{"id":701,"date":"2015-05-21T11:57:37","date_gmt":"2015-05-21T16:57:37","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=701"},"modified":"2015-05-21T11:57:37","modified_gmt":"2015-05-21T16:57:37","slug":"andrea","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/05\/21\/andrea\/","title":{"rendered":"EINZELPERSON MIT LGMD: Andrea"},"content":{"rendered":"

05\/21\/2015:<\/p>\n

 <\/p>\n

Name:<\/strong>\u00a0 Andrea \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Alter<\/strong>: 17 yrs. old\"LGMD1B<\/a><\/p>\n

Land<\/strong>: Norway<\/p>\n

LGMD Unter-Typ<\/strong>: LGMD 1B \/ Laminopathy<\/p>\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>:<\/p>\n

I was about 6 months old when they discovered that something was wrong, but it wasn\u2019t until I was about 2 years old that they decided it was muscle dystrophy. I have probably had the disease my whole life. I was 7 years old when I got the diagnosis LGMD 1B.<\/p>\n

Was waren Ihre ersten Symptome?<\/strong>:<\/p>\n

I couldn\u2019t hold my head up when I started sitting on my own.<\/p>\n

Haben Sie andere Familienmitglieder, die LGMD haben?<\/strong><\/p>\n

No, I am the only one with LGMD in my family. Both my parents have been tested and the results showed that I didn\u2019t inherit it, it was from a mutation.<\/p>\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>:<\/p>\n

The greatest challenges are that I can\u2019t do anything on my own. I need help with practically everything, like getting dressed, getting in and out of bed, and picking up stuff.<\/p>\n

Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong>:<\/p>\n

My greatest accomplishment is my mind. How I have a positive look on everything.<\/p>\n

Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind?<\/strong><\/p>\n

It has made me appreciate the small pleasures and made me a very positive person.<\/p>\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>:<\/p>\n

I want the world to know that I am not chained to my wheelchair, the wheelchair is the most helpful aid I have. Without it I would be chained, it is my freedom. When some people see me they only see the wheelchair, the noise around me, and not me. The disease only affects my muscles and not my brain, I am a normal 17-year-old girl.<\/p>\n

Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was w\u00fcrden Sie als Erstes tun wollen?<\/strong>:<\/p>\n

I would jump, run up and down the stairs, pick up things, do all the normal things I never have been able to do!<\/p>","protected":false},"excerpt":{"rendered":"

05\/21\/2015:   Name:\u00a0 Andrea \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Age: 17 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":702,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,44],"tags":[42,43,45],"class_list":["post-701","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd1b","tag-laminopathy","tag-lgmd1b","tag-norway"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Andrea<\/title>\n<meta name=\"description\" content=\"Andrea who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/05\/21\/andrea\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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