{"id":5172,"date":"2021-05-17T20:23:28","date_gmt":"2021-05-17T20:23:28","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5172"},"modified":"2024-02-09T14:24:21","modified_gmt":"2024-02-09T14:24:21","slug":"5172","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/","title":{"rendered":"EINZELPERSON MIT LGMD: Maria"},"content":{"rendered":"
\"Lgmd1b<\/span><\/div>

\u00a0<\/strong><\/p>\n

Name<\/strong>: Maria Alter<\/strong>: 29 Jahre alt<\/p>\n

Land<\/strong>: USA<\/p>\n

LGMD Unter-Typ<\/strong>: LGMD 1B<\/p>\n

 <\/p>\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>:<\/p>\n

Urspr\u00fcnglich wurde bei mir im Alter von zwei Jahren SMA diagnostiziert. Im Alter von 15 Jahren wurde ich dann mit Gliederg\u00fcrtel-Muskeldystrophie neu diagnostiziert.<\/p>\n

Was waren Ihre ersten Symptome?<\/strong>:<\/p>\n

Meine Eltern sagten, ich sei erst mit 17 Monaten gelaufen. Ich bin auch gewatschelt und habe schon als Kleinkind meine Arme benutzt, um mich aus dem Sitzen aufzurichten.<\/p>\n

Haben Sie andere Familienmitglieder, die LGMD haben?<\/strong><\/p>\n

Nein, ich bin die einzige Person in meiner Familie mit LGMD.<\/p>\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>:<\/p>\n

Geistig: Die Annahme, dass wir kein normales Leben f\u00fchren, ist f\u00fcr mich die gr\u00f6\u00dfte Herausforderung. K\u00f6rperlich: Ich habe gelernt, die Entwicklung zu akzeptieren, wenn ich merke, dass etwas schw\u00e4cher wird.<\/p>\n

Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong>:<\/p>\n

Ich bekam meinen F\u00fchrerschein und mein eigenes Auto. Dieser Prozess dauerte zwei lange Jahre. Es f\u00fchlte sich an, als w\u00e4re nie ein Ende in Sicht gewesen. Mein Auto hat mein Leben ver\u00e4ndert und hilft mir, so unabh\u00e4ngig wie m\u00f6glich zu bleiben.<\/p>\n

Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind?<\/strong><\/p>\n

Das hat meine Pers\u00f6nlichkeit und mich definitiv gepr\u00e4gt. Meine k\u00e4mpferische Pers\u00f6nlichkeit kommt von meiner Entschlossenheit, anderen zu zeigen, dass wir f\u00e4hig sind. Meine leidenschaftliche Seite kommt daher, dass ich von Anfang an gek\u00e4mpft habe, sogar schon als Kind. Das Aufwachsen mit einer Behinderung hat mich in einer Weise geformt, die ich mir nicht vorstellen kann. Ich wei\u00df, dass diese Krankheit mich zu der Maria gemacht hat, die jeder kennt.<\/p>\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>:<\/p>\n

Ich m\u00f6chte, dass die Menschen wissen, dass es sich um eine seltene Krankheit handelt, f\u00fcr die es keine Behandlung oder Heilung gibt. Au\u00dferdem m\u00f6chte ich von den Berggipfeln schreien, dass es sich nicht um MS handelt!<\/p>\n

Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was w\u00fcrden Sie als Erstes tun wollen?<\/strong>:<\/p>\n

