{"id":5884,"date":"2022-09-14T01:28:29","date_gmt":"2022-09-14T01:28:29","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5884"},"modified":"2024-02-09T14:23:51","modified_gmt":"2024-02-09T14:23:51","slug":"individual-with-lgmd-boonsub","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/lgmd2a\/2022\/09\/14\/individual-with-lgmd-boonsub\/","title":{"rendered":"EINZELPERSON MIT LGMD: Boonsub"},"content":{"rendered":"

\"<\/p>\n

Name<\/strong>: Boonsub<\/p>\n

Alter<\/strong>: \u00a031<\/p>\n

Land<\/strong>: THAILAND<\/p>\n

LGMD Unter-Typ<\/strong>: LGMD 2A\/R1 Calpain3-verwandt<\/p>\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>?<\/p>\n

Die Diagnose wurde bei mir im Alter von 20 Jahren gestellt.<\/p>\n

Was waren Ihre ersten Symptome?<\/strong><\/p>\n

Rhabdomyolyse (Muskelschmerzen und dunkler Urin) bei starker k\u00f6rperlicher Belastung.<\/p>\n

Haben Sie andere Familienmitglieder, die an LGMD leiden?<\/strong><\/p>\n

Nein, ich habe keine Familienmitglieder mit LGMD.<\/p>\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>?<\/p>\n

Seit meiner Diagnose ist das Laufen und Treppensteigen eine Herausforderung. Daher habe ich keine M\u00f6glichkeit, mit anderen zusammen abenteuerliche Aktivit\u00e4ten zu unternehmen.<\/p>\n

Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong><\/p>\n

Meine gr\u00f6\u00dfte Errungenschaft ist zur Zeit die Bildung.\u00a0<\/strong>Ich bin Medizinerin und auch Dozentin an der medizinischen Fakult\u00e4t. Au\u00dferdem habe ich den Master of Public Health an der Harvard T.H. Chan School of Public Health absolviert. Au\u00dferdem studiere ich im Ph.D.-Programm (Epidemiologie) an der Universit\u00e4t von Minnesota.<\/p>\n

Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind?<\/strong><\/p>\n

Mir ist klar, dass ich mit LGMD leben muss. Ich denke, nichts ist schlimmer als das. Obwohl LGMD meine Muskeln beeintr\u00e4chtigt, geht es meinem Gehirn noch gut. Was meine F\u00e4higkeiten angeht, so bin ich bereit, anderen zu helfen, insbesondere meinen Kollegen, Medizinstudenten und Freunden. LGMD lehrt mich, dass das Leben zu kurz ist, um es zu verschwenden. Ich wei\u00df nicht, wie lange ich auf dieser Welt leben kann. Deshalb tue ich alles, was ich kann.<\/p>\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>?<\/p>\n

LGMD ist eine genetische Krankheit, die die Muskeln und den Verstand der Betroffenen beeintr\u00e4chtigt. Jeder Mensch hat jedoch Potenzial und kann es nutzen, um eine wunderbare Welt zu schaffen.<\/p>\n

Ich danke meinem Institut, meinen Lehrern, Freunden und meiner Mutter daf\u00fcr, dass sie mich im Laufe der Zeit in jeder Hinsicht unterst\u00fctzt haben.<\/p>\n

Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was w\u00fcrden Sie als Erstes tun wollen?<\/strong>?<\/p>\n

Ich werde laufen!<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5885,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[111],"class_list":["post-5884","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-calpainopathy-thailand"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Boonsub - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/lgmd2a\/2022\/09\/14\/individual-with-lgmd-boonsub\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Boonsub - 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