{"id":2283,"date":"2018-09-29T08:54:12","date_gmt":"2018-09-29T13:54:12","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2283"},"modified":"2018-09-29T08:54:12","modified_gmt":"2018-09-29T13:54:12","slug":"nicole-2","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2018\/09\/29\/nicole-2\/","title":{"rendered":"EINZELPERSON MIT LGMD: Nicole"},"content":{"rendered":"

LGMD \"Spotlight-Interview\"<\/strong><\/p>\n

\u00a0<\/strong>Name<\/strong>: Nicole \u00a0\u00a0Alter<\/strong>: 24 Jahre alt\u00a0\u00a0\"\"<\/a><\/p>\n

Land<\/strong>: Vereinigte Staaten<\/p>\n

LGMD Unter-Typ<\/strong>: LGMD 2A \/ Kalpainopathie<\/p>\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>:<\/p>\n

Die Diagnose wurde bei mir im Alter von 12 Jahren gestellt.<\/p>\n

Was waren Ihre ersten Symptome?<\/strong>:<\/p>\n

Meine allerersten Symptome waren das Laufen auf Zehenspitzen.<\/p>\n

Haben Sie andere Familienmitglieder, die LGMD haben?<\/strong><\/p>\n

Niemand sonst in meiner Familie hat LGMD.<\/p>\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>:<\/p>\n

In letzter Zeit ist es eine meiner gr\u00f6\u00dften Herausforderungen, den ganzen Tag \u00fcber Energie und Ausdauer zu haben. Au\u00dferdem habe ich Schwierigkeiten, mit den sich st\u00e4ndig \u00e4ndernden Symptomen umzugehen und mein Leben anzupassen.<\/p>\n

Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong>:<\/p>\n

M<\/strong>Meine gr\u00f6\u00dfte Errungenschaft ist es, einen Vollzeitjob zu haben und 40 Stunden pro Woche zu arbeiten (auch wenn es anstrengend ist!).<\/p>\n

Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind?<\/strong><\/p>\n

LGMD hat mich dazu gebracht, ein einf\u00fchlsamer und verst\u00e4ndnisvoller Mensch zu werden. Ich glaube, ohne LGMD w\u00e4re ich nicht die, die ich bin, und daf\u00fcr bin ich dankbar!<\/p>\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>:<\/p>\n

Obwohl LGMD ein gro\u00dfer Teil meines Lebens ist, ist es nicht der einzige Teil. Ich sch\u00e4me mich nicht daf\u00fcr, eine Behinderung zu haben, aber es gibt noch viel mehr in meinem Leben.<\/p>\n

Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was w\u00fcrden Sie als Erstes tun wollen?<\/strong>:<\/p>\n

Ich denke, ich w\u00fcrde gerne joggen gehen J<\/p>\n

* * * Um weitere \"LGMD Spotlight Interviews\" zu lesen oder um sich f\u00fcr ein Interview zur Verf\u00fcgung zu stellen, besuchen Sie bitte unsere Website unter https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a>\u00a0 <\/u><\/p>\n

* * * Bitte LIKE, KOMMENTAR und TEILEN Sie diesen Beitrag, um das Bewusstsein f\u00fcr LGMD zu erh\u00f6hen!<\/p>","protected":false},"excerpt":{"rendered":"

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