{"id":2615,"date":"2019-01-27T15:17:42","date_gmt":"2019-01-27T21:17:42","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2615"},"modified":"2019-01-27T15:17:42","modified_gmt":"2019-01-27T21:17:42","slug":"conquistando-escalones","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/organization-interview\/2019\/01\/27\/conquistando-escalones\/","title":{"rendered":"ORGANISATION: Conquistando Escalones"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

NAME DER ORGANISATION<\/strong>: CONQUISTANDO ESCALONES<\/p>\n\n\n\n

WEBSITE:<\/strong>              www.conquistandoescalones.org<\/a><\/p>\n\n\n\n

FACEBOOK:        <\/strong> www.facebook.com\/conquistandoescalones<\/a><\/p>\n\n\n\n

TWITTER:             <\/strong>@AceDistrofia<\/a><\/p>\n\n\n\n

AUF WELCHEN UNTERTYP VON LGMD KONZENTRIERT SICH IHRE ORGANISATION:  <\/strong> <\/p>\n\n\n\n

Wir konzentrieren uns auf Gliederg\u00fcrtel-Muskeldystrophie Typ 1F (LGMD1F)  <\/strong><\/p>\n\n\n\n

WENN SIE SICH AUF EINEN UNTERTYP KONZENTRIEREN, GIBT ES\nGIBT ES EIN REGISTER UND WIE K\u00d6NNEN PATIENTEN DARAN TEILNEHMEN? <\/strong><\/p>\n\n\n\n

Ja, wir haben ein Patientenregister eingerichtet und die Patienten k\u00f6nnen sich an us<\/g> durch Senden einer E-Mail an conquistandoescalones@gmail.com<\/a> <\/p>\n\n\n\n

IST IHRE ORGANISATION EINE GEMEINN\u00dcTZIGE EINRICHTUNG? WENN JA, WELCHE ART:         <\/strong><\/p>\n\n\n\n

Ja, wir sind registriert in\nSpanien und in Italien registriert. <\/p>\n\n\n\n

WAS DEN ANSTOSS ZUR\nDIE GR\u00dcNDUNG IHRER ORGANISATION<\/strong>:<\/p>\n\n\n\n

Die Vereinigung wurde\naus der Notwendigkeit heraus gegr\u00fcndet, \u00fcber unsere Krankheit zu informieren und\ndie notwendigen Mittel f\u00fcr die Forschung aufzubringen.\nSie wurde von Personen gegr\u00fcndet, die von der Gliederg\u00fcrtel-Muskeldystrophie\n1F (LGMD-1F) im Jahr 2015 gegr\u00fcndet, weil in diesem Jahr entdeckt wurde, dass die\nMutation in dem Gen, das LGMD1F verursacht, die Betroffenen immun gegen AIDS macht und\ndie Betroffenen immun gegen AIDS macht und sie zur Eintrittspforte f\u00fcr eine m\u00f6gliche Heilung dieser weltweiten Pandemie macht.<\/p>\n\n\n\n

WAS IST DER AUFTRAG IHRER ORGANISATION?<\/strong><\/p>\n\n\n\n

Unser Ziel ist es, das Bewusstsein f\u00fcr seltene Krankheiten und die Bedeutung der Erforschung seltener Krankheiten zu sch\u00e4rfen. Au\u00dferdem bauen wir eine Datenbank von LGMD1F-Patienten f\u00fcr die von uns finanzierte wissenschaftliche Forschung auf. Wir stellen den Kontakt zu den Forschungslabors her, die sich mit LGMD1F befassen. Wir sind st\u00e4ndig auf der Suche nach Geld, um die Forschung zu finanzieren. Helfen Sie uns zu gehen, helfen Sie uns zu leben! Gemeinsam k\u00f6nnen wir es schaffen. \u00a0<\/p>\n\n\n\n

WELCHE DIENSTLEISTUNGEN BIETET\nIHRE ORGANISATION BIETET:<\/strong><\/p>\n\n\n\n

Wir bieten Unterst\u00fctzung f\u00fcr\nPatienten mit LGMD1F und anderen Subtypen von LGMD und unterhalten das LGMD1F-Patientenregister\nRegister. Au\u00dferdem sind wir st\u00e4ndig in\nKontakt mit Forschungslabors. <\/p>\n\n\n\n

Wir konzentrieren uns in erster Linie\nWir konzentrieren uns auf die Forschung und Entwicklung von Behandlungen und nicht auf Dienstleistungen f\u00fcr Patienten.  <\/p>\n\n\n\n

WAS IST IHRE\nORGANISATION AM STOLZESTEN IST:<\/strong><\/p>\n\n\n\n

 In 3 Jahren konnten wir neue Forschungsstudien\nForschungsstudien zu LGMD1F finanzieren, die zuvor eingestellt worden waren. <\/strong><\/p>\n\n\n\n

WAS M\u00d6CHTEN SIE, DASS DIE WELT \u00dcBER IHRE ORGANISATION ERF\u00c4HRT?<\/strong>:<\/p>\n\n\n\n

Wir finanzieren viele verschiedene\nAns\u00e4tze, darunter CRISPR und die Wiederverwendung von bereits auf dem Markt befindlichen Medikamenten f\u00fcr\nandere Krankheiten. <\/p>\n\n\n\n

WIE K\u00d6NNEN SICH MENSCHEN\nSICH AN DER UNTERST\u00dcTZUNG IHRER ORGANISATION BETEILIGEN:<\/strong><\/p>\n\n\n\n

Die Menschen k\u00f6nnen helfen\nuns helfen, Geld f\u00fcr die Forschung zu sammeln, indem sie Veranstaltungen organisieren, spenden oder auf andere Weise\noder auf andere Weise (siehe diesen Link zu unserer Website\nhttp:\/\/www.conquistandoescalones.org\/web\/en\/how-to-help-us\/)<\/p>\n\n\n\n

WIE KANN ICH AM BESTEN\nIHRE ORGANISATION ZU KONTAKTIEREN:<\/strong><\/p>\n\n\n\n

Man kann uns kontaktieren unter\nconquistandoescalones@gmail.com oder Sie k\u00f6nnen uns auch eine Nachricht \u00fcber Facebook schicken.\n<\/p>\n\n\n\n

GIBT ES SONST NOCH ETWAS, DAS SIE HINZUF\u00dcGEN M\u00d6CHTEN?<\/strong><\/p>\n\n\n\n

\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nWenn Sie eine LGMD1F-Diagnose haben, kontaktieren Sie uns bitte!!!\n\n\n\n<\/p>","protected":false},"excerpt":{"rendered":"

NAME OF ORGANIZATION:          CONQUISTANDO ESCALONES WEBSITE:              www.conquistandoescalones.org FACEBOOK:        […]<\/p>","protected":false},"author":1,"featured_media":2614,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[94,101,95],"tags":[],"class_list":["post-2615","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-organization-interview","category-lgmd1f","category-organization"],"acf":[],"yoast_head":"\nORGANIZATION: Conquistando Escalones - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/organization-interview\/2019\/01\/27\/conquistando-escalones\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"ORGANIZATION: Conquistando Escalones - 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