{"id":3276,"date":"2020-06-16T14:26:06","date_gmt":"2020-06-16T19:26:06","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3276"},"modified":"2024-02-09T14:24:37","modified_gmt":"2024-02-09T14:24:37","slug":"ibrahim","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2020\/06\/16\/ibrahim\/","title":{"rendered":"EINZELPERSON MIT LGMD: \u0130brahim"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

LGMD \"SPOTLIGHT INTERVIEW\" <\/strong><\/p>\n\n\n\n

Name<\/strong>: \u0130brahim                                 Alter<\/strong>: 55 Jahre alt<\/p>\n\n\n\n

Land<\/strong>: T\u00fcrkei  <\/p>\n\n\n\n

LGMD Unter-Typ<\/strong>: LGMD 2B\/R2 Dysferlin-bezogen<\/p>\n\n\n\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>:<\/p>\n\n\n\n

Die Diagnose wurde bei mir im Alter von 25 Jahren gestellt.<\/p>\n\n\n\n

Was waren Ihre ersten Symptome?<\/strong>:<\/p>\n\n\n\n

Zun\u00e4chst f\u00fchlte ich mich bei sich wiederholenden Bewegungen m\u00fcde. Die Schw\u00e4che schien in meinen Kn\u00f6cheln zu beginnen. Es war mehr in meinem linken Fu\u00df.<\/strong><\/p>\n\n\n\n

Haben Sie andere Familienmitglieder, die LGMD haben?<\/strong><\/p>\n\n\n\n

Nein, es gibt niemanden in meiner Familie, der dieselbe Diagnose hat.<\/p>\n\n\n\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong><\/p>\n\n\n\n

Am Anfang war ich leicht m\u00fcde. Da ich Lehrer war, schien sich langes Stehen negativ auf meine Arbeitsleistung auszuwirken. Ich begann, mit einem Stock zu gehen, hatte aber Schwierigkeiten, zur Arbeit zu kommen. Ich begann, St\u00fchle zu benutzen.<\/p>\n\n\n\n

Da es sich um eine langsam fortschreitende Muskelerkrankung handelt, hatte ich Schwierigkeiten, mich meinem Umfeld zu erkl\u00e4ren.<\/strong><\/p>\n\n\n\n

Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong>:<\/p>\n\n\n\n

Nachdem ich den Lehrerberuf aufgegeben hatte, dachte ich, ich sollte das Leben anderer ber\u00fchren. Zun\u00e4chst arbeitete ich f\u00fcr T\u00fcrkiye Kas Hastal\u0131klar\u0131 Derne\u011fi (T\u00fcrkische Organisation f\u00fcr Muskelkrankheiten - wie MDA). Sp\u00e4ter habe ich auch f\u00fcr HASGAP (Patient Volunteers Network) gearbeitet. Ich arbeite immer noch ehrenamtlich f\u00fcr die Abteilung f\u00fcr Muskelkrankheiten in Izmir-T\u00fcrkei. Seit meiner Schulzeit habe ich eine Leidenschaft f\u00fcr Poesie und Schreiben. Ich habe zwei Gedichtb\u00e4nde geschrieben (Mondblaue N\u00e4chte und Ein Meer ohne Ufer).<\/p>\n\n\n\n

Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind?<\/strong><\/p>\n\n\n\n

Das Leben mit LGMD hat es mir erm\u00f6glicht, den Tod in der Tasche zu tragen und so mehr vom Leben zu genie\u00dfen. Es machte es produktiver. Es hat das Leben dazu gebracht, mehr zu ber\u00fchren.<\/p>\n\n\n\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>:<\/p>\n\n\n\n

Die Welt kann unsere Welt nur kennenlernen, wenn wir etwas bewirken. Wir k\u00f6nnen nicht \u00fcber die Ver\u00e4nderung unserer Lebensqualit\u00e4t sprechen, wenn wir nicht tr\u00e4umen, produzieren und das, was wir produzieren, teilen. Die meisten von uns k\u00e4mpfen gegen ihre Krankheiten. Wenn wir dabei nicht tr\u00e4umen und uns nicht anstrengen, k\u00f6nnen wir nichts \u00e4ndern. Mentalit\u00e4ten, die nicht tr\u00e4umen und produzieren, k\u00f6nnen dies nicht verstehen.<\/p>\n\n\n\n

Ich m\u00f6chte, dass sie wissen, dass unser Herz und unser Gehirn arbeiten.<\/p>\n\n\n\n

Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was w\u00fcrden Sie als Erstes tun wollen?<\/strong>:<\/p>\n\n\n\n

Ich w\u00fcrde meine Fantasie ver\u00e4ndern. Ich w\u00fcrde durch die Galaxien rennen und in den Kinderparks der Galaxien spielen. Um weitere \"LGMD Spotlight Interviews\" zu lesen oder um sich f\u00fcr ein Interview zu melden, besuchen Sie bitte unsere Website unter: http:\/\/lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u201d  Name:  \u0130brahim                                 Age:  55 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":3277,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[],"class_list":["post-3276","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: \u0130brahim - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2020\/06\/16\/ibrahim\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: \u0130brahim - 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