{"id":3256,"date":"2020-05-07T19:03:28","date_gmt":"2020-05-08T00:03:28","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3256"},"modified":"2024-02-09T14:24:38","modified_gmt":"2024-02-09T14:24:38","slug":"denise","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2020\/05\/07\/denise\/","title":{"rendered":"EINZELPERSON MIT LGMD: Denise"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

LGMD \"Spotlight Interview\"<\/strong><\/p>\n\n\n\n

NAME<\/strong>: Denise                                  AGE<\/strong>: 49<\/p>\n\n\n\n

LAND<\/strong>: Neuseeland<\/p>\n\n\n\n

LGMD TEIL-TYP<\/strong>: LGMD 2A\/R1 Calpain3-verwandt<\/p>\n\n\n\n

IN WELCHEM ALTER WURDEN SIE DIAGNOSTIZIERT?<\/strong>:<\/p>\n\n\n\n

 Bei mir wurde LGMD im Alter von 18 Jahren diagnostiziert und die Diagnose LGMD 2A\/R1 wurde im Alter von 39 Jahren best\u00e4tigt.<\/p>\n\n\n\n

WAS WAREN IHRE ERSTEN SYMPTOME?<\/strong>:<\/p>\n\n\n\n

Meine ersten Symptome waren Schwierigkeiten beim Laufen und Treppensteigen.<\/p>\n\n\n\n

HABEN SIE ANDERE FAMILIENMITGLIEDER, DIE AN LGMD LEIDEN<\/strong>:<\/p>\n\n\n\n

Nein, ich bin das einzige Familienmitglied mit LGMD.<\/p>\n\n\n\n

WAS SIND F\u00dcR SIE DIE GR\u00d6SSTEN HERAUSFORDERUNGEN IM LEBEN MIT LGMD<\/strong>:<\/p>\n\n\n\n

Meine gr\u00f6\u00dften Herausforderungen waren der Verlust der Armkraft, die Einschr\u00e4nkung der Wahlm\u00f6glichkeiten und der Verlust der Unabh\u00e4ngigkeit sowie die Tatsache, dass ich mich bei grundlegenden Funktionen auf andere verlassen musste.<\/p>\n\n\n\n

WAS IST IHRE GR\u00d6SSTE ERRUNGENSCHAFT?<\/strong>:<\/p>\n\n\n\n

Meine gr\u00f6\u00dfte Errungenschaft ist, dass ich zwei wundersch\u00f6ne T\u00f6chter habe (20 und 16).<\/p>\n\n\n\n

WIE HAT LGMD SIE ZU DER PERSON GEMACHT, DIE SIE HEUTE SIND<\/strong>:<\/p>\n\n\n\n

Trotz dieser Erkrankung f\u00fchre ich ein erf\u00fclltes Leben. Ich arbeite weiterhin Vollzeit, reise und unternehme so viel, wie ich kann. Ich versuche, mich von dieser Krankheit nicht von den Dingen abhalten zu lassen, die ich im Leben erreichen m\u00f6chte. Es gibt immer einen Weg, wenn man entschlossen genug ist.<\/p>\n\n\n\n

WAS SOLL DIE WELT \u00dcBER LGMD WISSEN?<\/strong>:<\/p>\n\n\n\n

LGMD ist eine fortschreitende und schw\u00e4chende Krankheit, die Sie Ihrer grundlegenden menschlichen Funktionen beraubt. Menschen mit dieser Krankheit sind unglaublich stark angesichts der unglaublichen Herausforderungen.<\/p>\n\n\n\n

WENN IHRE LGMD MORGEN \"GEHEILT\" WERDEN K\u00d6NNTE, WAS W\u00dcRDEN SIE ALS ERSTES TUN WOLLEN?<\/strong>:<\/p>\n\n\n\n

Wenn meine LGMD morgen geheilt w\u00e4re, w\u00fcrde ich am Strand schwimmen gehen!<\/p>\n\n\n\n

* * * Um weitere \"LGMD Spotlight Interviews\" zu lesen oder um sich f\u00fcr ein Interview zur Verf\u00fcgung zu stellen, besuchen Sie bitte unsere Website unter: http:\/\/lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSpotlight Interview\u201d NAME:  Denise                                  AGE: 49 COUNTRY: New […]<\/p>","protected":false},"author":1,"featured_media":3260,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[],"class_list":["post-3256","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Denise - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2020\/05\/07\/denise\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Denise - 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