{"id":945,"date":"2015-07-06T10:35:46","date_gmt":"2015-07-06T15:35:46","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=945"},"modified":"2015-07-06T10:35:46","modified_gmt":"2015-07-06T15:35:46","slug":"ramesh","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/","title":{"rendered":"EINZELPERSON MIT LGMD: Ramesh"},"content":{"rendered":"<p><strong>07\/06\/2015:<\/strong><strong>\u00a0<\/strong><\/p>\n<p><strong>NAME<\/strong>: Ramesh \u00a0<strong>AGE<\/strong>: 28 Jahre alt<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2015\/07\/LGMD2B-Ramesh.png\"><img decoding=\"async\" class=\"lazyload  size-medium wp-image-946 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2015\/07\/LGMD2B-Ramesh-300x169.png\" alt=\"LGMD2B - Ramesh\" width=\"300\" height=\"169\" \/><\/a><br \/>\n<strong>LAND<\/strong>: Indien<br \/>\n<strong>LGMD Unter-Typ<\/strong>: LGMD2B \/ Dysferlinopathie<\/p>\n<p><strong>IN WELCHEM ALTER WURDEN SIE DIAGNOSTIZIERT?<\/strong>:<br \/>\nDie ersten Symptome traten bei mir im Alter von 19 Jahren auf, aber die Diagnose wurde erst im Alter von 22 Jahren gestellt.<\/p>\n<p><strong>WAS WAREN IHRE ERSTEN SYMPTOME?<\/strong>:<br \/>\nMein erstes Symptom war, dass ich auf dem Weg ins B\u00fcro pl\u00f6tzlich hinfiel. Ich konsultierte meinen Arzt, er schlug mir Physiotherapie vor, aber das half nicht viel. Danach hielten wir es f\u00fcr das Beste, den Arzt in Bangalore (Indien) zu konsultieren. Ich wurde einer Muskel- und Nervenbiopsie unterzogen und musste zwei Monate lang einen Gips tragen, und zwar f\u00fcr jedes Bein einzeln. Sie schickte mich f\u00fcr weitere Untersuchungen zu einem Neurologen.<\/p>\n<p><strong>HABEN SIE ANDERE FAMILIENMITGLIEDER, DIE AN LGMD LEIDEN<\/strong>: Nein<\/p>\n<p><strong>WAS SIND F\u00dcR SIE DIE GR\u00d6SSTEN HERAUSFORDERUNGEN IM LEBEN MIT LGMD<\/strong>:<br \/>\nIch finde, die gr\u00f6\u00dfte Herausforderung im Leben mit LGMD ist, dass die Menschen es schwer haben, sie zu verstehen. Es ist nicht einfach, jemandem LGMD zu beschreiben. Viele Leute denken, dass ich \u00fcbertreibe oder sogar l\u00fcge, wenn ich sage, dass ich diese Krankheit habe.   Abgesehen von der Krankheit empfinde ich auch die mangelnde Zug\u00e4nglichkeit und die gesellschaftliche Einstellung gegen\u00fcber Behinderten als sehr einschr\u00e4nkend. Ich w\u00fcnschte, die Menschen w\u00e4ren offener daf\u00fcr, mehr \u00fcber diese Krankheiten zu erfahren und zu verstehen, wie man sie loswerden kann.<\/p>\n<p><strong>WAS IST IHRE GR\u00d6SSTE ERRUNGENSCHAFT?<\/strong>:<br \/>\nMeine gr\u00f6\u00dfte Errungenschaft ist, dass ich es geschafft habe, auf meine eigene Art und Weise zu arbeiten und zu arbeiten.<\/p>\n<p><strong>WIE HAT LGMD SIE ZU DER PERSON GEMACHT, DIE SIE HEUTE SIND<\/strong>:<br \/>\nIch habe gelernt, Menschen zu sch\u00e4tzen, die mir helfen, Geduld zu haben, hoffnungsvoll zu bleiben und Depressionen zu vermeiden, f\u00fcr alles dankbar zu sein, Menschen zu verstehen, die nicht in der gleichen Situation sind wie ich und die sich in einer schwierigen Lage befinden, zu sch\u00e4tzen, was ich habe, und zu sparen, meiner Familie jeden Tag mehr Liebe zu geben, als w\u00e4re es der letzte. Ich habe gelernt, geduldig zu sein und die Tatsache zu akzeptieren, dass jeder eine helfende Hand braucht!<\/p>\n<p><strong>WAS SOLL DIE WELT \u00dcBER LGMD WISSEN?<\/strong>:<br \/>\nSelbst die meisten Mediziner sind sich dieser Erkrankung nicht bewusst. Sie m\u00fcssen sich dessen bewusst sein und den Patienten beibringen, wie sie sicher und anspruchsvoll mit dem Leben umgehen k\u00f6nnen.<\/p>\n<p><strong>WENN IHRE LGMD MORGEN \"GEHEILT\" WERDEN K\u00d6NNTE, WAS W\u00dcRDEN SIE ALS ERSTES TUN WOLLEN?<\/strong>:<br \/>\nZun\u00e4chst einmal m\u00f6chte ich jedem einzelnen Arzt, der mir pers\u00f6nlich geholfen hat, gratulieren. Das Wichtigste ist, dass ich einen Blog \u00fcber diese Krankheit er\u00f6ffne und die Patienten bei der \u00dcberwindung der Krankheit anleiten und unterst\u00fctzen werde. Ich wei\u00df, wie sehr ich unter dieser Krankheit leide. Ich werde anderen nicht die Chance geben, erneut zu leiden.<\/p>","protected":false},"excerpt":{"rendered":"<p>07\/06\/2015:\u00a0 NAME: Ramesh \u00a0AGE: 28 yrs. old COUNTRY: India LGMD [&hellip;]<\/p>","protected":false},"author":1,"featured_media":946,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[21,30,23],"class_list":["post-945","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-dysferlinopathy","tag-india","tag-lgmd2b"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>LGMD Spotlight Interview - Ramesh<\/title>\n<meta name=\"description\" content=\"Ramesh who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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