haben?<\/strong><\/span><\/p>\n<p><span style=\"color: #000000;\">Ja, meine j\u00fcngere Schwester hat auch LGMD2i.<\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>:<\/span><\/p>\n<p><span style=\"color: #000000;\">Meine gr\u00f6\u00dfte Herausforderung ist, dass mir die Energie und die k\u00f6rperliche Kraft fehlen, um alles zu tun, was ich fr\u00fcher getan habe und was ich tun m\u00f6chte.<\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong>:<\/span><\/p>\n<p><span style=\"color: #000000;\">Meine gr\u00f6\u00dften Errungenschaften sind die Erziehung meiner beiden S\u00f6hne (17 und 24 Jahre alt) und der Beruf des Rechtsanwalts.<\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind?<\/strong><\/span><\/p>\n<p><span style=\"color: #000000;\">LGMD veranlasst mich, noch dankbarer f\u00fcr das zu sein, was ich tun kann, und f\u00fcr die Menschen in meinem Leben.<\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>:<\/span><\/p>\n<p><span style=\"color: #000000;\">Ich m\u00f6chte, dass die Menschen wissen, dass LGMD eine genetisch bedingte Krankheit ist, f\u00fcr die es zur Zeit keine Behandlung oder Heilung gibt.<\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was w\u00fcrden Sie als Erstes tun wollen?<\/strong>:<\/span><\/p>\n<p><span style=\"color: #000000;\">Wenn ich morgen geheilt w\u00e4re, w\u00fcrde ich gerne wandern gehen oder einen langen Spaziergang machen.<\/span><\/p>\n<p>&nbsp;<\/p>\n<p><span style=\"color: #000000;\">* * * Um weitere \"LGMD Spotlight Interviews\" zu lesen oder um sich f\u00fcr ein Interview zur Verf\u00fcgung zu stellen, besuchen Sie bitte unsere Website <\/span>am: <a href=\"https:\/\/www.lgmd-info.org\/de\/spotlight-interviews\/\">https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>LGMD \u201cSPOTLIGHT INTERVIEW\u201d \u00a0 Name:\u00a0 Lori\u00a0 Age: 47 yrs. old [&hellip;]<\/p>","protected":false},"author":1,"featured_media":1584,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[83],"class_list":["post-1585","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i-united-states"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - 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