{"id":2361,"date":"2019-01-15T10:00:27","date_gmt":"2019-01-15T16:00:27","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2361"},"modified":"2019-01-15T10:00:27","modified_gmt":"2019-01-15T16:00:27","slug":"individual-with-lgmd-andrea","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2019\/01\/15\/individual-with-lgmd-andrea\/","title":{"rendered":"EINZELPERSON MIT LGMD: Andrea"},"content":{"rendered":"<figure class=\"wp-block-image\"><img decoding=\"async\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%271024%27%20height%3D%27576%27%20viewBox%3D%270%200%201024%20576%27%3E%3Crect%20width%3D%271024%27%20height%3D%27576%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2019\/01\/LGMD2A-Andrea-L-1024x576.png\" alt=\"\" class=\"lazyload wp-image-2360\"\/><\/figure>\n\n\n\n<p><strong>LGMD \"SPOTLIGHT INTERVIEW\"<\/strong><\/p>\n\n\n\n<p><strong>Name<\/strong>:  Andrea&nbsp; <strong>Alter<\/strong>: 24 Jahre alt<\/p>\n\n\n\n<p><strong>Land<\/strong>: Vereinigte Staaten<\/p>\n\n\n\n<p><strong>LGMD Unter-Typ<\/strong>:  LGMD2A - eine Form der Calpainopathie <\/p>\n\n\n\n<p><strong>In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>:<\/p>\n\n\n\n<p>Die Diagnose wurde bei mir im Alter von 11 Jahren gestellt.<\/p>\n\n\n\n<p><strong>Was waren Ihre ersten Symptome?<\/strong>:<\/p>\n\n\n\n<p>Im Alter von 8 Jahren konnte ich nicht mit den Fersen auf dem Boden stehen und\nbegann kurz darauf mit dem Zehengang. Eine Schw\u00e4che in den Schultern und H\u00fcften\nfolgten.<\/p>\n\n\n\n<p><strong>Haben Sie andere Familienmitglieder, die LGMD haben?<\/strong><\/p>\n\n\n\n<p>Nein, ich bin das einzige Familienmitglied, bei dem LGMD diagnostiziert wurde.<\/p>\n\n\n\n<p><strong>Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen\nim Leben mit LGMD<\/strong>:<\/p>\n\n\n\n<p>Uber nicht benutzen zu k\u00f6nnen!<\/p>\n\n\n\n<p>Der progressive Charakter der Krankheit ist eine Herausforderung. Ich habe\nIch musste mich mit der Zeit an den Verlust bestimmter F\u00e4higkeiten gew\u00f6hnen, und es ist schwierig\nzu wissen, dass diese Verluste anhalten werden. Als Kind konnte ich zum Beispiel noch laufen,\nals Teenager benutzte ich einen Segway, um mich fortzubewegen, und jetzt benutze ich einen\nRollstuhl. Die schwierigsten Anpassungen waren f\u00fcr mich, dass ich nicht mehr\ndass ich nicht mehr in der Lage bin, die H\u00e4user von Freunden zu besuchen, weil sie fast immer Stufen haben, und dass ich nicht mehr\nnicht mehr in der Lage zu sein, Musikinstrumente zu spielen, die ich fr\u00fcher gerne gespielt habe.<\/p>\n\n\n\n<p><strong>Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong>:<\/p>\n\n\n\n<p>Ich sch\u00e4tze mich gl\u00fccklich, dass ich an der Universit\u00e4t ein Studienfach gefunden habe, das mir Spa\u00df macht und das ich mit LGMD verfolgen kann. Ich bin stolz auf mich, dass ich in einen neuen Bundesstaat gezogen bin, um dort Biostatistik zu studieren und unabh\u00e4ngig zu leben. Aber von <g class=\"gr_ gr_5 gr-alert gr_gramm gr_inline_cards gr_run_anim Punctuation only-ins replaceWithoutSep\" id=\"5\" data-gr-id=\"5\">Kurs<\/g> mehrere Leute haben mir auf meinem Weg geholfen (ich liebe dich, Mama und <g class=\"gr_ gr_12 gr-alert gr_gramm gr_inline_cards gr_run_anim Style multiReplace\" id=\"12\" data-gr-id=\"12\">Papa <\/g><g class=\"gr_ gr_12 gr-alert gr_gramm gr_inline_cards gr_disable_anim_appear Style multiReplace\" id=\"12\" data-gr-id=\"12\">:<\/g>).