{"id":413,"date":"2015-01-12T22:03:55","date_gmt":"2015-01-13T04:03:55","guid":{"rendered":"http:\/\/mainstay-bg.com\/wp\/?p=141"},"modified":"2015-01-12T22:03:55","modified_gmt":"2015-01-13T04:03:55","slug":"irina","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/01\/12\/irina\/","title":{"rendered":"EINZELPERSON MIT LGMD: Irina"},"content":{"rendered":"

01\/12\/2015:<\/p>\n

NAME<\/strong>: Irina\u00a0 \"LGMD2A<\/a> <\/span><\/p>\n

AGE<\/strong>: 18
\n<\/span><\/p>\n

LAND:<\/strong> Frankreich
\n<\/span><\/p>\n

LGMD Unter-Typ:<\/strong> LGMD 2A \/ Kalpainopathie<\/span><\/p>\n

IN WELCHEM ALTER WURDE BEI IHNEN DIE DIAGNOSE GESTELLT?<\/strong> Als ich 14 Jahre alt war.<\/p>\n

WAS WAREN IHRE ERSTEN SYMPTOME?<\/strong>
\nDas erste Symptom, das bei mir auftrat, waren Schwierigkeiten beim Laufen.<\/p>\n

HABEN SIE ANDERE FAMILIENMITGLIEDER, die an LGMD leiden: Nein. <\/strong>
\n WAS SIND F\u00dcR SIE DIE GR\u00d6SSTEN HERAUSFORDERUNGEN IM LEBEN MIT LGMD:<\/strong>
\nTreppen ... es gibt einfach so viele davon! Au\u00dferdem wei\u00df man nicht, ob die Leute Mitleid oder nur Mitleid empfinden.<\/p>\n

WAS IST IHRE GR\u00d6SSTE ERRUNGENSCHAFT:<\/strong>
\nIch konnte die Kathedrale Santa Maria del Fiore, die in Italien auch als \"Dom\" bekannt ist, erklimmen. Es sind 465 zerm\u00fcrbende Stufen bis zur Spitze! Aber noch besser als das ist meine gr\u00f6\u00dfte Errungenschaft, gl\u00fccklich zu bleiben und immer zu l\u00e4cheln, egal was passiert.<\/p>\n

WIE HAT LGMD SIE ZU DER PERSON GEMACHT, DIE SIE HEUTE SIND?<\/strong>
\nDas Wissen, dass ich LGMD habe, hat mich erwachsener oder reifer f\u00fcr mein Alter werden lassen. Ich bin ruhig und entspannt geworden, weil ich mich nicht mehr von Kleinigkeiten st\u00f6ren lasse. Ich merke auch, dass ich mir weniger Sorgen mache - nur \u00fcber das, was wichtig ist. Ich habe keine Zeit, mich um Kleinigkeiten zu k\u00fcmmern.<\/p>\n

WAS SOLL DIE WELT \u00dcBER LGMD WISSEN?<\/strong>:
\nIch m\u00f6chte, dass die Menschen wissen, dass es die Krankheit LGMD gibt! Nur weil jemand Schwierigkeiten beim Laufen hat, sollte man ihn nicht als faul bezeichnen. Und wenn ein M\u00e4dchen einen Gehstock benutzt, dann wahrscheinlich, weil sie ihn braucht - es geht nicht darum, gut auszusehen!<\/p>\n

WENN IHRE LGMD MORGEN \"GEHEILT\" WERDEN K\u00d6NNTE, WAS W\u00dcRDEN SIE ALS ERSTES TUN WOLLEN?<\/strong>:
\nUm dem Bus hinterher zu rennen, den ich gerade verpasst habe!<\/p>","protected":false},"excerpt":{"rendered":"

01\/12\/2015: NAME: Irina\u00a0 AGE: 18 COUNTRY: France LGMD Sub-Type: LGMD […]<\/p>","protected":false},"author":1,"featured_media":144,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,18,15],"class_list":["post-413","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-france","tag-lgmd2a"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Irina<\/title>\n<meta name=\"description\" content=\"Irina, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/01\/12\/irina\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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