{"id":3332,"date":"2020-07-07T21:55:22","date_gmt":"2020-07-08T02:55:22","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3332"},"modified":"2024-02-09T14:24:36","modified_gmt":"2024-02-09T14:24:36","slug":"individual-with-lgmd-eric","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2020\/07\/07\/individual-with-lgmd-eric\/","title":{"rendered":"EINZELPERSON MIT LGMD: Eric"},"content":{"rendered":"
\"\"<\/figure><\/div>\n\n\n\n

LGMD \"SPOTLIGHT INTERVIEW\" <\/strong><\/p>\n\n\n\n

Name<\/strong>: Eric\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Alter<\/strong>: 23 Jahre alt<\/p>\n\n\n\n

Land<\/strong>: USA   <\/p>\n\n\n\n

LGMD Unter-Typ<\/strong>: LGMD 2B\/R2 Dysferlin-bezogen<\/p>\n\n\n\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>:<\/p>\n\n\n\n

Als ich zwei Jahre alt war, wurde bei mir f\u00e4lschlicherweise eine Muskelmyopothie diagnostiziert. Zwei Jahrzehnte sp\u00e4ter wurde bei mir genau LGMD diagnostiziert.                                 <\/p>\n\n\n\n

Was waren Ihre ersten Symptome?<\/strong>:<\/p>\n\n\n\n

Meine ersten Symptome waren Sprachverz\u00f6gerungen, Gehbehinderung und ich konnte nicht stillsitzen.<\/p>\n\n\n\n

Haben Sie andere Familienmitglieder, die LGMD haben?<\/strong>:<\/strong><\/p>\n\n\n\n

Nein, ich bin der einzige in meiner Familie mit LGMD.<\/p>\n\n\n\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>:<\/p>\n\n\n\n

Es gibt eine ganze Reihe von Herausforderungen, die gr\u00f6\u00dfte Herausforderung ist f\u00fcr mich im Moment das Treppensteigen.<\/p>\n\n\n\n

Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong>:<\/p>\n\n\n\n

Meine gr\u00f6\u00dfte Errungenschaft ist die Gr\u00fcndung und Eintragung meiner gemeinn\u00fctzigen Organisation Deletethewordcant. Und ich werde meinen Master in Psychologie machen.<\/p>\n\n\n\n

Wie hat LGMD dich zu der Person gemacht, die du heute bist?<\/strong>:<\/strong><\/p>\n\n\n\n

Es hat mich beeinflusst, weil ich st\u00e4rker und h\u00e4rter sein musste im Umgang mit der Schule, mit R\u00fcpeln, mit allt\u00e4glichen Dingen und vielem mehr.<\/p>\n\n\n\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>:<\/p>\n\n\n\n

Die Welt sollte wissen, dass man, egal ob man LGMD hat oder nicht, immer an sich glauben sollte. Es gibt auch Dinge, mit denen man sich schwer tut oder die mehr Zeit brauchen, aber man darf nie aufgeben. Sagen Sie immer: ICH KANN!<\/p>\n\n\n\n

Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was w\u00fcrden Sie als Erstes tun wollen?<\/strong>:<\/p>\n\n\n\n

Wenn ich morgen geheilt w\u00fcrde, w\u00fcrde ich den h\u00f6chsten Berggipfel besteigen.<\/p>\n\n\n\n

Wenn Sie weitere \"LGMD Spotlight Interviews\" lesen oder sich f\u00fcr ein Interview zur Verf\u00fcgung stellen m\u00f6chten, besuchen Sie bitte unsere Website: http:\/\/lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

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