{"id":6061,"date":"2023-01-24T20:35:20","date_gmt":"2023-01-24T20:35:20","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=6061"},"modified":"2024-02-09T14:23:50","modified_gmt":"2024-02-09T14:23:50","slug":"individual-with-lgmd-heather","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2023\/01\/24\/individual-with-lgmd-heather\/","title":{"rendered":"EINZELPERSON MIT LGMD: Heather"},"content":{"rendered":"

\"<\/p>\n

Name<\/strong>: Heather<\/p>\n

Alter<\/strong>: 60 Jahre alt<\/p>\n

Land<\/strong>: USA<\/p>\n

LGMD Unter-Typ<\/strong>: LGMD2A\/R1 Calpain 3-Verwandt<\/p>\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>?<\/p>\n

Die Diagnose wurde bei mir im Alter von 30 Jahren gestellt.<\/p>\n

Was waren Ihre ersten SYMPTOME?<\/strong><\/p>\n

Zu meinen ersten Symptomen geh\u00f6rten ein Seitw\u00e4rtsgang, Schwierigkeiten beim Treppensteigen und St\u00fcrze.<\/p>\n

Haben Sie andere Familienmitglieder, die an LGMD leiden?<\/strong><\/p>\n

Nein, ich bin der einzige in meiner Familie mit LGMD.<\/p>\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>?<\/p>\n

Die gr\u00f6\u00dfte Herausforderung f\u00fcr mich ist es, so unabh\u00e4ngig wie m\u00f6glich zu bleiben, ohne Hilfe. Bislang ist mir das gelungen.<\/p>\n

Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong><\/p>\n

Meine gr\u00f6\u00dften Errungenschaften sind meine beiden Kinder, die Tatsache, dass ich weiterhin selbst\u00e4ndig leben kann und dass ich in meinem Elektrorollstuhl sitzend meinen Van fahren kann.<\/p>\n

Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind?<\/strong><\/p>\n

LGMD hat mich beeinflusst, indem es mich zu einem unabh\u00e4ngigeren und positiveren Menschen gemacht hat.<\/p>\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>?<\/p>\n

Ich m\u00f6chte, dass die Welt wei\u00df, dass man ein gl\u00fcckliches, \"normales\" Leben f\u00fchren kann, wenn man sich darauf konzentriert, auch wenn man im Rollstuhl sitzt. Ich m\u00f6chte auch, dass die Welt wei\u00df, dass ich mich von LGMD nicht unterkriegen lasse. Ich lebe jeden Tag in vollen Z\u00fcgen und mit einem L\u00e4cheln im Gesicht.<\/p>\n

Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was w\u00fcrden Sie als Erstes tun wollen?<\/strong>?<\/p>\n

Wenn ich morgen geheilt w\u00e4re, w\u00fcrde ich als Erstes einen Marathon mit meinem Sohn und meiner Tochter laufen. Sie sind meine Welt!<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":6062,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[82,70],"class_list":["post-6061","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-calpainopathy","tag-lgmd2a-calpainopathy-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Heather - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2023\/01\/24\/individual-with-lgmd-heather\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Heather - 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