{"id":412,"date":"2015-01-06T21:59:11","date_gmt":"2015-01-07T03:59:11","guid":{"rendered":"http:\/\/mainstay-bg.com\/wp\/?p=138"},"modified":"2015-01-06T21:59:11","modified_gmt":"2015-01-07T03:59:11","slug":"138","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/","title":{"rendered":"EINZELPERSON MIT LGMD: Martijn"},"content":{"rendered":"<p>01\/06\/2015:<\/p>\n<p><span class=\"userContent\"><strong>NAME:<\/strong> Martijn\u00a0<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2015\/01\/LGMD2A-Martijn.png\"><img decoding=\"async\" class=\"lazyload  size-medium wp-image-146 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2015\/01\/LGMD2A-Martijn-300x169.png\" alt=\"LGMD2A - Martijn\" width=\"300\" height=\"169\" \/><\/a>\u00a0\u00a0\u00a0 <\/span><\/p>\n<p><span class=\"userContent\"><strong>ALTER:<\/strong> 23<br \/>\n<\/span><\/p>\n<p><span class=\"userContent\"><strong>LAND:<\/strong> Die Niederlande<br \/>\n<\/span><\/p>\n<p><span class=\"userContent\"><strong>LGMD Unter-Typ<\/strong>: LGMD 2A \/ Kalpainopathie<br \/>\n<\/span><\/p>\n<p><span class=\"userContent\"><span class=\"text_exposed_show\"><strong>IN WELCHEM ALTER WURDE BEI IHNEN DIE DIAGNOSE GESTELLT?<\/strong>\u00a0 Ungef\u00e4hr um meinen 15. Geburtstag herum.<\/span><\/span><\/p>\n<p><strong>WAS WAREN IHRE ERSTEN SYMPTOME?<\/strong><br \/>\nDie ersten Symptome zeigten sich, seit ich ein Baby war. Ich krabbelte wie eine Krabbe und war k\u00f6rperlich \"anders\" als meine Altersgenossen. Ich war in verschiedenen Sportarten aktiv, z. B. Turnen, Volleyball, Judo und Tennis. Aber meine Leistung lie\u00df aufgrund der fortschreitenden Muskelschw\u00e4che in meinem K\u00f6rper nach.<\/p>\n<p><strong>HABEN SIE ANDERE FAMILIENMITGLIEDER, DIE AN LGMD LEIDEN: \u00a0 <\/strong>Nein.<\/p>\n<p><strong>WAS SIND F\u00dcR SIE DIE GR\u00d6SSTEN HERAUSFORDERUNGEN IM LEBEN MIT LGMD:<\/strong><br \/>\nDie eher praktischen Probleme sind f\u00fcr mich schlimmer. Wenn ich zum Beispiel alleine auf einer Stra\u00dfe mit schiefen Gehwegplatten laufe, ist das eine ziemliche Herausforderung. Es erfordert viel Aufmerksamkeit, und das macht mich m\u00fcde. In den meisten F\u00e4llen entscheide ich mich f\u00fcr einen Rollstuhl, wenn ich l\u00e4ngere Strecken gehen muss. Au\u00dferdem ist es nicht mein liebstes Hobby, Fremden meine Muskelkrankheit zu erkl\u00e4ren. Ich bin etwas unsicher, wie viele Informationen ich geben soll. Einige von ihnen fragen nach dem 'ganzen Prozess' und den eher pers\u00f6nlichen Dingen. Und einige andere haben Angst, mich nach Details zu fragen. Es ist kein Problem f\u00fcr mich, \u00fcber meine Krankheit zu sprechen, aber es ist eine Herausforderung, herauszufinden, wie viele Informationen ich weitergeben soll.<\/p>\n<p><strong> WAS IST IHRE GR\u00d6SSTE ERRUNGENSCHAFT:<\/strong><br \/>\nH\u00e4tten Sie ein paar Sekunden Zeit? Zu meinen gr\u00f6\u00dften Errungenschaften geh\u00f6ren Fallschirmspringen, Studieren und all das, was gesunde Menschen als \"nicht m\u00f6glich\" f\u00fcr behinderte Menschen ansehen. Ich \u00fcberschreite in meinem Leben gerne die Grenzen. Ich bin immer auf der Suche nach Abenteuern, wie zum Beispiel Reisen mit Freunden (im Februar 2015 haben wir eine Reise nach Island geplant) und so weiter. Eine pers\u00f6nliche Errungenschaft f\u00fcr mich ist au\u00dferdem ein Vortrag \u00fcber meine Muskelerkrankung und meinen Umgang mit der Krankheit vor etwa 500 Medizinstudenten.<\/p>\n<p><strong>WIE HAT LGMD SIE ZU DER PERSON GEMACHT, DIE SIE HEUTE SIND?<\/strong><br \/>\nLGMD hat mein Leben auf jeden Fall beeinflusst! Sie hat mich in vielerlei Hinsicht reifer gemacht. Die Art und Weise, wie ich mit Problemen umgehe und mein Leben genie\u00dfe, hat sich seit meiner Diagnose deutlich ver\u00e4ndert.<\/p>\n<p><strong>WAS SOLL DIE WELT \u00dcBER LGMD WISSEN?<\/strong><br \/>\nMenschen mit LGMD oder einer anderen Muskelkrankheit unterscheiden sich nicht von gesunden Menschen, sie brauchen nur manchmal ein wenig Unterst\u00fctzung. Sprechen Sie auch nicht mit der Person hinter dem Rollstuhl, sondern sprechen Sie direkt mit der Person im Rollstuhl.<\/p>\n<p><strong> WENN IHRE LGMD MORGEN \"GEHEILT\" WERDEN K\u00d6NNTE, WAS W\u00c4RE DAS ERSTE, WAS SIE TUN W\u00dcRDEN?<\/strong><br \/>\nIch w\u00fcrde gerne alleine Sky Diving machen!<\/p>","protected":false},"excerpt":{"rendered":"<p>01\/06\/2015: NAME: Martijn\u00a0\u00a0\u00a0\u00a0 AGE: 23 COUNTRY: The Netherlands LGMD Sub-Type: [&hellip;]<\/p>","protected":false},"author":1,"featured_media":146,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,15,17],"class_list":["post-412","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-lgmd2a","tag-netherlands"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - 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