{"id":420,"date":"2015-03-06T21:58:49","date_gmt":"2015-03-07T03:58:49","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=316"},"modified":"2015-03-06T21:58:49","modified_gmt":"2015-03-07T03:58:49","slug":"nikita","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/03\/06\/nikita\/","title":{"rendered":"INDIVIDUAL WITH LGMD: Nikita"},"content":{"rendered":"

03\/06\/2015:<\/p>\n

Name<\/strong>: Nikita\u00a0\u00a0\u00a0 Alter<\/strong>: 27 Yrs.\"Unknown<\/a><\/p>\n

Land<\/strong>: Indien<\/p>\n

LGMD Unter-Typ<\/strong>:\u00a0 unknown<\/p>\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>:<\/p>\n

Symptoms since I was 21Yrs<\/p>\n

Was waren Ihre ersten Symptome?<\/strong>:<\/p>\n

Tripping while running , tiredness on climbing for long.<\/p>\n

Haben Sie andere Familienmitglieder, die LGMD haben?<\/strong>:\u00a0\u00a0 <\/strong>Nein<\/p>\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>:<\/p>\n

Currently I can walk , but I need support for climbing upstairs, also I cannot get up from ground level on my own now.\u00a0 So, stairs, high slopes and getting up from flat ground are my greatest challenges currently.\u00a0 But as this issue will progress, I feel my real issue will be depending on others for help.\u00a0 As I am a very independent person and I resist taking help as much as I can.\u00a0 My challenges will become physical and mental both.<\/p>\n

Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong>:<\/p>\n

LGMD has made me stronger in a lot of ways, mentally mostly. I now see how a few things can be done in different ways rather than the usual normal ways. I took some time to accept this change, but I think it makes me more confident and practical in life.\u00a0 It was a small incident that I wouldn\u2019t be able to forget. It was a trip with friends and they wanted to go river rafting, I wanted to ditch them as I wasn\u2019t sure how I would get in, get out and climb up d hill. My friends pushed me hard and said a funny thing\u2026 If you drop we are 5 to pick you up, you aren\u2019t that heavy, brought a smile to my face and I went for it. I not only did rafting, but I went down in the cold water of Ganges and had the best experience. When the rafting was over, we had a hill to climb up, I used the paddles to get up and slowly I was there. One of my friend said\u2026.. Proud of you and everyone clapped. My confidence level grew 10 times!<\/p>\n

Wie hat LGMD dich zu der Person gemacht, die du heute bist?<\/strong>:<\/strong><\/p>\n

As I mentioned above, I have become more matured, strong and now I see that life is not what we always expect it to be. Things go terribly wrong and we need to put efforts to still keep moving and smiling. Be thankful for what we have and not crib about petty issues.<\/p>\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>:<\/p>\n

The biggest issue in my country would be lack of disable friendly zones , we are a developing nation and we do not have right amenities for handling disabilities. It\u2019s not only the infrastructure but also the perception that people have about disabled. Generally people would sympathize and assume that we have to be dependent on someone throughout our lives. I would want that to change. I would want people to accept me for what I am and instead of sympathizing just treat me as a normal person.<\/p>\n

Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was w\u00fcrden Sie als Erstes tun wollen?<\/strong>:<\/p>\n

I would run a mile \ud83d\ude00 , climb upstairs every day and keep myself fit to not ruin my health with any other disease to come.\u00a0 And yes\u2026.. Dance till I drop \ud83d\ude00<\/p>","protected":false},"excerpt":{"rendered":"

03\/06\/2015: Name: Nikita\u00a0\u00a0\u00a0 Age: 27 Yrs. 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