{"id":3220,"date":"2020-02-26T12:54:04","date_gmt":"2020-02-26T18:54:04","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3220"},"modified":"2024-02-09T14:24:40","modified_gmt":"2024-02-09T14:24:40","slug":"chuck","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/","title":{"rendered":"EINZELPERSON MIT LGMD: Chuck"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

LGMD \"Spotlight Interview\"<\/h2>\n\n\n\n

Name<\/strong>: Chuck\n                 Alter<\/strong>: 63 Jahre alt<\/p>\n\n\n\n

Land<\/strong>: Kanada<\/p>\n\n\n\n

LGMD Unter-Typ<\/strong>: LGMD\n2L\/R12 Anoctamin5-bezogen<\/p>\n\n\n\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>?  <\/p>\n\n\n\n

 Die Diagnose erhielt ich im\nim Alter von 50 Jahren.<\/p>\n\n\n\n

Was waren Ihre ersten SYMPTOME?<\/strong>   <\/p>\n\n\n\n

Als ich wegen eines Schlaganfalls ins Krankenhaus kam, stellten die \u00c4rzte\nbemerkten die \u00c4rzte, dass alle Muskeln aus meinem R\u00fccken verschwunden waren und die Knochen hervorstanden.<\/p>\n\n\n\n

Haben Sie andere Familienmitglieder, die an LGMD leiden?   <\/strong><\/p>\n\n\n\n

Nein, ich bin der Einzige mit LGMD in meiner Familie.<\/p>\n\n\n\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen\nim Leben mit LGMD<\/strong>?  <\/p>\n\n\n\n

Die gr\u00f6\u00dfte Herausforderung ist es, mich selbst schw\u00e4cher werden zu sehen und weniger\nAktivit\u00e4ten.<\/strong><\/p>\n\n\n\n

Was ist Ihr gr\u00f6\u00dfter ERFOLG?<\/strong>   <\/p>\n\n\n\n

Neben meinen Enkelkindern war ich ein Experte f\u00fcr Abstellgleise und entwarf eine\nMessanleitung f\u00fcr die D.Y.I.-Installation entwickelt, die jetzt der Standard f\u00fcr Nordamerika ist.\nAmerika ist. Au\u00dferdem wurde eine von mir entworfene und gebaute\nSchindeln, die ich entworfen und gebaut habe, wurde in jedem Home Depot in Nordamerika installiert.\nAmerika installiert.  <\/p>\n\n\n\n

Ich sammle Geld und mache mit meinen Tischaufstellungen auf MD aufmerksam.\nauf. Jedes Jahr sammle ich normalerweise etwa\n$12.000,00<\/p>\n\n\n\n

Au\u00dferdem war ich 4 Jahre lang Pr\u00e4sident des Ortsverbandes London, Ontario von\nMuskeldystrophie f\u00fcr 4 Jahre. <\/p>\n\n\n\n

Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind?\nPerson, die Sie heute sind?   <\/strong><\/p>\n\n\n\n

Da ich nicht mehr an den Dingen teilnehmen konnte, die ich fr\u00fcher konnte\nmusste ich mich neu erfinden. Ich sah einen Nutzen\nf\u00fcr meine Design- und Marketingf\u00e4higkeiten und sammle nun jedes Jahr $12.000 f\u00fcr MDC. Ich genie\u00dfe es, etwas zu bewirken und das\nund das Bewusstsein f\u00fcr MD zu sch\u00e4rfen, und ich finde das sehr lohnend. \n<\/p>\n\n\n\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>?<\/p>\n\n\n\n

Dass es Ihre Beinmuskeln angreift 1st<\/sup>. Dass es sich um eine erbliche Muskelkrankheit handelt. <\/p>\n\n\n\n

Dass ich herausgefunden habe, wie unzug\u00e4nglich viele Orte f\u00fcr mich sind\nweil sie Stufen haben.<\/p>\n\n\n\n

Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was\nwas w\u00fcrden Sie als Erstes tun wollen?<\/strong><\/p>\n\n\n\n

Wenn ich morgen geheilt w\u00e4re, w\u00fcrde ich eine Tauchreise nach\nAustralien buchen.<\/p>","protected":false},"excerpt":{"rendered":"

LGMD “Spotlight Interview” Name:     Chuck                  Age:  63 years old […]<\/p>","protected":false},"author":1,"featured_media":3221,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,49],"tags":[],"class_list":["post-3220","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2l"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Chuck - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Chuck - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"LGMD “Spotlight Interview” Name:     Chuck                  Age:  63 years old […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2020-02-26T18:54:04+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-02-09T14:24:40+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Chuck\",\"datePublished\":\"2020-02-26T18:54:04+00:00\",\"dateModified\":\"2024-02-09T14:24:40+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/\"},\"wordCount\":378,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/#primaryimage\"},\"thumbnailUrl\":\"\",\"articleSection\":[\"Individuals with LGMD - 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