{"id":967,"date":"2015-07-29T10:25:33","date_gmt":"2015-07-29T15:25:33","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=967"},"modified":"2015-07-29T10:25:33","modified_gmt":"2015-07-29T15:25:33","slug":"patricia","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/07\/29\/patricia\/","title":{"rendered":"EINZELPERSON MIT LGMD: Patricia"},"content":{"rendered":"

07\/29\/2015:<\/strong><\/p>\n

NAME<\/strong>: Patricia \u00a0AGE<\/strong>: 26 Jahre alt\"LGMD2A<\/a><\/p>\n

LAND<\/strong>: Vereinigte Staaten<\/p>\n

LGMD Unter-Typ<\/strong>: LGMD2A \/ Kalpainopathie<\/p>\n

 <\/p>\n

IN WELCHEM ALTER WURDEN SIE DIAGNOSTIZIERT?<\/strong>:<\/p>\n

Bei mir wurde MD diagnostiziert, als ich 12 Jahre alt war.<\/p>\n

WAS WAREN IHRE ERSTEN SYMPTOME?<\/strong>:<\/p>\n

Die ersten Symptome waren Zehengang, nicht gerade Arme, hinkender Gang und keine Gewichtszunahme.<\/p>\n

HABEN SIE ANDERE FAMILIENMITGLIEDER, DIE AN LGMD LEIDEN: <\/strong><\/p>\n

Keiner in meiner Familie hat Muskeldystrophie oder LGMD.<\/p>\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>:<\/p>\n

Die gr\u00f6\u00dfte Herausforderung besteht darin, dass ich bestimmte Dinge nicht mehr tun kann, wie z. B. gehen, laufen, alleine aus dem Bett aufstehen, alleine baden, Abendessen kochen, mit meinem Neffen auf dem Boden spielen. Alles, was ich tue, ist eine Herausforderung.<\/p>\n

WAS IST IHRE GR\u00d6SSTE ERRUNGENSCHAFT?<\/strong>:<\/p>\n

Die gr\u00f6\u00dfte Errungenschaft w\u00e4re es, einen wunderbaren Mann zu heiraten und hoffentlich bald eine Familie zu gr\u00fcnden, au\u00dferdem, als ich meinen elektrischen Rollstuhl bekam und zum ersten Mal seit zwei Jahren wieder kochen konnte und mit meinem Mann nach drau\u00dfen gehen konnte.<\/p>\n

WIE HAT LGMD SIE ZU DER PERSON GEMACHT, DIE SIE HEUTE SIND? <\/strong><\/p>\n

Mir ist klar geworden, dass ich zwar in meinen M\u00f6glichkeiten eingeschr\u00e4nkt bin, dass ich aber mit den richtigen Hilfsmitteln einige dieser Dinge trotzdem tun kann, nur eben auf eine andere Art und Weise.<\/p>\n

WAS SOLL DIE WELT \u00dcBER LGMD WISSEN?<\/strong>:<\/p>\n

Informieren Sie sich \u00fcber LGMD und die Probleme, die die Betroffenen durchmachen. Beurteilen Sie jemanden nicht nach seinem Aussehen. Jede Form von MD hat ein anderes Aussehen, aber das macht die Person nicht aus, sondern ihre Pers\u00f6nlichkeit. Wenn Sie jemanden sehen, der sich abm\u00fcht, ob im Rollstuhl oder beim Gehen, bieten Sie Ihre Hilfe an. Ich wei\u00df, dass ich sehr dankbar bin, wenn mich jemand fragt, ob er mir helfen kann.<\/p>\n

WENN IHRE LGMD MORGEN \"GEHEILT\" WERDEN K\u00d6NNTE, WAS W\u00dcRDEN SIE ALS ERSTES TUN WOLLEN?<\/strong>:<\/p>\n

Ich w\u00fcrde so schnell wie m\u00f6glich die Stra\u00dfe entlang und um den Block rennen, ich w\u00fcrde auf und ab springen und vielleicht sogar Saltos machen. Ich tr\u00e4ume von dem Tag, an dem ich das tun kann.<\/p>","protected":false},"excerpt":{"rendered":"

07\/29\/2015: NAME: Patricia \u00a0AGE:\u00a0 26 yrs old COUNTRY: United States […]<\/p>","protected":false},"author":1,"featured_media":968,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,15,16],"class_list":["post-967","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-lgmd2a","tag-united-states"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Patricia<\/title>\n<meta name=\"description\" content=\"Patricia who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/07\/29\/patricia\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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