{"id":3156,"date":"2019-11-21T20:23:42","date_gmt":"2019-11-22T02:23:42","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3156"},"modified":"2019-11-21T20:23:42","modified_gmt":"2019-11-22T02:23:42","slug":"patrick","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2019\/11\/21\/patrick\/","title":{"rendered":"EINZELPERSON MIT LGMD: Patrick"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

LGMD \"SPOTLIGHT INTERVIEW\"<\/h2>\n\n\n\n

NAME<\/strong>: Patrick   AGE<\/strong>:\n46 Jahre alt<\/p>\n\n\n\n

LAND<\/strong>: USA<\/p>\n\n\n\n

LGMD Unter-Typ<\/strong>: LGMD 2E\/R4 B\u00e8ta-Sarkoglykan-verwandt<\/p>\n\n\n\n

In welchem Alter wurde bei Ihnen\ndiagnostiziert<\/strong>:<\/p>\n\n\n\n

Ich war 12 Jahre alt, und es war das Jahr 1985. Zun\u00e4chst wurde bei mir Becker Muskeldystrophie diagnostiziert.\nDystrophie!<\/p>\n\n\n\n

Was waren Ihre ersten Symptome?<\/strong>:\n<\/p>\n\n\n\n

Meine ersten Symptome waren Schwierigkeiten beim Laufen im Sportunterricht, Atemlosigkeit beim\nTreppensteigen, Gehen und Laufen auf Zehenspitzen.<\/p>\n\n\n\n

Haben Sie andere Familienmitglieder\ndie LGMD haben: <\/strong><\/p>\n\n\n\n

N<\/strong>o, ich bin die einzige Person in meiner Familie mit LGMD.<\/p>\n\n\n\n

Was sind Ihrer Meinung nach die\ngr\u00f6\u00dften Herausforderungen im Leben mit LGMD<\/strong>:<\/p>\n\n\n\n

Eine der gr\u00f6\u00dften Herausforderungen ist es, mit dem Wissen zu leben, dass diese\nKrankheit fortschreitet und ich nicht wei\u00df, wie lange ich noch Funktionen und\nF\u00e4higkeiten. Gerade deshalb mache ich das Beste aus jedem Tag!<\/p>\n\n\n\n

Was ist Ihre gr\u00f6\u00dfte Leistung\nErrungenschaft<\/strong>:<\/p>\n\n\n\n

Ich habe viele! Vor allem habe ich meine Frau Vanessa kennengelernt, mit der ich jetzt 2 Jungs gro\u00dfziehe.\nJungen gro\u00dfgezogen habe, und seit 25 Jahren Vollzeit-Musiklehrer an einer Mittelschule bin.\nMittelschule.<\/p>\n\n\n\n

Wie hat LGMD Sie beeinflusst\nzu der Person gemacht, die Sie heute sind:<\/strong><\/p>\n\n\n\n

Es hat mir gezeigt, dass das Leben kostbar ist und wir uns alle Zeit nehmen m\u00fcssen, um\ndurchzuatmen und das Beste in allen Menschen und Beziehungen zu suchen. I\nhabe gelernt, Geduld zu haben und mich nicht um Kleinigkeiten zu k\u00fcmmern. Jedes Problem l\u00e4sst sich\nund besser gemacht werden, wenn Menschen zusammenarbeiten!<\/p>\n\n\n\n

Was m\u00f6chten Sie der Welt\n\u00fcber LGMD wissen<\/strong>:<\/p>\n\n\n\n

dass Menschen mit LGMD und jeder anderen chronischen Krankheit gute und schlechte Tage haben, genau wie alle anderen\nwie jeder andere auch, und dass wir ein gl\u00fcckliches, erf\u00fclltes Leben f\u00fchren. Wir sind\npositiv und arbeiten hart.<\/p>\n\n\n\n

Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte\nWas w\u00fcrden Sie morgen als Erstes tun wollen?<\/strong>:<\/p>\n\n\n\n

Ich bin im Grunde meines Herzens Schlagzeuger und Perkussionist. Im Laufe der Jahre habe ich die F\u00e4higkeit, zu spielen, weitgehend verloren. Wenn ich geheilt bin, werde ich mich einer Band anschlie\u00dfen und abrocken, wie in meiner Jugend! Ha-ha! Frieden f\u00fcr euch ALLE.<\/p>","protected":false},"excerpt":{"rendered":"

LGMD “SPOTLIGHT INTERVIEW” NAME: Patrick   AGE: 46 yrs. old COUNTRY: […]<\/p>","protected":false},"author":1,"featured_media":3157,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,62],"tags":[],"class_list":["post-3156","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2e"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Patrick - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2019\/11\/21\/patrick\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Patrick - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"LGMD “SPOTLIGHT INTERVIEW” NAME: Patrick   AGE: 46 yrs. old COUNTRY: […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2019\/11\/21\/patrick\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2019-11-22T02:23:42+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2019\/11\/21\/patrick\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2019\/11\/21\/patrick\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Patrick\",\"datePublished\":\"2019-11-22T02:23:42+00:00\",\"dateModified\":\"2019-11-22T02:23:42+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2019\/11\/21\/patrick\/\"},\"wordCount\":338,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2019\/11\/21\/patrick\/#primaryimage\"},\"thumbnailUrl\":\"\",\"articleSection\":[\"Individuals with LGMD - 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