{"id":615,"date":"2015-04-29T08:06:42","date_gmt":"2015-04-29T13:06:42","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=615"},"modified":"2015-04-29T08:06:42","modified_gmt":"2015-04-29T13:06:42","slug":"alicia","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/04\/29\/alicia\/","title":{"rendered":"EINZELPERSON MIT LGMD: Alicia"},"content":{"rendered":"

04\/29\/2015<\/p>\n

Name:<\/strong>\u00a0 Alicia<\/p>\n

Alter<\/strong>: 38 Jahre alt\"LGMD2A<\/a><\/p>\n

Land<\/strong>: Vereinigte Staaten<\/p>\n

LGMD Unter-Typ<\/strong>: LGMD2A \/ Kalpainopathie<\/p>\n

 <\/p>\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>:<\/p>\n

Ich wurde im Alter von 35 Jahren diagnostiziert, nachdem ich jahrelang falsch diagnostiziert worden war.<\/p>\n

Was waren Ihre ersten Symptome?<\/strong>:<\/p>\n

Gehen und Laufen auf Zehenspitzen und Treppensteigen waren die ersten Symptome.<\/p>\n

Haben Sie andere Familienmitglieder, die LGMD haben: Nein<\/strong><\/p>\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>:<\/p>\n

Eine der gr\u00f6\u00dften Herausforderungen f\u00fcr mich war es, \u00c4rzte zu finden, die sich mit LGMD und den Herausforderungen und Symptomen, die mit der Krankheit einhergehen, auskennen. Viele \u00c4rzte nahmen meine Probleme nicht ernst (Muskelschmerzen, Kraftverlust, Probleme beim Gehen\/Treppensteigen) oder dachten, ich h\u00e4tte eine Autoimmunerkrankung, bis ich einen Arzt fand, der mich schlie\u00dflich an die Mayo Clinic schickte. Nach einem EMG, Bluttests und einer Muskelbiopsie wurde ich schlie\u00dflich diagnostiziert, aber es dauerte viele Jahre und viele \u00c4rzte, bis ich dort ankam, wo ich jetzt bin.<\/p>\n

Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong>:<\/p>\n

Mit meinem Mann, mit dem ich seit 14 Jahren verheiratet bin, zwei wunderbare T\u00f6chter gro\u00dfzuziehen, war eine gro\u00dfe Leistung und ein Segen. Ich lehre sie Freundlichkeit und mehr Einf\u00fchlungsverm\u00f6gen gegen\u00fcber anderen Menschen, da wir nie wirklich wissen, was die Menschen um uns herum f\u00fcr Probleme haben.<\/p>\n

Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind? \u00a0<\/strong><\/p>\n

Sie hat mich gelehrt, freundlicher zu sein, mehr zuzuh\u00f6ren und jeden Tag zu lachen. Manchmal ist alles, was man tun kann, lachen.<\/p>\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>:<\/p>\n

Wenn Sie ein Familienmitglied oder sogar einen Freund haben, bei dem LGMD diagnostiziert wurde, informieren Sie sich bitte \u00fcber die Krankheit, denn es gibt derzeit keine Behandlung oder Heilung. Es k\u00f6nnte f\u00fcr jemanden die Welt bedeuten.<\/p>\n

Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was w\u00fcrden Sie als Erstes tun wollen?<\/strong>:<\/p>\n

Tanzt die ganze Nacht!<\/p>","protected":false},"excerpt":{"rendered":"

04\/29\/2015 Name:\u00a0 Alicia Age:\u00a0 38 yrs. old Country: United States […]<\/p>","protected":false},"author":1,"featured_media":616,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,15,16],"class_list":["post-615","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-lgmd2a","tag-united-states"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Alicia<\/title>\n<meta name=\"description\" content=\"Alicia, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/04\/29\/alicia\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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