{"id":5356,"date":"2021-06-08T19:13:33","date_gmt":"2021-06-08T19:13:33","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5356"},"modified":"2024-02-09T14:24:05","modified_gmt":"2024-02-09T14:24:05","slug":"individual-with-lgmd-jasmine","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/06\/08\/individual-with-lgmd-jasmine\/","title":{"rendered":"EINZELPERSON MIT LGMD: Jasmine"},"content":{"rendered":"

\"Jasmine\"<\/p>\n

Name<\/strong>: Jasmin<\/p>\n

Alter<\/strong>: 24 Jahre alt<\/p>\n

Land<\/strong>: USA<\/p>\n

LGMD Unter-Typ<\/strong>: LGMD 2A\/R1 Calpain 3-verwandt<\/p>\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>?<\/p>\n

Ich wurde erst k\u00fcrzlich im Alter von 24 Jahren diagnostiziert.<\/p>\n

Was waren Ihre ersten Symptome? <\/strong><\/p>\n

Das Zehenlaufen war mein erstes Symptom. Die Schw\u00e4che habe ich schon als kleines M\u00e4dchen bemerkt. Ich erinnere mich, dass ich in der Grundschule, wenn ich an der Reihe war, gegen die andere Mannschaft Basketball zu spielen, ewig brauchte, um vom Boden aufzustehen und auf die andere Seite des Spielfelds zu laufen. Ich st\u00fctzte mich mit den H\u00e4nden auf den Knien ab, um aufzustehen. In der Mittelschule begann ich, Treppen zu meiden, weil ich merkte, dass meine Beine beim Treppensteigen schw\u00e4cher wurden. Dann konnte ich pl\u00f6tzlich nicht mehr auf den B\u00fcrgersteig oder die Stra\u00dfe gehen. Ich musste mein Bein mit der Hose hochheben, w\u00e4hrend ich versuchte, aufzustehen.<\/p>\n

Haben Sie andere Familienmitglieder, die LGMD haben?<\/strong>?<\/strong><\/p>\n

Ich bin die einzige Person in meiner Familie, bei der LGMD diagnostiziert wurde.<\/p>\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>?<\/p>\n

Die gr\u00f6\u00dfte Herausforderung im Leben mit LGMD ist es, meine Unabh\u00e4ngigkeit so lange wie m\u00f6glich zu bewahren.<\/p>\n

Was ist Ihre gr\u00f6\u00dfte Errungenschaft? <\/strong><\/p>\n

Ich habe vor kurzem mein Studium am Georgia Military College mit einem Associates Degree in Middle Grades Education abgeschlossen. Jetzt bin ich eine neue Austauschstudentin an der besten \"University of Georgia\" mit dem Hauptfach Middle Grades Education. Die gute Nachricht ist, dass ich ein Doppelstudium absolviere, bei dem ich meinen Master gleichzeitig mit meinem Bachelor abschlie\u00dfen werde! Ich plane, Mathematiklehrerin zu werden (mein Lieblingsfach). Je nach Verlauf meines MD-Studiums m\u00f6chte ich meine Karriereziele noch ein wenig weiter verfolgen: Als Alternative oder letzte Option m\u00f6chte ich Online-College-Professorin werden, wobei ich die meiste Zeit zu Hause bleiben und entweder Englisch oder Mathematik unterrichten kann.<\/p>\n

Wie hat LGMD dich zu der Person gemacht, die du heute bist?<\/strong>?<\/strong><\/p>\n

LGMD hat mich sehr dem\u00fctig und geduldig in jeder Situation gemacht, der ich mich stellen muss. Au\u00dferdem habe ich viele coole Tricks gelernt, wie ich mich zu Hause und unterwegs zurechtfinde, vor allem jetzt in diesem Alter und als junge Frau im College, die sich mit MD durch diese Welt bewegt!<\/p>\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>?<\/p>\n

Ich m\u00f6chte, dass die Welt wei\u00df, dass LGMD anders ist als die meisten anderen Behinderungen. Wenn wir fallen, k\u00f6nnen wir nicht vom Boden aufstehen. Das hei\u00dft, dass es bei den meisten von uns nicht funktioniert, den Arm zu nehmen, um uns aufzuhelfen. Wir m\u00fcssen buchst\u00e4blich an der Taille hochgezogen werden, um uns aufzurichten, bis wir in der Lage sind, unseren K\u00f6rper in einer Position zu halten, in der wir stehen k\u00f6nnen. Und wenn unser K\u00f6rper \u00fcberanstrengt wurde, kann es einige Tage dauern, bis wir uns davon erholt haben. Einige der einfachen Aufgaben, die gesunde Menschen erledigen k\u00f6nnen, sind uns nicht m\u00f6glich. Wir m\u00fcssen auch erst dar\u00fcber nachdenken, bevor wir eine bestimmte Aufgabe erledigen k\u00f6nnen. Mit dieser Krankheit neigen wir dazu, uns vor jeder Reise zu vergewissern, dass der Ort zug\u00e4nglich ist und dass wir dort untergebracht sind.<\/p>\n

Wenn Ihr LGMD sein k\u00f6nnte <\/strong>\"<\/strong>Wenn Sie morgen \"geheilt\" w\u00e4ren, was w\u00fcrden Sie dann als Erstes tun wollen?<\/strong>?<\/p>\n

Ich w\u00fcrde gerne von einem niedrigen Stuhl aufstehen, weil das im Moment eines meiner gr\u00f6\u00dften Probleme mit LGMD ist.<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5355,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,15,70],"class_list":["post-5356","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-lgmd2a","tag-lgmd2a-calpainopathy-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Jasmine - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/06\/08\/individual-with-lgmd-jasmine\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Jasmine - 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