{"id":2098,"date":"2018-07-13T09:14:39","date_gmt":"2018-07-13T14:14:39","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2098"},"modified":"2018-07-13T09:14:39","modified_gmt":"2018-07-13T14:14:39","slug":"individual-with-lgmd-majed","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2018\/07\/13\/individual-with-lgmd-majed\/","title":{"rendered":"EINZELPERSON MIT LGMD: Majed"},"content":{"rendered":"<p><strong>LGMD \"SPOTLIGHT INTERVIEW\"<\/strong><\/p>\n<p><strong>Name<\/strong>: Majed\u00a0 \u00a0<strong>Alter<\/strong>:\u00a0 20\u00a0\u00a0<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2018\/07\/LGMD2C-Majed-1.png\"><img decoding=\"async\" class=\"lazyload size-medium wp-image-2099 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2018\/07\/LGMD2C-Majed-1-300x169.png\" alt=\"\" width=\"300\" height=\"169\" \/><\/a><\/p>\n<p><strong>Land<\/strong>:  Syrien \/ Deutschland<\/p>\n<p><strong>LGMD Untertyp<\/strong>:  LGMD2C<\/p>\n<p>&nbsp;<\/p>\n<p><strong>IN WELCHEM ALTER WURDEN SIE DIAGNOSTIZIERT?<\/strong>:<\/p>\n<p>Ich wurde im Alter von 8 Jahren diagnostiziert.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>WAS WAREN IHRE ERSTEN SYMPTOME?<\/strong>:<\/p>\n<p>Die ersten Symptome traten auf, als ich 7 Jahre alt war.  Als kleines Kind bin ich auf den Zehen gelaufen.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>\u00a0HABEN SIE ANDERE FAMILIENMITGLIEDER, DIE AN LGMD LEIDEN<\/strong>:<\/p>\n<p>Ja, bei meinem Bruder und zwei meiner Onkel (die Br\u00fcder meiner Mutter) wurde ebenfalls LGMD2C diagnostiziert. (Mein Bruder lebt immer noch in Syrien und sein Name ist Younis. Er wurde bereits in einem LGMD Spotlight Interview vorgestellt).<\/p>\n<p>&nbsp;<\/p>\n<p><strong>WAS SIND F\u00dcR SIE DIE GR\u00d6SSTEN HERAUSFORDERUNGEN IM LEBEN MIT LGMD<\/strong>:<\/p>\n<p>Die gr\u00f6\u00dfte Herausforderung f\u00fcr mich ist das Gehen und Stehen \u00fcber l\u00e4ngere Zeitr\u00e4ume. Ich kann mit einem Stock 500 Meter weit gehen.   Ich benutze auch einen Rollstuhl, und auf der Toilette gibt es einige Schwierigkeiten.  Manchmal erledige ich einige allt\u00e4gliche Aufgaben selbst\u00e4ndig.<\/p>\n<p>Ich lebe jetzt in Deutschland bei meinem Onkel und habe meine Eltern und Br\u00fcder seit zwei Jahren nicht mehr gesehen.  Ich denke, es ist schwer, allein zu leben, weit weg von meiner Familie, meinen Br\u00fcdern und meinem Land.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>WAS IST IHRE GR\u00d6SSTE ERRUNGENSCHAFT?<\/strong>:<\/p>\n<p>Die Wahrheit ist, dass ich nicht wei\u00df, was die gr\u00f6\u00dfte Errungenschaft f\u00fcr mich ist.   Aber ich bin stolz darauf, dass ich immer noch laufen und Sport treiben kann.<\/p>\n<p>Trotz der Kriegs- und Vertreibungsbedingungen in Syrien konnte ich die Schule erfolgreich abschlie\u00dfen und vor 10 Jahren habe ich schwimmen gelernt.<\/p>\n<p>Aber die gr\u00f6\u00dfte Herausforderung, die ich gemacht habe, ist die Reise von Syrien nach Deutschland durch 9 L\u00e4nder.  Innerhalb von 10 Tagen kann ich die Schwierigkeiten nicht beschreiben, die auf einer Stra\u00dfe auftraten. In einem Wald in Serbien habe ich 5 Kilometer zur\u00fcckgelegt und hatte damals keinen Rollstuhl, abgesehen vom Untergang unseres Bootes vor den griechischen Inseln, ich wei\u00df nicht, wie ich das Ertrinken \u00fcberlebt habe.<\/p>\n<p>Jetzt lerne ich die deutsche Sprache, und wenn ich damit fertig bin, werde ich mein Universit\u00e4tsstudium abschlie\u00dfen.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>WIE HAT LGMD SIE ZU DER PERSON GEMACHT, DIE SIE HEUTE SIND<\/strong>:<\/p>\n<p>LGMD hat mich gelehrt, ein geduldiger und freundlicher Mensch zu sein.  Ein Mensch kann tun, was immer er will, unabh\u00e4ngig von seinen Umst\u00e4nden.  Es ist hart, aber es hat mich auch gelehrt, Willen und Entschlossenheit zu zeigen.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>WAS SOLL DIE WELT \u00dcBER LGMD WISSEN?<\/strong>:<\/p>\n<p>Ich m\u00f6chte, dass die Welt mehr \u00fcber diese Krankheit und die verschiedenen Arten von LGMD erf\u00e4hrt. Au\u00dferdem m\u00f6chte ich, dass die Menschen wissen, dass mehr Forschung \u00fcber LGMD wichtig ist, um eine Heilung und Behandlung f\u00fcr diese Krankheiten zu finden. Ich hoffe, dass die Wissenschaftler ein Heilmittel f\u00fcr diese Krankheit finden werden. Ich m\u00f6chte auch, dass die Menschen Ma\u00dfnahmen zur Vorbeugung ergreifen.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>WENN IHRE LGMD MORGEN \"GEHEILT\" WERDEN K\u00d6NNTE, WAS W\u00dcRDEN SIE ALS ERSTES TUN WOLLEN?<\/strong>:<\/p>\n<p>Als Erstes gehe ich ins Schwimmbad und springe von einem hohen Platz.  Au\u00dferdem laufe ich schnell und spiele Fu\u00dfball mit meinem Bruder Younis.<\/p>\n<p>&nbsp;<\/p>\n<p>* * * Um weitere \"LGMD Spotlight Interviews\" zu lesen oder um sich f\u00fcr ein Interview zur Verf\u00fcgung zu stellen, besuchen Sie bitte unsere Website unter <a href=\"https:\/\/www.lgmd-info.org\/de\/spotlight-interviews\/\">https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><u>\u00a0 <\/u><\/p>\n<p>* * * Bitte LIKE, KOMMENTAR und TEILEN Sie diesen Beitrag, um das Bewusstsein f\u00fcr LGMD zu erh\u00f6hen!<\/p>","protected":false},"excerpt":{"rendered":"<p>LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name: Majed\u00a0 \u00a0Age:\u00a0 20\u00a0\u00a0 Country: \u00a0Syria \/ [&hellip;]<\/p>","protected":false},"author":1,"featured_media":2099,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,75],"tags":[98],"class_list":["post-2098","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2c","tag-lgmd2c-syria-germany"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - 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