{"id":8593,"date":"2024-09-27T17:23:35","date_gmt":"2024-09-27T17:23:35","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=8593"},"modified":"2024-09-27T17:25:03","modified_gmt":"2024-09-27T17:25:03","slug":"individual-with-lgmd-dilek","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2024\/09\/27\/individual-with-lgmd-dilek\/","title":{"rendered":"EINZELPERSON MIT LGMD: Dilek"},"content":{"rendered":"

\"\"<\/p>\n

Name<\/strong>: Dilek<\/p>\n

Alter<\/strong>: \u00a039<\/p>\n

Land<\/strong>: T\u00fcrkei<\/p>\n

LGMD Unter-Typ<\/strong>: LGMD 2D \/ R3<\/p>\n

 <\/p>\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>?<\/p>\n

Die Diagnose wurde bei mir im Alter von 21 Jahren gestellt.<\/p>\n

Was waren Ihre ersten Symptome?<\/strong><\/p>\n

Anfangs bemerkte ich, dass ich Schwierigkeiten beim Treppensteigen hatte.<\/p>\n

Haben Sie andere Familienmitglieder, die an LGMD leiden?<\/strong><\/p>\n

Mein Bruder ist 35 Jahre alt<\/p>\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>?<\/p>\n

Ich kann nicht mehr aufstehen, wenn ich hinfalle. Ich kann schon beim kleinsten Stolpern hinfallen. Ich habe Schwierigkeiten, meine Arme zu heben. Ich kann keine Treppen steigen oder hinuntergehen. Mein soziales Leben ist eingeschr\u00e4nkt.<\/p>\n

Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong><\/p>\n

Ich bin psychisch stark und sehe das Leben mit Hoffnung. Ich k\u00e4mpfe f\u00fcr die Unterst\u00fctzung von Behandlungsbem\u00fchungen. Denn ich bin Mutter, Ehefrau und Erzieherin.<\/p>\n

Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind?<\/strong><\/p>\n

Nat\u00fcrlich gibt es Orte, an denen sich das negativ auswirkt, mein soziales Leben k\u00f6nnte aktiver und belebter sein. Leider kann ich nicht an jeder Umgebung teilnehmen.<\/p>\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>?<\/p>\n

Was die Zug\u00e4nglichkeit betrifft, so hoffe ich, dass \u00f6ffentliche Bereiche (Stra\u00dfen, Toiletten, Caf\u00e9s, Restaurants usw.) f\u00fcr uns zug\u00e4nglich sind, dass \u00c4rzte, Wissenschaftler, Verb\u00e4nde und vor allem die Regierungen Gentherapiestudien und Medikamentenstudien unterst\u00fctzen und dass dauerhafte L\u00f6sungen f\u00fcr uns gefunden werden.<\/p>\n

Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was w\u00fcrden Sie als Erstes tun wollen?<\/strong>?<\/p>\n

Ich habe viele Tr\u00e4ume, z. B. mit meiner Tochter ohne Angst im Meer zu schwimmen, einen Kurs f\u00fcr ein Musikinstrument zu belegen, zu laufen, Schneeb\u00e4lle zu spielen und vieles mehr. Ich m\u00f6chte das Leben, das ich aufschieben musste, noch einmal erleben.<\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

Name:\u00a0 Dilek Age: \u00a039 Country: \u00a0Turkey LGMD Sub-Type: \u00a0LGMD 2D […]<\/p>","protected":false},"author":3,"featured_media":8594,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,28],"tags":[108],"class_list":["post-8593","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2d","tag-lgmd2d-turkey"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Dilek - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2024\/09\/27\/individual-with-lgmd-dilek\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Dilek - 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