Ich w\u00fcrde loslaufen, um meine f\u00fcnf Nichten und Neffen abzuholen. Ich w\u00fcrde ins Einkaufszentrum gehen und mir ein Outfit aussuchen, ohne mir Sorgen machen zu m\u00fcssen, dass ich zu d\u00fcnn bin, um in irgendetwas zu passen. Und dann w\u00fcrde ich wahrscheinlich Putten gehen. Das ist definitiv etwas, das ich vermisse und das fr\u00fcher ein gro\u00dfer Teil meiner Kindheit war. Mein Vater hat meine Schwestern und mich als Kinder fast jede Woche mitgenommen, und so wurde das zu einer meiner Lieblingsbesch\u00e4ftigungen.<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5173,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,44],"tags":[],"class_list":["post-5172","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd1b"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD:\u00a0 Maria - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD:\u00a0 Maria - LGMD Awareness Foundation\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2021-05-17T20:23:28+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-02-09T14:24:21+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/05\/LGMD1B-Maria-D.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1280\" \/>\n\t<meta property=\"og:image:height\" content=\"720\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"aoss@charter.net\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"aoss@charter.net\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/\"},\"author\":{\"name\":\"aoss@charter.net\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/c054968884f9011521fbf0d4c05e8511\"},\"headline\":\"INDIVIDUAL WITH LGMD:\u00a0 Maria\",\"datePublished\":\"2021-05-17T20:23:28+00:00\",\"dateModified\":\"2024-02-09T14:24:21+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/\"},\"wordCount\":982,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/05\/LGMD1B-Maria-D.png\",\"articleSection\":[\"Individuals with LGMD - Interviews\",\"LGMD1B\"],\"inLanguage\":\"de-DE\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/\",\"url\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/\",\"name\":\"INDIVIDUAL WITH LGMD:\u00a0 Maria - LGMD Awareness Foundation\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/05\/LGMD1B-Maria-D.png\",\"datePublished\":\"2021-05-17T20:23:28+00:00\",\"dateModified\":\"2024-02-09T14:24:21+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#breadcrumb\"},\"inLanguage\":\"de-DE\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"de-DE\",\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#primaryimage\",\"url\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/05\/LGMD1B-Maria-D.png\",\"contentUrl\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/05\/LGMD1B-Maria-D.png\",\"width\":1280,\"height\":720,\"caption\":\"Lgmd1b Maria D\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD:\u00a0 Maria\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"de-DE\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"de-DE\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/c054968884f9011521fbf0d4c05e8511\",\"name\":\"aoss@charter.net\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"de-DE\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/ae9711d6d07e76026e99e44662991879?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/ae9711d6d07e76026e99e44662991879?s=96&d=mm&r=g\",\"caption\":\"aoss@charter.net\"}}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"INDIVIDUAL WITH LGMD:\u00a0 Maria - LGMD Awareness Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/","og_locale":"de_DE","og_type":"article","og_title":"INDIVIDUAL WITH LGMD:\u00a0 Maria - LGMD Awareness Foundation","og_url":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2021-05-17T20:23:28+00:00","article_modified_time":"2024-02-09T14:24:21+00:00","og_image":[{"width":1280,"height":720,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/05\/LGMD1B-Maria-D.png","type":"image\/png"}],"author":"aoss@charter.net","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"aoss@charter.net","Est. reading time":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#article","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/"},"author":{"name":"aoss@charter.net","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/c054968884f9011521fbf0d4c05e8511"},"headline":"INDIVIDUAL WITH LGMD:\u00a0 Maria","datePublished":"2021-05-17T20:23:28+00:00","dateModified":"2024-02-09T14:24:21+00:00","mainEntityOfPage":{"@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/"},"wordCount":982,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#primaryimage"},"thumbnailUrl":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/05\/LGMD1B-Maria-D.png","articleSection":["Individuals with LGMD - Interviews","LGMD1B"],"inLanguage":"de-DE"},{"@type":"WebPage","@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/","url":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/","name":"INDIVIDUAL WITH LGMD:\u00a0 Maria - LGMD Awareness Foundation","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#primaryimage"},"image":{"@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#primaryimage"},"thumbnailUrl":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/05\/LGMD1B-Maria-D.png","datePublished":"2021-05-17T20:23:28+00:00","dateModified":"2024-02-09T14:24:21+00:00","breadcrumb":{"@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#breadcrumb"},"inLanguage":"de-DE","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/"]}]},{"@type":"ImageObject","inLanguage":"de-DE","@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#primaryimage","url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/05\/LGMD1B-Maria-D.png","contentUrl":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/05\/LGMD1B-Maria-D.png","width":1280,"height":720,"caption":"Lgmd1b Maria D"},{"@type":"BreadcrumbList","@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD:\u00a0 Maria"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"de-DE"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"de-DE","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/c054968884f9011521fbf0d4c05e8511","name":"aoss@charter.net","image":{"@type":"ImageObject","inLanguage":"de-DE","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/ae9711d6d07e76026e99e44662991879?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/ae9711d6d07e76026e99e44662991879?s=96&d=mm&r=g","caption":"aoss@charter.net"}}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/de\/wp-json\/wp\/v2\/posts\/5172","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/de\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/de\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/de\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/de\/wp-json\/wp\/v2\/comments?post=5172"}],"version-history":[{"count":1,"href":"https:\/\/www.lgmd-info.org\/de\/wp-json\/wp\/v2\/posts\/5172\/revisions"}],"predecessor-version":[{"id":5189,"href":"https:\/\/www.lgmd-info.org\/de\/wp-json\/wp\/v2\/posts\/5172\/revisions\/5189"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/de\/wp-json\/wp\/v2\/media\/5173"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/de\/wp-json\/wp\/v2\/media?parent=5172"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/de\/wp-json\/wp\/v2\/categories?post=5172"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/de\/wp-json\/wp\/v2\/tags?post=5172"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}