{"id":5561,"date":"2021-11-07T23:51:06","date_gmt":"2021-11-07T23:51:06","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5561"},"modified":"2024-02-09T14:23:59","modified_gmt":"2024-02-09T14:23:59","slug":"individual-with-lgmd-osman","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/","title":{"rendered":"EINZELPERSON MIT LGMD: Osman"},"content":{"rendered":"

\"\"<\/p>\n

LGMD \"SPOTLIGHT INTERVIEW\"<\/p>\n

Name:<\/strong>\u00a0 Osman<\/p>\n

Alter<\/strong>: 30 Jahre alt<\/p>\n

Land:<\/strong>\u00a0 T\u00fcrkei<\/p>\n

LGMD Unter-Typ:<\/strong>\u00a0 LGMD2D\/R3 Alpha-Sarkoglykan-verwandt<\/p>\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong><\/p>\n

Die Diagnose wurde bei mir im Alter von 16 Jahren gestellt.<\/p>\n

Was waren Ihre ersten Symptome?<\/strong><\/p>\n

Die ersten Symptome traten etwa im Alter von siebzehn Jahren auf. Ich hatte das Bed\u00fcrfnis, mich nach dem Laufen auszuruhen. Beim Treppensteigen war ich m\u00fcde. Nach einigen Jahren begann ich, mich beim Treppensteigen oder beim Aufstehen aus einer sitzenden Position festzuhalten. Im Alter von 25 Jahren konnte ich mich nicht mehr nach vorne lehnen und begann, langsam zu gehen, um nicht zu st\u00fcrzen.<\/p>\n

Haben Sie andere Familienmitglieder, die an LGMD leiden?<\/strong><\/p>\n

Ja, bei meiner Schwester wurde ebenfalls LGMD2D\/R3 diagnostiziert.<\/p>\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong><\/p>\n

Die gr\u00f6\u00dften Herausforderungen sind die Aktivit\u00e4ten des t\u00e4glichen Lebens. Ich kann mit meiner Familie nicht dorthin gehen, wo ich will, und keine Treppen steigen, ohne mich an etwas festzuhalten.<\/p>\n

Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong><\/p>\n

Meine gr\u00f6\u00dfte Errungenschaft ist, dass ich Computeringenieur bin und dabei geholfen habe, die LGMD Turkey Association zu gr\u00fcnden.<\/p>\n

Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind?<\/strong><\/p>\n

Ich bin ein Mensch mit hohem Bewusstsein geworden. Ich versuche, anderen Menschen in jeder Situation zu helfen, so gut ich kann. Ich versuche, meine Krankheit und andere Krankheiten anderen Menschen mitzuteilen.<\/p>\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong><\/p>\n

Ich m\u00f6chte, dass die Welt alles \u00fcber LGMD erf\u00e4hrt - die Symptome, die Herausforderungen, die Behandlung, die Rehabilitation, die neueste wissenschaftliche Forschung und die Organisation, die daran arbeitet, das Bewusstsein zu sch\u00e4rfen und den von dieser fortschreitenden neuromuskul\u00e4ren Krankheit betroffenen Personen und Familien Erleichterung zu verschaffen.<\/p>\n

Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was w\u00fcrden Sie dann als Erstes tun wollen?<\/strong><\/p>\n

Wenn ich geheilt bin, m\u00f6chte ich ununterbrochen laufen und Treppen an Orten steigen, vor denen ich mich fr\u00fcher gef\u00fcrchtet habe.<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5560,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,28],"tags":[108],"class_list":["post-5561","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2d","tag-lgmd2d-turkey"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Osman - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/\" 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