{"id":3506,"date":"2020-08-30T20:36:00","date_gmt":"2020-08-31T01:36:00","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3506"},"modified":"2025-02-28T20:15:47","modified_gmt":"2025-02-28T20:15:47","slug":"girdie","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/clinic-staff\/2020\/08\/30\/girdie\/","title":{"rendered":"Girdie: Unser LGMD-Botschafter und Maskottchen"},"content":{"rendered":"
\"\"<\/figure>\r\n\r\n\r\n\r\n

LGMD \"Spotlight Interview\"<\/strong><\/h3>\r\n\r\n\r\n\r\n

LGMD-Botschafter<\/strong>: Girdie<\/p>\r\n\r\n\r\n\r\n

Zugeh\u00f6rigkeit<\/strong>: LGMD Awareness Foundation, Inc.<\/p>\r\n\r\n\r\n\r\n

ROLLE:<\/strong> \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Advocacy-Botschafter<\/p>\r\n\r\n\r\n\r\n

WAS HAT SIE DAZU INSPIRIERT, SICH F\u00dcR DIE GLIEDERG\u00dcRTELMUSKELDYSTROPHIE ZU ENGAGIEREN?<\/strong><\/p>\r\n\r\n\r\n\r\n

Als LGMD LIMEmoji traf ich eine Gruppe erstaunlicher, talentierter, lustiger und attraktiver Leute. Sie erregten meine Aufmerksamkeit, weil sie alle lindgr\u00fcn gekleidet waren. Ich fand heraus, dass sie alle eines gemeinsam haben: Sie leben alle mit der seltenen neuromuskul\u00e4ren Krankheit Limb-Girdle Muscular Dystrophy (LGMD). Ich fand heraus, wie sie zusammenarbeiten, um die LGMD-Gemeinschaft miteinander zu verbinden. Sie bringen LGMD-Familien mit Menschen zusammen, die an der Entwicklung von Behandlungsmethoden f\u00fcr LGMD arbeiten.\u00a0<\/p>\r\n\r\n\r\n\r\n

WAS SIND IHRE ZIELE ALS LGMD-BOTSCHAFTERIN?<\/strong><\/p>\r\n\r\n\r\n\r\n

Als neueste LGMD-Botschafterin werde ich meine spritzige Pers\u00f6nlichkeit einsetzen, um andere \u00fcber LGMD aufzukl\u00e4ren. Ich werde vor allem in den sozialen Medien und in der Aufkl\u00e4rungsarbeit t\u00e4tig sein. Das bedeutet, dass ich die Welt erkunden und das Bewusstsein f\u00fcr LGMD verbreiten werde, indem ich sie ermutige, die folgenden Seiten zu besuchen www.lgmd-info.org<\/a> finden Sie Fakten \u00fcber LGMD, verf\u00fcgbare Ressourcen und bevorstehende Bildungsveranstaltungen.\u00a0\u00a0<\/p>\r\n\r\n\r\n\r\n

WIE WERDEN IHRE BEM\u00dcHUNGEN UM DIE INTERESSENVERTRETUNG DEN MENSCHEN MIT LGMD HELFEN?<\/strong><\/p>\r\n\r\n\r\n\r\n

Indem ich meinen geschmackvollen und lebensfrohen Geist auf meine Weltreise mitbringe, werde ich das Interesse an LGMD wecken. Ich werde sie wissen lassen, dass an einer Heilung f\u00fcr viele Formen von LGMD geforscht wird und ihnen Hoffnung geben. Ich werde lehren, dass Bewusstsein Macht bedeutet, und Macht bringt Heilung, Behandlung und \u00c4nderungen in der Politik. Ich werde zeigen, dass wir gemeinsam st\u00e4rker sind.<\/p>\r\n\r\n\r\n\r\n

WAS M\u00d6CHTEN SIE ANDEREN \u00dcBER DIE LGMD-AUFKL\u00c4RUNGSKAMPAGNE MITTEILEN?<\/strong><\/p>\r\n\r\n\r\n\r\n

Die Sensibilisierung kann auf viele verschiedene Arten erfolgen und macht einfach Spa\u00df! Du triffst nicht nur Menschen aus der ganzen Welt, sondern pflanzt auch Samen, damit sie ihr Verst\u00e4ndnis f\u00fcr LGMD erweitern k\u00f6nnen. Wie eine Limette w\u00e4chst das Bewusstsein von einem Samen zu einer Knospe und wird dann superschnell gr\u00fcn! Das ist sehr befriedigend.\u00a0\u00a0<\/p>\r\n\r\n\r\n\r\n

WAS GEF\u00c4LLT IHNEN AM BESTEN AN IHRER T\u00c4TIGKEIT ALS LGMD-BOTSCHAFTERIN?<\/strong><\/p>\r\n\r\n\r\n\r\n

Girdie, die LGMD-Botschafterin, zu sein, hat mir das Leben als LIMEmoji vers\u00fc\u00dft! Ich bin sehr stolz darauf, Teil der Mission zu sein, Menschen, die mit Limb-Girdle-Muskeldystrophie leben, und denen, die an einer Heilung arbeiten, zu helfen. Au\u00dferdem liebe ich es, mich mit coolen Leuten fotografieren zu lassen.<\/p>\r\n\r\n\r\n\r\n

WAS IST DIE GR\u00d6SSTE HERAUSFORDERUNG, \"GIRDIE THE LIMEmoji\" UND \"GIRDIE THE LGMD AWARENESS AMBASSADOR\" zu sein?<\/strong><\/p>\r\n\r\n\r\n\r\n

Die gr\u00f6\u00dfte Herausforderung ist es wirklich, f\u00fcr all die Selfies kameratauglich zu sein.<\/p>\r\n\r\n\r\n\r\n

WAS IST ETWAS EINZIGARTIGES AN IHNEN, DAS ANDERE WISSEN SOLLTEN?<\/strong><\/p>\r\n\r\n\r\n\r\n

Da ich Girdie hei\u00dfe (verstehst du? Girdle?) und die offizielle Farbe von LGMD Awareness lindgr\u00fcn ist, f\u00fchlte ich mich verpflichtet, mich an ihren Bem\u00fchungen zu beteiligen. Ich beschloss, meine nat\u00fcrliche limonengr\u00fcne Identit\u00e4t \u00fcber das kulinarische Vergn\u00fcgen hinaus zu nutzen und etwas in der Welt zu bewirken.\u00a0<\/p>\r\n\r\n\r\n\r\n\r\n\r\n

Ich kann es kaum erwarten, die Orte auf der Welt zu teilen, an denen ich andere LGMD-Botschafter treffe!\u00a0<\/p>","protected":false},"excerpt":{"rendered":"

LGMD “Spotlight Interview” LGMD Ambassador:\u00a0 Girdie Affliation:\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 LGMD Awareness Foundation, […]<\/p>","protected":false},"author":1,"featured_media":3516,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[105],"tags":[],"class_list":["post-3506","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-clinic-staff"],"acf":[],"yoast_head":"\nGirdie: Our LGMD Ambassador and Mascot - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/clinic-staff\/2020\/08\/30\/girdie\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Girdie: Our LGMD Ambassador and Mascot - 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