{"id":602,"date":"2015-04-20T15:21:34","date_gmt":"2015-04-20T20:21:34","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=602"},"modified":"2015-04-20T15:21:34","modified_gmt":"2015-04-20T20:21:34","slug":"602","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/","title":{"rendered":"EINZELPERSON MIT LGMD: Jane"},"content":{"rendered":"

04\/20\/2015:<\/p>\n

Name<\/strong>: Jane<\/p>\n

Alter<\/strong>: 18 Jahre alt<\/p>\n

\"LGMD2i<\/a><\/p>\n

Land<\/strong>: Vereinigte Staaten<\/p>\n

LGMD Unter-Typ<\/strong>: LGMD2i<\/p>\n

 <\/p>\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>:<\/p>\n

Die Diagnose wurde bei mir gestellt, als ich 5 Jahre alt war.<\/p>\n

Was waren Ihre ersten Symptome?<\/strong>:<\/p>\n

Es fiel mir schwer, Treppen zu steigen und mit Gleichaltrigen auf dem Spielplatz Schritt zu halten.<\/p>\n

Haben Sie andere Familienmitglieder, die LGMD haben?<\/strong><\/p>\n

Nein, ich bin die einzige Person in meiner Familie mit Gliederg\u00fcrtel-Muskeldystrophie.<\/p>\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>:<\/p>\n

Ich finde es schwierig, in einer fremden Umgebung nach begehbaren Wegen zu suchen. Es kann auch eine Herausforderung sein, mein Tempo zu halten - mehr als mein Freund.<\/p>\n

Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong>:<\/p>\n

Ich hatte im Oktober 2014 einen schweren Unfall. Meine gr\u00f6\u00dfte Errungenschaft ist, dass ich so hart daran gearbeitet habe, wieder unabh\u00e4ngig zu gehen. W\u00e4hrend meines Krankenhausaufenthaltes durfte ich meine Beine einen Monat lang nicht belasten. Aber nach mehreren Konsultationen mit mehreren \u00c4rzten haben sie die Anweisung r\u00fcckg\u00e4ngig gemacht. Ich habe jeden Tag hart gearbeitet, bis ich einen Monat sp\u00e4ter das Krankenhaus selbst\u00e4ndig verlassen konnte!<\/p>\n

Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind?<\/strong><\/p>\n

Sie hat mich gelehrt, \u00fcber den Tellerrand zu schauen, kreativ und originell zu sein.<\/p>\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>:<\/p>\n

Nur weil man k\u00f6rperlich behindert ist, hei\u00dft das nicht, dass man geistig behindert ist.<\/p>\n

Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was w\u00fcrden Sie als Erstes tun wollen?<\/strong>:<\/p>\n

Ich w\u00fcrde ein Rennen laufen und vor Freude springen!<\/p>","protected":false},"excerpt":{"rendered":"

04\/20\/2015: Name:\u00a0 Jane Age:\u00a0 18 yrs. old Country: \u00a0\u00a0United Stated […]<\/p>","protected":false},"author":1,"featured_media":603,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[36,16],"class_list":["post-602","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i","tag-united-states"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Jane<\/title>\n<meta name=\"description\" content=\"Jane, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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