<\/p>\n\n\n\n<p><strong>Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind?\nPerson, die Sie heute sind:<\/strong><\/p>\n\n\n\n<p>Manchmal stellt uns das Leben vor Herausforderungen, die wir nicht \u00e4ndern k\u00f6nnen,\naber der Prozess der Bew\u00e4ltigung dieser Herausforderungen kann oft sehr lohnend sein.\nDas Leben mit LGMD hat mich trotz meiner k\u00f6rperlichen Schw\u00e4che in vielerlei Hinsicht zu einem st\u00e4rkeren Menschen gemacht.\nSchw\u00e4che. Es hat mich auch gelehrt, wie wichtig es ist, verletzlich zu sein und Traurigkeit anzunehmen\nTraurigkeit anzunehmen, um Freude zu erleben. Vielleicht hat mich das der Film \"Inside Out\" gelehrt\nmich das gelehrt...<\/p>\n\n\n\n<p><strong>Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>:<\/p>\n\n\n\n<p>Jeder sollte sich Stella Youngs TED Talk mit dem Titel \"I am\nnicht eure Inspiration, vielen Dank.\" Sie teilt eine gro\u00dfartige Botschaft \u00fcber\ndie Ausbeutung von Menschen mit Behinderungen. Ich glaube, dass die gro\u00dfe Mehrheit\nvon uns auf dieser Erde das Beste tun, was wir k\u00f6nnen, trotz der verschiedenen Traumata, die wir\nerlitten haben. F\u00fcr diejenigen unter uns, die k\u00f6rperlich behindert sind, ist dieses Trauma\nf\u00fcr das blo\u00dfe Auge etwas offensichtlicher.<\/p>\n\n\n\n<p><strong>Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was\nw\u00e4re das Erste, was Sie tun w\u00fcrden, um<\/strong>:<\/p>\n\n\n\n<p>Diese Frage ist f\u00fcr mich die schwierigste. Ich war noch nie\nauf Leute eifers\u00fcchtig gewesen, die laufen, wandern oder ins Fitnessstudio gehen. Ich w\u00fcrde\nwahrscheinlich einfach zur Schule gehen, aber die Treppe statt des Aufzugs benutzen. Aber\ndas ist eine langweilige Antwort. Vielleicht w\u00e4re ich etwas dramatischer: Ich k\u00f6nnte meinen Rollstuhl verkaufen\nund von dem Geld mit meiner Familie nach Europa reisen. In einem Flugzeug auf die Toilette zu gehen\nin einem Flugzeug benutzen zu k\u00f6nnen, k\u00f6nnte aufregend sein. Aber ich w\u00fcrde die besondere Behandlung vermissen, die man\ndie mit der Benutzung eines Rollstuhls einhergeht. Anders zu sein hat seine Vorteile.<\/p>\n\n\n\n<p>*** Bitte LIKE, KOMMENTAR und TEILEN Sie diesen Beitrag, um das\nBewusstsein f\u00fcr LGMD zu erh\u00f6hen!<\/p>\n\n\n\n<p>*** Um weitere \"LGMD Spotlight-Interviews\" zu lesen oder sich f\u00fcr ein kommendes Interview anzumelden, besuchen Sie bitte unsere Website unter <a href=\"https:\/\/www.lgmd-info.org\/de\/spotlight-interviews\/\" target=\"_blank\" rel=\"noreferrer noopener\" aria-label=\"https:\/\/www.lgmd-info.org\/spotlight-interviews (\u00f6ffnet in einer neuen Registerkarte)\">https:\/\/www.lgmd-info.org\/spotlight-interviews <\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:&nbsp; Andrea&nbsp; Age: 24 yrs. old Country: [&hellip;]<\/p>","protected":false},"author":1,"featured_media":2360,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[70],"class_list":["post-2361","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-calpainopathy-united-states"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>INDIVIDUAL WITH LGMD: Andrea - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2019\/01\/15\/individual-with-lgmd-andrea\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Andrea - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:&nbsp; 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