{"id":606,"date":"2015-04-25T15:46:38","date_gmt":"2015-04-25T20:46:38","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=606"},"modified":"2015-04-25T15:46:38","modified_gmt":"2015-04-25T20:46:38","slug":"audrey","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/04\/25\/audrey\/","title":{"rendered":"EINZELPERSON MIT LGMD: Audrey"},"content":{"rendered":"

04\/25\/2015<\/p>\n

NAME<\/strong>: Audrey\"LGMD2i<\/a><\/p>\n

AGE<\/strong>: 42 Yrs. Alt<\/p>\n

LAND<\/strong>: Vereinigte Staaten<\/p>\n

LGMD Unter-Typ<\/strong>: LGMD2i<\/p>\n

IN WELCHEM ALTER WURDEN SIE DIAGNOSTIZIERT?<\/strong>:
\nBei mir wurde LGMD diagnostiziert, als ich 37 Jahre alt war. Vor meiner Diagnose hatte ich noch nie davon geh\u00f6rt.<\/p>\n

WAS WAREN IHRE ERSTEN SYMPTOME?<\/strong>:<\/p>\n

In meinen Zwanzigern bemerkte ich, dass ich Schwierigkeiten hatte, Treppen zu steigen, mich vom Boden zu erheben und meine Beine anzuheben. Leider wusste ich nicht, wie abnorm schwach ich wurde. Ich dachte, ich sei einfach nicht in Form oder unkoordiniert. Als ich wegen Schulterschmerzen eine Physiotherapie brauchte, schickte mich die Physiotherapeutin zur\u00fcck zu meinem Arzt, weil sie erkannte, dass etwas nicht stimmte.<\/p>\n

HABEN SIE ANDERE FAMILIENMITGLIEDER, DIE AN LGMD LEIDEN<\/strong>:<\/p>\n

Meine \u00e4ltere Schwester hat auch LGMD2i, aber ihr Krankheitsverlauf ist langsamer.<\/p>\n

WAS SIND F\u00dcR SIE DIE GR\u00d6SSTEN HERAUSFORDERUNGEN IM LEBEN MIT LGMD<\/strong>:<\/p>\n

Meine gr\u00f6\u00dfte Herausforderung besteht darin, Hilfe anzunehmen, ohne mich anderen zur Last zu fallen. Ich kann immer noch gehen, aber ich brauche im Alltag viel Hilfe von meiner Familie. Ich kann mich gl\u00fccklich sch\u00e4tzen, dass ich ein so gro\u00dfartiges famili\u00e4res Unterst\u00fctzungssystem habe. Manchmal kann ich gar nicht glauben, wie viel Gl\u00fcck ich habe!<\/p>\n

WAS IST IHRE GR\u00d6SSTE ERRUNGENSCHAFT?<\/strong>:<\/p>\n

Ich habe die letzten 23 Jahre damit verbracht, meinen 3 T\u00f6chtern eine Mutter zu sein. Die Mutterschaft ist sicherlich meine gr\u00f6\u00dfte Errungenschaft.<\/p>\n

WIE HAT LGMD SIE ZU DER PERSON GEMACHT, DIE SIE HEUTE SIND<\/strong>:<\/p>\n

LGMD hat es mir erm\u00f6glicht, einfach zu akzeptieren, was das Leben bietet. Angesichts dieser Diagnose und einer ungewissen Zukunft habe ich festgestellt, dass es mir immer noch gut geht... Ich kann das schaffen, und ich werde es schaffen!<\/p>\n

WAS SOLL DIE WELT \u00dcBER LGMD WISSEN?<\/strong>:<\/p>\n

Ich denke, es w\u00e4re gro\u00dfartig, wenn mehr Menschen auf LGMD aufmerksam w\u00fcrden. Die meisten \u00c4rzte, die ich kenne, haben noch nie davon geh\u00f6rt.<\/p>\n

WENN IHRE LGMD MORGEN \"GEHEILT\" WERDEN K\u00d6NNTE, WAS W\u00dcRDEN SIE ALS ERSTES TUN WOLLEN?<\/strong>:<\/p>\n

Wenn ich morgen geheilt w\u00e4re, w\u00fcrde ich rennen. Ich w\u00fcrde so weit rennen, wie ich kann, und dann die Treppe hochgehen. Ich w\u00fcrde jeder Person, die etwas fallen gelassen hat, helfen, es wieder aufzuheben. Ich w\u00fcrde einen sch\u00f6nen Garten anlegen und pflegen. Ich w\u00fcrde diese Beine niemals als selbstverst\u00e4ndlich ansehen!<\/p>","protected":false},"excerpt":{"rendered":"

04\/25\/2015 NAME: \u00a0Audrey AGE: 42 Yrs. Old COUNTRY: United States […]<\/p>","protected":false},"author":1,"featured_media":607,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[36,16],"class_list":["post-606","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i","tag-united-states"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Audrey<\/title>\n<meta name=\"description\" content=\"Audrey, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/04\/25\/audrey\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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