{"id":5855,"date":"2022-08-13T22:20:30","date_gmt":"2022-08-13T22:20:30","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5855"},"modified":"2024-02-09T14:23:52","modified_gmt":"2024-02-09T14:23:52","slug":"5855","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2022\/08\/13\/5855\/","title":{"rendered":"EINZELPERSON MIT LGMD: Arthur"},"content":{"rendered":"

\"<\/p>\n

Name<\/strong>: Arthur<\/p>\n

Alter<\/strong>: \u00a013<\/p>\n

Land<\/strong>: Frankreich<\/p>\n

LGMD Unter-Typ<\/strong>: LGMD 2C\/R5 Gamma-Sarkoglykan-verwandt<\/p>\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>?<\/p>\n

Die Diagnose wurde bei mir gestellt, als ich 9 Jahre alt war.<\/p>\n

Was waren Ihre ersten Symptome?<\/strong><\/p>\n

Seit ich klein bin, habe ich Probleme beim Laufen und Aufstehen, aber auch beim Treppensteigen.<\/p>\n

\u00a0<\/strong>Haben Sie andere Familienmitglieder, die an LGMD leiden?<\/strong><\/p>\n

Nein, ich habe eine Schwester, aber sie hat keine LGMD.<\/p>\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>?<\/p>\n

Es ist nicht leicht, unsere Schwierigkeiten als Kinder verst\u00e4ndlich zu machen. Oft glauben die Leute, dass wir Dinge nicht tun wollen, die wir nicht tun k\u00f6nnen, weil unser K\u00f6rper anders funktioniert.<\/p>\n

Trotz der Krankheit bleibe ich fr\u00f6hlich und ehrgeizig und hoffe, dass ich so lange wie m\u00f6glich aufbleiben kann.<\/p>\n

Was ist Ihr gr\u00f6\u00dfter ERFOLG?<\/strong><\/p>\n

Ich versuche, Sport auf meinem Niveau und in meinem Tempo zu betreiben, vor allem Fu\u00dfball, ich liebe die franz\u00f6sische Mannschaft und besonders Paris. Leider kann ich nicht rennen. Solange meine Muskeln mich halten k\u00f6nnen, werde ich weitermachen.<\/p>\n

Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind?<\/strong><\/p>\n

Ich bin ein k\u00e4mpferischer Mensch, ich will nicht vor der Krankheit kapitulieren, ich will sie \u00fcberwinden. Ich finde, dass kranke Menschen eine gro\u00dfe innere St\u00e4rke haben, die es zu bewahren gilt, um nicht zu schwach zu werden. Ich habe andere Menschen mit LGMD kennengelernt, und sie alle haben diese innere St\u00e4rke, und das gef\u00e4llt mir.<\/p>\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>?<\/p>\n

Ich m\u00f6chte, dass die Menschen wissen und verstehen, wie ernst die Krankheit ist und welche Risiken sie birgt, auch wenn sie im Kindesalter noch nicht sehr sichtbar ist. Es ist schwierig, das zu erkl\u00e4ren, weil andere denken, dass wir nichts tun wollen, und das kann seelisch sehr wehtun.<\/p>\n

Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was w\u00fcrden Sie als Erstes tun wollen?<\/strong>?<\/p>\n

Wenn ich geheilt bin, m\u00f6chte ich so lange wie m\u00f6glich auf einer gro\u00dfen geraden Linie laufen und ein gro\u00dfartiger Fu\u00dfballer werden und der Schnellste auf dem Platz sein. Aber ich m\u00f6chte auch weiter f\u00fcr andere Kinder mit seltenen Krankheiten k\u00e4mpfen. Ich hoffe, dass die Behandlungen bald ankommen werden.<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5856,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,75],"tags":[110],"class_list":["post-5855","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2c","tag-lgmd2c-france"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Arthur - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2022\/08\/13\/5855\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Arthur - 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