{"id":2722,"date":"2019-04-29T10:19:08","date_gmt":"2019-04-29T15:19:08","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2722"},"modified":"2019-04-29T10:19:08","modified_gmt":"2019-04-29T15:19:08","slug":"individual-with-lgmd-hasan","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2019\/04\/29\/individual-with-lgmd-hasan\/","title":{"rendered":"EINZELPERSON MIT LGMD: Hasan"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

LGMD \"SPOTLIGHT INTERVIEW\"<\/strong><\/p>\n\n\n\n

Name<\/strong>: Hasan \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0AGE<\/strong>: 34 Jahre alt<\/p>\n\n\n\n

Land<\/strong>: Pakistan<\/p>\n\n\n\n

LGMD Unter-Typ<\/strong>:\nUnbekannt<\/p>\n\n\n\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>:<\/p>\n\n\n\n

Ich wurde im Alter von 19 Jahren diagnostiziert.<\/p>\n\n\n\n

Was waren Ihre ersten Symptome?<\/strong>:<\/p>\n\n\n\n

Beginn von Schmerzen und Kr\u00e4mpfen, watschelnder Gang, Wirbels\u00e4ulenverkr\u00fcmmung\nKr\u00fcmmung ....<\/p>\n\n\n\n

Haben Sie andere Familienmitglieder, die LGMD haben?<\/strong><\/p>\n\n\n\n

Ja, zwei Schwestern und ein Bruder haben diese Krankheit auch<\/p>\n\n\n\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen\nim Leben mit LGMD<\/strong>:<\/p>\n\n\n\n

Nun, ich denke, der Verlust des unabh\u00e4ngigen Lebens ist die gr\u00f6\u00dfte\nHerausforderungen in meinem Leben. Die Hauptsache ist, dass die Orte in meinem Land meist nicht\nnicht rollstuhlgerecht sind und die Leute immer denken, dass ich Polio habe. Trotzdem denke ich\nan alte Zeiten, in denen ich viele Dinge tun konnte, die ich jetzt nicht mehr tun kann.\nDas ist wirklich schade f\u00fcr mich. <\/p>\n\n\n\n

Die Menschen verstehen Ihre Bed\u00fcrfnisse und Anforderungen in meinem\nallt\u00e4glichen Ablauf des Lebens. Deshalb m\u00fcssen wir sie anleiten.<\/p>\n\n\n\n

Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong>:<\/p>\n\n\n\n

Was mich betrifft, so habe ich jetzt einen Traumjob, den ich in meinem\nund ich liebe meinen Job jetzt sehr. Ich habe Symptome fast\nkurz vor dem Abschluss meines Studiums. Ich denke also, dass dies eine der\nErrungenschaft in meinem Leben.<\/p>\n\n\n\n

Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind?\nPerson, die Sie heute sind:<\/strong><\/p>\n\n\n\n

Um ehrlich zu sein, hat sich mein ganzes Leben dadurch\nganzes Leben ver\u00e4ndert. Ich habe nach der Diagnose dieser Krankheit viel gelernt und muss\nakzeptieren. Eines der wichtigsten Elemente in meinem Leben ist es jetzt, geduldig zu sein. <\/p>\n\n\n\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>:<\/p>\n\n\n\n

Bitte versuchen Sie, unsere Krankheit zu verstehen, anstatt uns zu verurteilen.\nDas Leben ist sch\u00f6n und wir kommen nur einmal. Genie\u00dfen Sie also jeden Tag und f\u00fchlen Sie sich nicht schlecht\nund f\u00fchlt euch nicht schlecht, weil ihr so seid, wie ihr seid. <\/p>\n\n\n\n

Z\u00f6gern Sie nicht, Fragen \u00fcber uns zu stellen.<\/p>\n\n\n\n

Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was\nw\u00e4re das Erste, was Sie tun w\u00fcrden, um<\/strong>:<\/p>\n\n\n\n

Ich m\u00f6chte meine engsten Familienangeh\u00f6rigen besuchen, um sie zu \u00fcberraschen\num sie zu \u00fcberraschen, dass ich wieder laufen kann. <\/p>\n\n\n\n

Um mehr \"LGMD Spotlight\" zu lesen\nInterviews\" zu lesen oder sich freiwillig f\u00fcr ein Interview zu melden,\nbesuchen Sie bitte unsere Website unter: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:\u00a0 \u00a0\u00a0\u00a0 Hasan \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0AGE:\u00a0\u00a0 34 years old […]<\/p>","protected":false},"author":1,"featured_media":2723,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13],"tags":[],"class_list":["post-2722","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Hasan - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2019\/04\/29\/individual-with-lgmd-hasan\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Hasan - 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