{"id":961,"date":"2015-07-22T13:35:05","date_gmt":"2015-07-22T18:35:05","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=961"},"modified":"2015-07-22T13:35:05","modified_gmt":"2015-07-22T18:35:05","slug":"leanne","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/07\/22\/leanne\/","title":{"rendered":"EINZELPERSON MIT LGMD: Leanne"},"content":{"rendered":"

07\/22\/2015:<\/p>\n

NAME<\/strong>: Leanne AGE<\/strong>: 50 Jahre alt\"LGMD2A<\/a>
\nLAND<\/strong>: Australien
\nLGMD Unter-Typ<\/strong>: LGMD2A \/ Kalpainopathie<\/p>\n

IN WELCHEM ALTER WURDEN SIE DIAGNOSTIZIERT?<\/strong>:
\nDie Diagnose wurde bei mir im Alter von 42 Jahren durch eine Muskelbiopsie gestellt.<\/p>\n

WAS WAREN IHRE ERSTEN SYMPTOME?<\/strong>:
\nIch hatte an den H\u00fcften und im Ges\u00e4\u00dfbereich Gewicht verloren. Nach der Diagnose f\u00fcgten sich andere Dinge zusammen, z. B. gr\u00f6\u00dfere Schwierigkeiten, aus der Hocke aufzustehen, keine Energie nach dem Sport zu haben und nicht die Treppe hochzuspringen.<\/p>\n

HABEN SIE ANDERE FAMILIENMITGLIEDER, DIE AN LGMD LEIDEN<\/strong>:
\nNein, ich bin das einzige Familienmitglied, bei dem LGMD diagnostiziert wurde.<\/p>\n

WAS SIND F\u00dcR SIE DIE GR\u00d6SSTEN HERAUSFORDERUNGEN IM LEBEN MIT LGMD<\/strong>:
\nMangel an Spontaneit\u00e4t bei Aktivit\u00e4ten, vor allem bei Soloausfl\u00fcgen, z. B. \"Spielzeit\" mit der Kamera, Einkaufen.<\/p>\n

dass ich anfangen muss, darum zu bitten, dass Dinge erledigt werden, obwohl ich mich immer wohler f\u00fchle, wenn ich helfe oder etwas tue<\/p>\n

Ich muss meine Ziele und Hoffnungen f\u00fcr die Zukunft neu bewerten und definieren, um sie mit den Einschr\u00e4nkungen in Einklang zu bringen, die jetzt bestehen und weiterhin bestehen werden, ohne klare Richtlinien, wie und wann die LMGD aufgrund ihrer unbest\u00e4ndigen Natur voranschreiten wird<\/p>\n

WAS IST IHRE GR\u00d6SSTE ERRUNGENSCHAFT?<\/strong>:
\nIch hoffe, dass ich in all meinen Beziehungen ein guter, f\u00fcrsorglicher Mensch bin und dass ich dazu beigetragen habe, meinen jungen erwachsenen Kindern gute Moral und Werte zu vermitteln.<\/p>\n

WIE HAT LGMD SIE ZU DER PERSON GEMACHT, DIE SIE HEUTE SIND<\/strong>:
\nIch bin definitiv einf\u00fchlsamer und weniger in Eile (hahaha) und akzeptiere mehr, dass das Leben nicht immer ein Zuckerschlecken\" ist.<\/p>\n

WAS SOLL DIE WELT \u00dcBER LGMD WISSEN?<\/strong>:
\nIch w\u00fcrde mir w\u00fcnschen, dass diese Krankheit in der \u00d6ffentlichkeit so leicht zu erkennen ist wie ALS (MND); sie k\u00e4mpft immer noch um Anerkennung, hat aber wohl einen h\u00f6heren Bekanntheitsgrad als MD, Krebs, MS und viele andere, um den Menschen zu helfen, die notwendigen Bed\u00fcrfnisse zu verstehen und sich zu informieren.<\/p>\n

WENN IHRE LGMD MORGEN \"GEHEILT\" WERDEN K\u00d6NNTE, WAS W\u00dcRDEN SIE ALS ERSTES TUN WOLLEN?<\/strong>:
\nAlle sind gleichberechtigt - einen gro\u00dfen Familienspaziergang machen, mit der Kamera an den Strand gehen, ohne Vorplanung \u00fcberall hinreisen, umdekorieren und Garten!!!<\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

07\/22\/2015: NAME: Leanne AGE: 50 yrs. old COUNTRY: Australia LGMD […]<\/p>","protected":false},"author":1,"featured_media":962,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[51,12,19],"class_list":["post-961","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-australia","tag-calpainopathy","tag-lgmd-2a"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Leanne<\/title>\n<meta name=\"description\" content=\"Leanne who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/07\/22\/leanne\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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