{"id":544,"date":"2015-04-03T14:49:59","date_gmt":"2015-04-03T19:49:59","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=544"},"modified":"2015-04-03T14:49:59","modified_gmt":"2015-04-03T19:49:59","slug":"lacey","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/","title":{"rendered":"EINZELPERSON MIT LGMD: Lacey"},"content":{"rendered":"<p>04\/03\/2015<\/p>\n<p><strong>NAME<\/strong>:  Lacey \u00a0\u00a0\u00a0<strong>AGE<\/strong>:\u00a042<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2015\/04\/LGMD2i-Lacey.png\"><img decoding=\"async\" class=\"lazyload  size-medium wp-image-542 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2015\/04\/LGMD2i-Lacey-300x169.png\" alt=\"LGMD2i - Lacey\" width=\"300\" height=\"169\" \/><\/a><\/p>\n<p><strong>LAND<\/strong>: Vereinigte Staaten<\/p>\n<p><strong>LGMD Unter-Typ<\/strong>: LGMD2i<\/p>\n<p>&nbsp;<\/p>\n<p><strong>IN WELCHEM ALTER WURDEN SIE DIAGNOSTIZIERT?<\/strong>:<\/p>\n<p>Bei mir wurde mit 16 Jahren Muskeldystrophie und mit 34 Jahren LGMD2i diagnostiziert. Beide Diagnosen wurden per Telefon gestellt. Im Nachhinein w\u00fcnschte ich, die \u00c4rzte h\u00e4tten es mir pers\u00f6nlich gesagt, ich hatte so viele Fragen und war ver\u00e4ngstigt.<\/p>\n<p><strong>WAS WAREN IHRE ERSTEN SYMPTOME?<\/strong>:<\/p>\n<p>Die ersten Symptome, die ich bemerkte, waren schmerzhafte Beinkr\u00e4mpfe beim Laufen und dass ich nicht mit den anderen Kindern mithalten konnte. Mir wurde gesagt, ich sei faul und solle mich im Sportunterricht und beim Softball mehr anstrengen. Ich erinnere mich, dass ich dachte: \"Ich bem\u00fche mich so sehr ich kann, wie kann ich es schaffen, schneller zu laufen als die anderen Kinder?\"<\/p>\n<p><strong>HABEN SIE ANDERE FAMILIENMITGLIEDER, DIE AN LGMD LEIDEN<\/strong>:<\/p>\n<p>Nein, ich habe keine anderen Familienmitglieder mit LGMD.<\/p>\n<p><strong>WAS SIND F\u00dcR SIE DIE GR\u00d6SSTEN HERAUSFORDERUNGEN IM LEBEN MIT LGMD<\/strong>:<\/p>\n<p>Die st\u00e4ndigen Ver\u00e4nderungen und der Versuch, Wege zu finden, sich an meine neue Normalit\u00e4t anzupassen.<\/p>\n<p><strong>WAS IST IHRE GR\u00d6SSTE ERRUNGENSCHAFT?<\/strong>:<\/p>\n<p>Meine gr\u00f6\u00dfte Errungenschaft ist es, jeden Tag so zu leben, wie er kommt, mit Mitgef\u00fchl und Mut, eine Ehefrau f\u00fcr meinen unterst\u00fctzenden Ehemann und eine Mutter f\u00fcr unsere liebevollen M\u00e4dchen zu sein.<\/p>\n<p><strong>WIE HAT LGMD SIE ZU DER PERSON GEMACHT, DIE SIE HEUTE SIND<\/strong>:<\/p>\n<p>LGMD hat mich gezwungen, langsamer zu werden, pr\u00e4sent und bewusst zu sein. Durch diese Krankheit bin ich ein st\u00e4rkerer, einf\u00fchlsamerer Mensch geworden. Ich habe gelernt, gleichzeitig zu weinen und zu lachen.<\/p>\n<p><strong>WAS SOLL DIE WELT \u00dcBER LGMD WISSEN?<\/strong>:<\/p>\n<p>Ich w\u00fcrde mir w\u00fcnschen, dass die Welt mehr \u00fcber LGMD erf\u00e4hrt, insbesondere die \u00c4rzte. Ich wei\u00df, dass es f\u00fcr viele von uns ein langer Weg bis zur Diagnose ist, aber das muss nicht sein. Einige LGMD-Patienten haben Herz- und Lungenprobleme, und ich denke, es ist wichtig, dass sie von sachkundigen \u00c4rzten \u00fcberwacht und unterst\u00fctzt werden.<\/p>\n<p><strong>WENN IHRE LGMD MORGEN \"GEHEILT\" WERDEN K\u00d6NNTE, WAS W\u00dcRDEN SIE ALS ERSTES TUN WOLLEN?<\/strong>:  Das erste, was ich tun w\u00fcrde, ist laufen - ich w\u00fcnschte, ich k\u00f6nnte mich daran erinnern, wie es sich anf\u00fchlt.  Manchmal, wenn ich mit meinem Roller fahre, schlie\u00dfe ich die Augen und tue so, als w\u00fcrde ich rennen - das wird ein bisschen gef\u00e4hrlich \ud83d\ude42 .<\/p>","protected":false},"excerpt":{"rendered":"<p>04\/03\/2015 NAME: \u00a0Lacey \u00a0\u00a0\u00a0AGE:\u00a042 COUNTRY:\u00a0United States LGMD Sub-Type:\u00a0LGMD2i &nbsp; AT [&hellip;]<\/p>","protected":false},"author":1,"featured_media":542,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[36,16],"class_list":["post-544","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i","tag-united-states"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>LGMD Spotlight Interview - Lacey<\/title>\n<meta name=\"description\" content=\"Lacey, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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