{"id":825,"date":"2015-06-15T09:42:05","date_gmt":"2015-06-15T14:42:05","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=825"},"modified":"2015-06-15T09:42:05","modified_gmt":"2015-06-15T14:42:05","slug":"rinku","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/","title":{"rendered":"INDIVIDUAL WITH LGMD: Rinku"},"content":{"rendered":"

06\/15\/2015:<\/strong><\/p>\n

Name<\/strong>:\u00a0 Rinku \u00a0\u00a0\u00a0Alter<\/strong>: 23\"Unknown<\/a><\/p>\n

Land<\/strong>: INDIA<\/p>\n

LGMD Unter-Typ<\/strong>:\u00a0\u00a0 Unknown<\/p>\n

\u00a0<\/strong><\/p>\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>:<\/p>\n

I was diagnosed at the age of 8 yrs. old.<\/p>\n

Was waren Ihre ersten Symptome?<\/strong>:<\/p>\n

I was falling frequently and had difficulty\u00a0 with climbing stairs and running.<\/p>\n

Haben Sie andere Familienmitglieder, die LGMD haben?<\/strong><\/p>\n

No, I am the only family member<\/p>\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>:<\/p>\n

The greatest challenge for me is that LGMD is a progressive disease.\u00a0 My muscles are getting weaker day by day and keeps getting worse.\u00a0 My mind is not accepting it.\u00a0\u00a0 It is very difficult for me to lose my independence.<\/p>\n

Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong>:<\/p>\n

My friends and my family are my greatest and I never lose hope in any condition\u2026that is my greatest accomplishment.<\/p>\n

Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind?<\/strong><\/p>\n

Having LGMD has changed everything in my life. \u00a0My dreams, my future, my hopes\u2026 everything!\u00a0 Other people think about their careers and I am only thinking about that how much longer I will be able to run, walk or even stand at all. \u00a0\u00a0\u00a0LGMD is not all bad.\u00a0 I have learned many things from LGMD – ‘learn ground mode of disabled’.\u00a0 \u00a0If any treatment is discovered, I want to become normal.<\/p>\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>:<\/p>\n

The world?? First of all I personally do not know about the LGMD.\u00a0 My doctors don\u2019t know all about LGMD and about the different LGMD sub-types.<\/p>\n

Unfortunately, every association or organization In India uses only the English language.\u00a0 \u00a0Where on other hand, people with any type of muscular dystrophy are not good in education or skilled in English so there is a very big problem in communication.<\/p>\n

And I want that first government to help make doctors aware of muscular dystrophy and all the different types.\u00a0\u00a0 They need to open special research institutes for muscular dystrophy.\u00a0\u00a0 If the doctors can treat the LGMD, they may also become able to treat the old aged body the experiences weakness\u2026<\/p>\n

Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was w\u00fcrden Sie als Erstes tun wollen?<\/strong>:<\/p>\n

If my LGMD was \u201ccured\u201d tomorrow\u2026.First, I would cry so much and then dance like a crazy person \u2026<\/p>","protected":false},"excerpt":{"rendered":"

06\/15\/2015: Name:\u00a0 Rinku \u00a0\u00a0\u00a0Age: 23 Country: INDIA LGMD Sub-Type:\u00a0\u00a0 Unknown […]<\/p>","protected":false},"author":1,"featured_media":823,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13],"tags":[30,47],"class_list":["post-825","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","tag-india","tag-unknown-sub-type"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Rinku<\/title>\n<meta name=\"description\" content=\"Rinku, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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